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  1. Replies
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    Thanks for your reply Sheila. Sounds like you...

    Thanks for your reply Sheila. Sounds like you know where I'm coming from. I've always felt uncomfortable being watched and now with the neighbours and others knowing I'll feel watched and...
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    Should I be bothered?

    My husband is wearing his MNDA t-shirt about (got for supporting the Bury 10K last weekend).

    He's just gone to Asda which is good to bring attention to MND in the hope of getting more people...
  3. Good luck John. I hope that it doesn't make you...

    Good luck John. I hope that it doesn't make you feel ill. Take care. Lynne
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    Good luck Dina. Lynne x

    Good luck Dina. Lynne x
  5. Thanks Ellie. I read all about it previously but...

    Thanks Ellie. I read all about it previously but forgot. Appreciate the reminder. I read it again. There's other research going on but no other to my knowledge for C9ORF72 in the world. I get the ALS...
  6. Thread: 10k

    by Lynne K
    Replies
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    1,197

    There were a couple of women running with MNDA...

    There were a couple of women running with MNDA tops on who we didn't know. My husband tried to get their attention but they didn't hear him with all the noise near to the start.
  7. Thread: 10k

    by Lynne K
    Replies
    19
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    1,197

    Yea. They all said that they'll run again for...

    Yea. They all said that they'll run again for MNDA including the ones who couldn't today.
  8. Thread: 10k

    by Lynne K
    Replies
    19
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    1,197

    1074 1075

    1074

    1075
  9. Thread: 10k

    by Lynne K
    Replies
    19
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    1,197

    Thanks Ellie. There's one picture with all of us...

    Thanks Ellie. There's one picture with all of us in except my husband who was taking the picture and one of the guys. This was after the race. One of the girls couldn't run today because she injured...
  10. Thread: 10k

    by Lynne K
    Replies
    19
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    1,197

    1073

    1073
  11. Thread: 10k

    by Lynne K
    Replies
    19
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    1,197

    Hi Barry. I've saved some pictures to the gallery...

    Hi Barry. I've saved some pictures to the gallery on my phone. How do I upload one. I've looked around and not found how. Thanks
  12. Thread: 10k

    by Lynne K
    Replies
    19
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    1,197

    Thanks Barry. I'm learning now. Thanks

    Thanks Barry. I'm learning now. Thanks
  13. Thread: 10k

    by Lynne K
    Replies
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    1,197

    https://www.facebook.com/groups/2404698462/permali...

    https://www.facebook.com/groups/2404698462/permalink/10157855358818463/

    The above link is on our private FB 'Bogglers' site. Boggle is what we call the group who have been meeting for 51 years. We...
  14. Thread: 10k

    by Lynne K
    Replies
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    1,197

    10k

    My stepson, his wife and friends are doing the Bury 10K today for MNDA. I'll try to upload a pic later. Lynne
  15. Replies
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    Chrissie, I'm sorry to hear about your dear...

    Chrissie, I'm sorry to hear about your dear Douglas. It must be very hard and upsetting for you. I hope that whilst Douglas is in hospital that you can have some 'me' time. I hope that his chest...
  16. Thread: Walkers

    by Lynne K
    Replies
    19
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    1,755

    Ellie :) xx

    Ellie :) xx
  17. Thread: Walkers

    by Lynne K
    Replies
    19
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    1,755

    Thanks Kayleigh x

    Thanks Kayleigh x
  18. Thread: Walkers

    by Lynne K
    Replies
    19
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    1,755

    Hi Kayleigh, yea it did. She brought me a toilet...

    Hi Kayleigh, yea it did. She brought me a toilet seat riser. She ordered it several weeks ago and sent about three reminders but they hadn't sent it. So she picked it up and brought it to me herself....
  19. Thread: Hello

    by Lynne K
    Replies
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    785

    Hi Chris. I'm sorry that you have had to join us...

    Hi Chris. I'm sorry that you have had to join us but you've found a great place to share, give and receive tips and chat. I'm glad that your recent unscheduled swim didn't end in a+e. Take care. Lynne
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    Sarah, if you are in the UK your OT or Physio...

    Sarah, if you are in the UK your OT or Physio would organise a walker for you through the local adult social care department. Lynne
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    Hi Sarah, welcome. I'm sorry that you've had to...

    Hi Sarah, welcome. I'm sorry that you've had to join us on this horrid journey. Bad luck that it all happened shortly after your house move and new job. I hope that your new home is either already...
  22. Thread: Ventilation

    by Lynne K
    Replies
    137
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    11,890

    Hi Dina. Sorry about your degeneration. I hope...

    Hi Dina. Sorry about your degeneration. I hope that you get very good carers for home before you're discharged. Lynne x
  23. Replies
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    Glad that you feel better x

    Glad that you feel better x
  24. Thread: Ventilation

    by Lynne K
    Replies
    137
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    11,890

    It's great that your 2 procedures are all done...

    It's great that your 2 procedures are all done and dusted Dina. Hopefully you won't be in hospital long and you will have enough good quality carers in place. Lynne x
  25. Thread: Rch4

    by Lynne K
    Replies
    365
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    89,350

    Hi Mike O. I had said that I would avoid this...

    Hi Mike O. I had said that I would avoid this thread and not post. But I read your contributions and felt like responding. I'll attempt to do so briefly.

    I searched online for information on...
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