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  1. Thread: 10k

    by Deb
    Replies
    18
    Views
    700

    Well done and thank you to everyone involved for...

    Well done and thank you to everyone involved for their support. It looks like a great turnout Lynne.

    You must feel proud of your family,

    Love Debbie x
  2. Thread: Ventilation

    by Deb
    Replies
    137
    Views
    11,480

    Hi Dina, Been thinking about you and hope...

    Hi Dina,

    Been thinking about you and hope you're feeling more comfortable soon. I also hope you're being well looked after in hospital.

    Love Debbie x
  3. Thread: Quick hi & intro!

    by Deb
    Replies
    12
    Views
    977

    Hi Sarah and welcome to the forum, I am so...

    Hi Sarah and welcome to the forum,

    I am so sorry for your diagnosis and I imagine, after just a month you are still reeling from the shock. It's good you've posted because this is a great place...
  4. Thread: Hello

    by Deb
    Replies
    7
    Views
    484

    Hi Chris and a warm welcome to the forum. I am...

    Hi Chris and a warm welcome to the forum.

    I am so sorry for your diagnosis but it's good that you've posted as there is always practical and emotional support on here from people who understand....
  5. Replies
    39
    Views
    2,857

    Oh no Sheila, Hope you feel tons better soon...

    Oh no Sheila,

    Hope you feel tons better soon and that you are getting pampered and looked after.

    Take Care,
    Love Debbie x
  6. Replies
    6
    Views
    766

    I am just really sad that Ellie, who uses this...

    I am just really sad that Ellie, who uses this forum, to help people with MND feels this way.

    Despite having lived with the huge life changing difficulties of MND for many years she is always...
  7. Thread: Ventilation

    by Deb
    Replies
    137
    Views
    11,480

    Well done Dina and thank you for letting us know,...

    Well done Dina and thank you for letting us know,

    I am so glad all went well.. I've been thinking about you too. Hope you manage a good sleep tonight.

    Love Debbie x
  8. Replies
    39
    Views
    2,857

    Hi Lisa, Hope you're on the mend soon. It's...

    Hi Lisa,

    Hope you're on the mend soon. It's always best to get things checked out and I think GPs prescribe antibiotics to us folks with MND easier than they would to other people, as a...
  9. Replies
    6
    Views
    849

    Hi Ann, So sorry you have had such a bad...

    Hi Ann,

    So sorry you have had such a bad reaction to antibiotics, it must have been really scary.

    I have never heard that MND and antibiotics conflict which would be really worrying. I have...
  10. Thread: Commode transfer

    by Deb
    Replies
    8
    Views
    704

    Hi Jude, So sorry you are in hospital after...

    Hi Jude,

    So sorry you are in hospital after your fall. I recently got together with my OT and physio and together we decided I had had one fall too many using my rollator and it was not safe. In...
  11. Thread: The daily dribble

    by Deb
    Replies
    338
    Views
    89,326

    Ha.. it would definitely be murder on the dance...

    Ha.. it would definitely be murder on the dance floor if I was in my powerchair but it could be fun!

    We need a playlist for our night out clubbing! How about.. wheels on fire or spinning around....
  12. Thread: The daily dribble

    by Deb
    Replies
    338
    Views
    89,326

    Literally laughing out loud, Dina... so funny ! ...

    Literally laughing out loud, Dina... so funny !

    Sounds like my idea of a night out !

    Love Debbie x
  13. Replies
    52
    Views
    7,646

    Oh Daisymeg, I am so very for the loss of your...

    Oh Daisymeg, I am so very for the loss of your lovely, brave husband. It must be such a shock !

    I hope you have love, support and friends around you and in time, your happier memories will bring...
  14. Replies
    89
    Views
    12,962

    Hello Panniertank, I am so sorry you are...

    Hello Panniertank,

    I am so sorry you are feeling low but it's not surprising as it seems like you have been left to cope alone. There is no reason why basic mobility aids like a Walker take time...
  15. Replies
    39
    Views
    3,194

    Hi Dina, So sorry you're understandably bored...

    Hi Dina,

    So sorry you're understandably bored and fed up. Although the sunny weather is beautiful it makes it hard if you cant go out. You must be stir crazy.

    I have been confined to barracks...
  16. Thread: Steve in hospital

    by Deb
    Replies
    10
    Views
    1,318

    Hi Sue, Sorry Steve is in hospital but...

    Hi Sue,

    Sorry Steve is in hospital but hopefully now you know why it will be sorted soon.
    Hope hes home soon and feeling better.

    Love Debbie x
  17. Thread: Flu vaccination

    by Deb
    Replies
    2
    Views
    409

    Thanks for the reminder Barry and the advice...

    Thanks for the reminder Barry and the advice Ellie,

    I had the flu vaccination last year but the pneumonia vaccination was not mentioned so I will make sure I get it this autumn.

    Love Debbie x
  18. Thread: Duty of care?

    by Deb
    Replies
    30
    Views
    3,050

    Hi Dina, Like others, I am shocked at the lack...

    Hi Dina,

    Like others, I am shocked at the lack of carers for you. It is totally unacceptable and extremely worrying, to say the least. You must feel so distressed, vulnerable and anxious. I am...
  19. Thread: Pain/Agony

    by Deb
    Replies
    48
    Views
    3,598

    Oh Chrissie, what a heartbreaking situation, I...

    Oh Chrissie, what a heartbreaking situation,

    I am sure that your Gran knows how much you love her and inside, she appreciates all you do. I can only echo what others have said about having a...
  20. Thread: The daily dribble

    by Deb
    Replies
    338
    Views
    89,326

    Hi Ellie, I couldn't get into Peaky Blinders...

    Hi Ellie,

    I couldn't get into Peaky Blinders either and also this series of Poldark. We've just watched all the episodes of Luther.. very gruesome so possibly not for your daughter but gripping (...
  21. Replies
    13
    Views
    1,568

    Hi Haylis, Please try not to worry and enjoy...

    Hi Haylis,

    Please try not to worry and enjoy every second of your wedding. It sounds like it is going to be absolutely fantastic and everyone is allowed to cry at a wedding, anyway ! I love the...
  22. Replies
    6
    Views
    719

    HI Polly, You dont sound ungrateful at all,...

    HI Polly,

    You dont sound ungrateful at all, just very caring. I think the wheelchair services have rules about what they can provide, which is why we initially bought a lightweight one. You need...
  23. Replies
    6
    Views
    719

    Hi Polly, Sorry your physio has not been more...

    Hi Polly,

    Sorry your physio has not been more helpful. I have a lightweight folding wheelchair which you are very welcome to. I was going to give it to the red cross but haven't got round to it. ...
  24. Thread: after the fall

    by Deb
    Replies
    7
    Views
    878

    Hi Kate, I am sorry for your fall and all the...

    Hi Kate,

    I am sorry for your fall and all the repercussions, it's so scary mentally and physically and it really knocks us back.

    I had a bad fall a few weeks ago and fractured my leg, whist...
  25. Thread: tandem jump

    by Deb
    Replies
    26
    Views
    3,308

    Hi Maz, Huge congratulations to you, both for...

    Hi Maz,

    Huge congratulations to you, both for your jump and for raising money and awareness. I have seen your photo and hope you had a fantastic day. You deserve to feel very proud of yourself and...
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