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  1. Thread: Brave or stupid?

    by Deb
    Replies
    6
    Views
    308

    I love your attitude Matthew but just maybe you...

    I love your attitude Matthew but just maybe you should think ahead to what will be easiest for you in the long term. I appreciate this is hard and easier said than done.

    Before I was formally...
  2. Replies
    20
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    842

    Oh no Hayls ! That's awful and so unfair, when...

    Oh no Hayls ! That's awful and so unfair, when you have brave enough to have this done .

    Hope you're more comfortable today and that they have been able to sort this out for you.

    Love and...
  3. Thread: This forum

    by Deb
    Replies
    20
    Views
    1,361

    Oh Iron will, I really hope you get sorted with...

    Oh Iron will, I really hope you get sorted with eye gaze soon ! I cant imagine how frustrating it must be !

    Love Debbie x
  4. Thread: This forum

    by Deb
    Replies
    20
    Views
    1,361

    Thank you for starting this thread Matthew. Hope...

    Thank you for starting this thread Matthew. Hope you're having a good day and are able to enjoy the sunshine.

    As Miranda pointed out there was a recent post on how quiet the forum had been...
  5. Thread: Lost

    by Deb
    Replies
    26
    Views
    1,764

    Oh Jackie... what a nightmare for you both. It...

    Oh Jackie... what a nightmare for you both. It must have been heartbreaking to have Andy's diagnosis and have it changed and then eventually confirmed. It must have had a huge impact on you...
  6. Thread: Lesson learned

    by Deb
    Replies
    3
    Views
    291

    Oh no ! That's awful! Hope your mouth is OK and...

    Oh no ! That's awful! Hope your mouth is OK and not burnt , Matthew.
  7. Replies
    4
    Views
    467

    I really hope you find new, soft foods that you...

    I really hope you find new, soft foods that you can eat , that are also tempting Matthew. It's so hard to give up your favourite food !

    I can still eat most foods albeit slowly. I have developed...
  8. Replies
    405
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    48,630

    It is surprising what we celebrate although I...

    It is surprising what we celebrate although I initially read this as mashed potato in yogurt ! Hmm!

    My good thing this week has been sitting in the sunshine. It was my husband's birthday...
  9. Thread: Motability

    by Deb
    Replies
    12
    Views
    971

    Hi Breemer , We have a Peugeot Horizon...

    Hi Breemer ,

    We have a Peugeot Horizon provided by Allied mobility, under the motability scheme. We could have two named drivers on the insurance so one is my husband and the other our eldest...
  10. Thread: Progression

    by Deb
    Replies
    5
    Views
    455

    Hi Matthew, As Lynne said, progression is...

    Hi Matthew,

    As Lynne said, progression is different for everyone and almost impossible to predict. When I first met my MND nurse she said that everyone she knew with MND was on a different...
  11. Replies
    10
    Views
    1,293

    Hi Matthew and a warm welcome to the forum from...

    Hi Matthew and a warm welcome to the forum from me !

    I am very sorry for your recent diagnosis and that you're losing your voice. It's good you've found the forum because it's a good place for...
  12. Replies
    4
    Views
    503

    I've signed it. So sorry for your problems...

    I've signed it.

    So sorry for your problems music man 's wife. It sounds very difficult.

    Love Debbie x
  13. Replies
    20
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    842

    Hi Haylis and Kate, As Ellie said theres...

    Hi Haylis and Kate,

    As Ellie said theres definitely no such thing as giving up too soon. I think us folks with MND are the opposite and tend to persevere with things until they are becoming...
  14. Thread: Feeling Brave

    by Deb
    Replies
    12
    Views
    1,318

    Welcome to the forum Tess and well done for...

    Welcome to the forum Tess and well done for taking this step and being brave.

    I am so sorry for your boyfriend's diagnosis. It's such a shock even if it is expected. I remember feeling totally...
  15. Replies
    19
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    2,078

    Hello Andrew and a warm welcome to the forum. ...

    Hello Andrew and a warm welcome to the forum.

    I am so sorry for your diagnosis this morning but well done for posting on here so soon. Even if an MND diagnosis is suspected it's still a huge...
  16. Thread: Tips for dressing

    by Deb
    Replies
    9
    Views
    1,301

    Hi Sarah and a warm welcome to the forum from me....

    Hi Sarah and a warm welcome to the forum from me.

    I am so sorry for your mums diagnosis and that she is having such problems. It must be heartbreaking for you both.

    It's good that she's...
  17. Replies
    405
    Views
    48,630

    That's great news Doug and I am glad you're...

    That's great news Doug and I am glad you're feeling better,

    I have a salsa mini chair like yours and it is comfortable enough for me to spend all day in and transfer to my riser recliner in the...
  18. Replies
    12
    Views
    1,777

    Hello David and welcome to our friendly forum. ...

    Hello David and welcome to our friendly forum.

    I am very sorry for your diagnosis.. It took me a while to come to terms with mine and it must make it especially difficult for you during this...
  19. Thread: Moving house

    by Deb
    Replies
    9
    Views
    1,237

    That's great news Andy, Good Luck .. hope...

    That's great news Andy,

    Good Luck .. hope everything goes well for you. Take Care and try not to do too much. .

    Love Debbie
  20. Thread: Als

    by Deb
    Replies
    11
    Views
    3,021

    Hi Puddy, I am so sorry that Nigel's...

    Hi Puddy,

    I am so sorry that Nigel's progression has been so swift. I am not a carer but I appreciate how utterly heartbreaking it must be to see your husband struggling. It's good you are able...
  21. Replies
    14
    Views
    1,894

    Hi Doug, So sorry you've been noticing...

    Hi Doug,

    So sorry you've been noticing changes. I agree how sneaky MND is ( that's a polite word !) .. We are looking for changes we expect and an then unexpected one crops up. I cant turn In bed...
  22. Thread: Hip pain

    by Deb
    Replies
    6
    Views
    1,279

    Hi Mowbray, I am sorry you have hip pain. Life...

    Hi Mowbray,

    I am sorry you have hip pain. Life is hard enough with MND so I do hope you get to the bottom of what's causing it.

    I dont know if this is relevant to you but I had really bad hip...
  23. Thread: Hello

    by Deb
    Replies
    8
    Views
    1,322

    Hi Elvisfan and a warm welcome to the forum from...

    Hi Elvisfan and a warm welcome to the forum from me.

    I am so sorry for your diagnosis but I'm glad you've found the forum as it's a good place for friendship and support. I was a primary school...
  24. Thread: Please help

    by Deb
    Replies
    12
    Views
    1,951

    Hello Sarah, I am sorry you feel so scared and...

    Hello Sarah,

    I am sorry you feel so scared and anxious. I am no expert on bulbar onset as my mnd is limb onset but nothing I have seen or read sounds like what you're describing. As Ellie has...
  25. Replies
    30
    Views
    4,536

    Hi Lesley, So sorry to hear your mum's...

    Hi Lesley,

    So sorry to hear your mum's operation has been postponed. This must be so scary and upsetting for the both of you and I really hope she gets it done soon.

    In the meantime, I hope...
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