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  1. Replies
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    Sorry just offloading again. It is nearly a year...

    Sorry just offloading again. It is nearly a year now since my symptoms started suddenly. And 7 months since my diagnosis. But I am still largely in denial and just can't come to terms with the...
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    Hello Daisymeg, I...

    Hello Daisymeg,
    I am so sorry your husband has passed away. At the start of this post he stated how much he enjoyed various sports and cycling etc. So hopefully he...
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    Thank you Kayleigh. I am aware of and contacted...

    Thank you Kayleigh. I am aware of and contacted many of the people you have mentioned. Many people on this forum had mentioned hospices before so I asked about it at my last MND clinic. But , I was...
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    Thank you Terry. As I have said before I just...

    Thank you Terry. As I have said before I just can't come to terms with the prognosis and I just can't make / work on all the major decisions I have to make like whether to convert my home to be...
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    Hello, thank you all for your feedback to my...

    Hello, thank you all for your feedback to my offload.
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    I am sorry. I am just offloading and probably...

    I am sorry. I am just offloading and probably repeating myself. It is over 3 weeks since my last fall. I have lost all confidence to get out of the house, especially walking. Apart from doing...
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    Hello Scotty. I did read your introduction. I am...

    Hello Scotty. I did read your introduction. I am sorry you have been diagnosed with MND especially as at one stage you were told you definitely didn't have it. I think it is difficult to diagnose...
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    Thank you all for your responses. Debbie, I am...

    Thank you all for your responses. Debbie, I am sorry you had a fall and fractured your leg. And to have a blood clot in your lung must be more scary / serious than having one in your leg. Please...
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    Thank you Lynne and Andy. I am sorry Andy that...

    Thank you Lynne and Andy. I am sorry Andy that you are experiencing pain with your cramps. I don't know why I have blood clots. The hospital staff said it was probably due to reduced mobility. I was...
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    Oh well I may have been wrong to describe it as...

    Oh well I may have been wrong to describe it as spasms or cramps. My lower leg and foot and ankle were also swollen and I had to go to hospital after my gp examined it. Turns out that I've got a...
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    Thank you all for your feedback. I am seeing my...

    Thank you all for your feedback. I am seeing my OT assistant tomorrow and my physio on Friday to discuss things like crutches and rollator . I can't believe I have fallen 4 times in the past 10...
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    Muscle spasms

    Are muscle spasms and/or pain normal in MND. I am at the early stages of MND and the worse symptom is weakness in my right leg and poor balance. My right leg seems to have worsened and I can't...
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    Thank you Terry and Julie. I do have a very...

    Thank you Terry and Julie. I do have a very proactive OT thankfully.
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    Hi Puddy. I am sorry to hear of your husband's...

    Hi Puddy. I am sorry to hear of your husband's diagnosis. It is life changing for both of you and a recent diagnosis so it takes time to come to terms with it. You say you feel helpless and it is...
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    I will contact my physio on Monday. In my MND...

    I will contact my physio on Monday. In my MND clinic it appears to be the physios that select walking AIDS. When they first assessed me I asked about rollator / walking frames but they didn't think I...
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    Thank you Lynne and Gillette. Another night of...

    Thank you Lynne and Gillette. Another night of chronic insomnia for a change. I'd been thinking that my condition had plateau' but yesterday's fall and the way my leg/balance feels this morning makes...
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    Uggh. I have been stuck in the house most of the...

    Uggh. I have been stuck in the house most of the day without the confidence to get out and walk. But I finally got some confidence to walk to my local shops early evening. But I struggled and my...
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    Thank you Sheila . I am sorry that MND scares you...

    Thank you Sheila . I am sorry that MND scares you and you have lost your voice. I agree that not thinking about MND can help;- just take one day at a time. But people also mention planning ahead etc,...
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    Thank you Terry. I hope I can increase my...

    Thank you Terry. I hope I can increase my strength and cope , like you say, with carer support etc. I am just about maintaining my independence at the moment at the early stages of MND but my...
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    Oh well it is now 6months since my diagnosis and...

    Oh well it is now 6months since my diagnosis and I still am very much in denial. I just can't believe or come to terms with the diagnosis and prognosis. As stated before, I live alone, and have no...
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    Thank you all for your feedback. I am sorry Shrew...

    Thank you all for your feedback. I am sorry Shrew that Mick doesn't have the confidence to drive anymore. I can still drive at the moment and it is one of the few things I do that feels normal. My...
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    I fell in my house today but fortunately didn't...

    I fell in my house today but fortunately didn't hurt or break anything. My right leg is weak and affects my balance when walking. But very occasionally (not even every week) it just suddenly gives...
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    Thank you all for your feedback and advice. The...

    Thank you all for your feedback and advice. The only time I ever feel positive , I think, is when I am in denial. I will get re-diagnosed or my symptoms will just go into remission. But, As one of my...
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    Thanks Lynne and Gillette. I have asked about...

    Thanks Lynne and Gillette. I have asked about walking frames but my physio's don't feel I am at that stage so they have given me walking sticks. I do have access to palliative care at my MND clinic....
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    It's 5 months since my diagnosis and I still...

    It's 5 months since my diagnosis and I still can't come to terms with it. I can still drive and walk at the moment although my balance is bad as well as the strength of my right leg. I have slightly...
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