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  1. Hi Madhur, Thank you for your query. ...

    Hi Madhur,

    Thank you for your query.

    Alcohol consumption seems to have no influence on the risk of developing MND. Also, there is no conclusive evidence to suggest that alcohol intake may...
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    Please don't apologise. It's completely...

    Please don't apologise. It's completely understandable that you would want someone to contact. Please be assured that we will always try to respond to you as soon as possible :)

    Best Wishes
    ...
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    Hi Matthew I'm sorry to hear about the...

    Hi Matthew

    I'm sorry to hear about the problems that you are having. It must be very unpleasant and uncomfortable for you. We would suggest speaking to a dentist to discuss having teeth removed....
  4. Thread: Progression

    by MNDConnect
    Replies
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    425

    Hi Matthew As everyone has said, MND is a very...

    Hi Matthew

    As everyone has said, MND is a very individual disease and no two people will have the same experience of symptoms or progression.

    MND is a gradual progression so things wouldn't...
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    Hi Jor I'm sorry that you have symptoms which...

    Hi Jor

    I'm sorry that you have symptoms which are concerning you. The symptoms that you describe wouldn't be typical symptoms of motor neurone disease (MND). Sensations such as burning, pins and...
  6. Dear Darius, I am so sorry to hear you have...

    Dear Darius,

    I am so sorry to hear you have been experiencing symptoms and are concerned they may be because of Motor Neurone Disease (MND).

    MND can cause weakness in the limbs as well as...
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    Hi Frosty I think it might be best if you...

    Hi Frosty

    I think it might be best if you contact us directly and we can answer your questions and address your concerns. Obviously the forum has many members who are living with MND and is often...
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    Hi Frosty It was me that you spoke to on the...

    Hi Frosty

    It was me that you spoke to on the phone last week. We had quite a lengthy conversation and you had no apparent speech problems. Speech problems in MND just don't tend to appear in the...
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    Hello I'm sorry to hear about your rare...

    Hello

    I'm sorry to hear about your rare neurological condition and the concerns that you have.

    With regards to motor neurone disease (MND), none of your symptoms would be typical.

    When...
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    I'm so very sorry to hear about Terry's death. ...

    I'm so very sorry to hear about Terry's death. Terry has been a frequent poster on the forum for a long time and his posts have helped so many people. He was also always so concerned about the...
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    Hi Neil There is nothing that you have said...

    Hi Neil

    There is nothing that you have said which would suggest that these are symptoms of MND.

    Fasiculations are not an initial symptom of MND unless accompanied by clinical weakness. This...
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    Hi Neil I am sorry that you have symptoms that...

    Hi Neil

    I am sorry that you have symptoms that you are concerned about. Did the neurologist give any indication of what they thought might be causing your symptoms?

    You mention a feeling of...
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    Hi Sparkles I know it's really hard but you...

    Hi Sparkles

    I know it's really hard but you need to wait for the tests. The symptoms you describe, whilst they could be symptoms of MND, they also could be other things. It would be unusual to...
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    Hi Sparkles I'm sorry to hear that you are...

    Hi Sparkles

    I'm sorry to hear that you are concerned that you might have motor neurone disease (MND) and are undergoing tests. May I ask what the neurologist has said with regards to your...
  15. Thread: Ropinirole

    by MNDConnect
    Replies
    2
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    1,191

    Hi Timm Please see below the response from our...

    Hi Timm

    Please see below the response from our Research Team

    Best Wishes

    Rachel


    ROPI is a ‘non-ergot dopamine receptor agonist’ usually used to treat Parkinson’s disease and Restless...
  16. Thread: Ropinirole

    by MNDConnect
    Replies
    2
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    1,191

    Hi Timm I have contacted our Research Team for...

    Hi Timm

    I have contacted our Research Team for some information on Ropinirole and the paper that you have linked. I will post their response as soon as I hear back from them

    Best Wishes
    ...
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    Hi Sarah It's common to experience diarrhea...

    Hi Sarah

    It's common to experience diarrhea with PEG feeding. The digestive system wasn't really designed to have liquid pumped directly in to the stomach and so this can often cause irritation. ...
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    Hi Nigel I am sorry that this is concerning...

    Hi Nigel

    I am sorry that this is concerning you. The symptoms that you describe do not sound typical of motor neurone disease (MND). They could be caused by many other things. I think whenever...
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    Hi Chad5 I am sorry to hear that you have...

    Hi Chad5

    I am sorry to hear that you have symptoms which are concerning you. How did you get on at your neurology appointment?

    The symptoms that you describe are not typical symptoms of motor...
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    Dear Ali, I can understand your concern, some...

    Dear Ali,

    I can understand your concern, some of the symptoms you describe do mimic those of Motor Neurone Disease (MND), however these symptoms are usually accompanied by weakness or atrophy,...
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    Hi Timm, Please see the below response from...

    Hi Timm,

    Please see the below response from our Research team:

    Glutamate is the major excitatory neurotransmitter in humans. There have been studies to suggest that nicotine increases...
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    I am very sorry, unfortunately we haven’t had a...

    I am very sorry, unfortunately we haven’t had a response from our Research team. I am chasing this up with them.

    The Research team is a very small team and due to the high number of enquiries they...
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    Hi Shaun The support available does tend to...

    Hi Shaun

    The support available does tend to differ depending on where someone lives. Not all areas have specialist nurses.

    We have MND Care Centres which are centres of excellence specialising...
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    Hi Nigel I am very sorry to hear that your mum...

    Hi Nigel

    I am very sorry to hear that your mum had ALS. It is very common for someone to worry that they may have symptoms of motor neurone disease (MND) when they have had a loved one with MND....
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    Dear Aimee, Thank you for the update on your...

    Dear Aimee,

    Thank you for the update on your mum.

    Her symptoms are definitely confusing, after 9 months of slurred speech if her condition was due to MND you would expect significant...
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