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Type: Posts; User: Sueb

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  1. Thread: inbox

    by Sueb
    Replies
    8
    Views
    1,053

    I tried to reply to your message Shrew but it...

    I tried to reply to your message Shrew but it said your inbox was full

    Sue
  2. Replies
    4
    Views
    442

    We find that patient transfer are not great....

    We find that patient transfer are not great. First time we used them they arrived late and we were late for an appointment and then after having spending an hour having Steves wheelchair mended they...
  3. Replies
    52
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    7,675

    So sorry to hear of your loss. Take care Steve...

    So sorry to hear of your loss. Take care
    Steve and Sue
  4. Replies
    6
    Views
    635

    Hi Mick When Steve had his Rig fitted they...

    Hi Mick

    When Steve had his Rig fitted they just did bloods especially blood clotting, it took them 5 goes at this! Steve doesn’t like to give his blood away! and arterial blood gasses.

    Sue
  5. Thread: Riluzole brands

    by Sueb
    Replies
    7
    Views
    780

    Steve has lot of problems with Glentek. It makes...

    Steve has lot of problems with Glentek. It makes lips and tongue tingle. He takes it with yoghurt. We have had sun pharmaceuticals one recently

    Sue
  6. Replies
    7
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    777

    When I open Steve’s rig lots of wind can come out...

    When I open Steve’s rig lots of wind can come out but I make sure I have a cloth as sometimes liquid can spurt out.

    Sue
  7. Replies
    39
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    3,214

    I can relate to your boredom in hospital Dina....

    I can relate to your boredom in hospital Dina. Steve has been in for nearly two weeks now. He is so bored. There are four beds in his bay and the men come and go and he is still there.. He cannot...
  8. Thread: Steve in hospital

    by Sueb
    Replies
    10
    Views
    1,334

    Thank you everyone. Steve has had everything...

    Thank you everyone.

    Steve has had everything tested and it came back positive for diabetes.. they have said they just need to get the insulin type and amount right. So hopefully the new one...
  9. Thread: Steve in hospital

    by Sueb
    Replies
    10
    Views
    1,334

    Steve in hospital

    Steve is in hospital with pneumonia again. Think he caught an infection after one of his carers came with a bad chest. We had told them they couldnít come but they still did. will be having strong...
  10. Replies
    12
    Views
    1,730

    Steve started with his arms and hands going...

    Steve started with his arms and hands going first. He couldn’t dress or undress himself. I put Velcro on his trousers, he wore Velcro shoes. His balance went because his shoulders dropped and would...
  11. Replies
    12
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    1,663

    Hi. Vicky What about starting with a walk...

    Hi. Vicky

    What about starting with a walk around a local park, shops, visiting cafe or pub for lunch or attending a local Mnd group. These are things we do often. Steve wears a convene when he is...
  12. Replies
    11
    Views
    1,583

    Steve had similar ones provided by Orthics then...

    Steve had similar ones provided by Orthics then he had some that were moulded to is hands.

    Steve can’t use his hands to drive his wheelchair. He uses a foot plate to drive it has he still has...
  13. Thread: Hi Shrew

    by Sueb
    Replies
    0
    Views
    446

    Hi Shrew

    Shrew just tried to send message and it says your inbox is full

    Sue
  14. Thread: Care/Respite

    by Sueb
    Replies
    8
    Views
    1,080

    I have had a carers assessment through our local...

    I have had a carers assessment through our local council. I was referred through the social OT at first and when Steve was in hospital with pneumonia the social worker referred again. The assessment...
  15. Thread: Micks funeral

    by Sueb
    Replies
    14
    Views
    1,870

    Sheila Mick would have been very proud of all...

    Sheila

    Mick would have been very proud of all his motorbike friends being there to give him such a great send off.

    Sue x
  16. Thread: Flail arm

    by Sueb
    Replies
    11
    Views
    2,193

    My Husband, Steve, was diagnosed with flail arm...

    My Husband, Steve, was diagnosed with flail arm als in July 2014. He had been having problems with his hands for a few years and was diagnosed with carpal tunnel in both hands. Then in 2013 he had a...
  17. Thread: Good news

    by Sueb
    Replies
    111
    Views
    7,917

    Well done Lynne. I know what you mean about...

    Well done Lynne.

    I know what you mean about the pavements ours here are also atrocious. We often end up on the road except on the main roads of course. Steve takes paracetamol before we go out as...
  18. Thread: Broken wrist

    by Sueb
    Replies
    9
    Views
    1,286

    Thanks everyone I will go through the links later...

    Thanks everyone I will go through the links later when I can sit and read it properly. The social worker says there shouldn’t be any worries about getting it but Steve is worried about possible bills...
  19. Thread: Broken wrist

    by Sueb
    Replies
    9
    Views
    1,286

    Broken wrist

    Four weeks ago, while going to put Steve into our WAV I fell and broke my left wrist. I had to have it operated on and have a plate put in.. it is mending well and Iím able to do a few more things....
  20. Thread: Good news

    by Sueb
    Replies
    111
    Views
    7,917

    Glad you have a new car that is more suitable for...

    Glad you have a new car that is more suitable for you. Hope you get many happy memories using it.

    Steve never had a proper test for his wheelchair. He just went up and down the corridor at...
  21. Replies
    17
    Views
    1,948

    Congratulations Andy. Sue

    Congratulations Andy.

    Sue
  22. Thread: Heartbroken

    by Sueb
    Replies
    27
    Views
    3,733

    Shrew I am shocked at reading your news but you...

    Shrew I am shocked at reading your news but you canít blame yourself in any way. Think of all the good times you have had together and all the memories you have made.

    Condolences to you and your...
  23. Thread: Pinkelle 💕

    by Sueb
    Replies
    14
    Views
    1,884

    So Sorry to hear about Pink. Condolences to her...

    So Sorry to hear about Pink. Condolences to her family.

    Steve and Sue
  24. Thread: RIP Fru's Ed

    by Sueb
    Replies
    14
    Views
    3,352

    Hi Fru Sorry to hear of you loss. Treasure...

    Hi Fru

    Sorry to hear of you loss. Treasure all those memories you have made together.

    Sue and Steve x
  25. Thread: Sore bum!

    by Sueb
    Replies
    17
    Views
    3,325

    Thanks for the feedback Steve seems to sit to...

    Thanks for the feedback

    Steve seems to sit to his left side so left buttock gets painful also his coccyx gets sore. He seems to slide slightly forward too. He has had a invarcare one with gel in...
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