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  1. Thread: New Arrival

    by Andrew
    Replies
    21
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    6,082

    Huge congratulations Steve - wishing you and your...

    Huge congratulations Steve - wishing you and your family well.

    Andrew
  2. Thread: Trevor

    by Andrew
    Replies
    56
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    20,475

    I'm so sorry to read this Nettie. Trevor made...

    I'm so sorry to read this Nettie.

    Trevor made a huge contribution to the forum. He helped so many others with advice and information every single day.

    My condolences to you and your family.
    ...
  3. Replies
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    Brilliant article Mik.

    Brilliant article Mik.
  4. Replies
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    11,945

    Thanks everyone.

    Thanks everyone.
  5. Researchers identify the TBK1 gene as a risk factor in MND

    Hi all,

    An international team of scientists have found mutations in the gene TBK1 as a contributory risk factor in motor neurone disease.

    New research blog here:
    ...
  6. Replies
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    11,945

    Thank you Caroline. I may be the only person...

    Thank you Caroline.

    I may be the only person left to do it. I was busy manning our Facebook and Twitter pages that week but I'm not sure that excuse is going to curry favour here ;)

    Best...
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    11,945

    Thank you for your very kind words and support...

    Thank you for your very kind words and support over the last two years - I really do appreciate it.

    Best wishes,

    Andrew
  8. Replies
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    11,945

    Thanks a lot Springtime :)

    Thanks a lot Springtime :)
  9. Replies
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    11,945

    I'll miss it Terry! Thanks a lot.

    I'll miss it Terry!

    Thanks a lot.
  10. Replies
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    11,945

    Leaving the Association

    Hi all,

    I'm very sad to say that tomorrow is my final day at the MND Association and I will be moving on to pastures new.

    I just want to say thank you for all your support over the past two...
  11. Replies
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    2,266

    Hi Worldor, If you have a question about the...

    Hi Worldor,

    If you have a question about the blog posted above, please contact our research team on 01604 611880 or research@mndassociatio.org who will be able to help you out.

    Best wishes,
    ...
  12. Replies
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    5,080

    Hi all, Thank you for your contributions. ...

    Hi all,

    Thank you for your contributions.

    Please remember to contact your GP or neurologist before taking supplements or medication of any kind.

    Our MND Connect Helpline or Research Team...
  13. Hi CC, I'm not best placed to talk about this,...

    Hi CC,

    I'm not best placed to talk about this, however I would be happy to speak to our research team and get a fuller response.

    I'm aware that several forum members have contacted the team...
  14. Hi all, Awareness is second only to research...

    Hi all,

    Awareness is second only to research on our members' list of priorities. As Steve says, it is expensive business and although TV advertising is the most visible way to get the message out...
  15. Replies
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    2,693

    Hi Joycie, Yes - we're trying to get the...

    Hi Joycie,

    Yes - we're trying to get the message out there as widely as possible. It should pick up some good media coverage (look out for the Association on your local ITV news this evening).
    ...
  16. Replies
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    2,693

    Hi all, Info here:...

    Hi all,

    Info here: www.mndassociation.org/IBCmoney

    Best wishes,

    Andrew
  17. Hi all, You can find out more here: ...

    Hi all,

    You can find out more here:

    www.mndassociation.org/IBCmoney

    Best wishes,

    Andrew
  18. Hi all, Apologies - did not see this thread...

    Hi all,

    Apologies - did not see this thread before posting on the forum.

    Mik and Pete, understand your frustrations and concerns at the delay in communicating how the money is being spent.
    ...
  19. Replies
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    2,693

    Ice Bucket Challenge

    Hi all,

    Just a quick note to say that the Association will announce how it is spending the 7 million windfall from the Ice Bucket Challenge at an event later today.

    I will post the relevant...
  20. Replies
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    Making sense of RNA editing

    Hi all,

    This update was posted on our MND Research Blog on Friday:

    https://mndresearch.wordpress.com/2015/02/06/making-antisense-of-rna-editing/

    Association-funded PhD student, Helena...
  21. Thread: Gordon Aikman

    by Andrew
    Replies
    11
    Views
    4,608

    Hi all, Gordon provides a weekly audio diary...

    Hi all,

    Gordon provides a weekly audio diary for LBC. He's three weeks in and you can listen again:

    Week one

    Week two

    Week three
  22. Replies
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    3,101

    Hi Trevor, Thanks for your continued support...

    Hi Trevor,

    Thanks for your continued support on Facebook.

    Paula McGrath edits the magazine. I have passed on your comments to her this morning. She does a great job with each new edition.
    ...
  23. Replies
    3
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    3,101

    Thumb Print Magazine

    Hi all,

    The Winter edition of Thumb Print magazine is now available to view online:

    www.mndassociation.org/thumbprint

    To receive a paper copy of the magazine, simply become a member of the...
  24. Replies
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    2,340

    Hi all, Quick reminder of the above info. ...

    Hi all,

    Quick reminder of the above info.

    Stream goes live from 10 am: http://new.livestream.com/eventstreamingcompany/mnda

    Best wishes,

    Andrew
  25. Replies
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    2,340

    Hi all, Just a reminder that Sunday's Regional...

    Hi all,

    Just a reminder that Sunday's Regional Conference in Reading is being live streamed from 10am here:

    http://new.livestream.com/eventstreamingcompany/mnda

    Plus drop-in information...
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