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Type: Posts; User: Helen82

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    Thanks Terry and Ellie. No mum hasnít been...

    Thanks Terry and Ellie. No mum hasnít been approved for funding yet. Itís still considered that her needs are social rather than medical but various professionals keep mentioning it so itís in the...
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    Continence issues

    Hi everyone
    I was wondering how those whose arms are affected manage to go to the toilet? Mum isnít incontinent as such but canít pull down her clothes anymore so she we need solutions to enable...
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    Thank you so much for all this advice - itís...

    Thank you so much for all this advice - itís amazing! Granted itíll take me a while to wade through it all but Iím up for a challenge 😉 haha. Mums looking like she may have changed her mind now so...
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    Nursing/care homes

    Evening all.
    Mums had some days recently where sheís really struggled to walk, even just to transfer from chair to chair. As she lives alone weíve unfortunately started talking about whether it is...
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    Thanks Broostine. I applied for continuing...

    Thanks Broostine. I applied for continuing healthcare but it was refused because they said mums needs are more social than medical (?!). But we met with a new care company this week who seem more in...
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    Thank you Devonmaid. Are direct payments where...

    Thank you Devonmaid. Are direct payments where you find the carers yourself and employ them directly in a private arrangement rather than through a care company?
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    Thanks for your replies. My thoughts are that a...

    Thanks for your replies. My thoughts are that a personal assistant may be better and we may look at them being there more than the current carers. I donít think the care company would be sorry to see...
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    Mums care needs - advice please?

    Hi everyone. Hope you are all as well as can be. My head is spinning with thoughts of mums care needs and was hoping some insight from you all would help!

    Mum is struggling more to mobilise...
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    So sorry to hear of your PLS diagnosis. Weíve...

    So sorry to hear of your PLS diagnosis. Weíve only been dealing with PLS for a short time (just over a year - itís my mum who has it). Itís been overwhelming a lot of the time but I find this forum...
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    Carers support groups

    Has anyone been to a MNDA carers support group?im going to one on Wednesday and was just wondering what to expect cos I get really anxious in these situations! Thanks, Helen.
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    Thank you for your replies. This forum has been...

    Thank you for your replies. This forum has been really helpful because we've just been in a bubble with it all and trying to figure out what's going on step by step. Think I read somewhere that...
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    PLS experiences please?

    Hi everyone. I've just joined the forum for advice and support to help me to support my mum. I'll not go too much into the background story, I don't think it's fair when it's not my story to tell....
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