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  1. Thread: Pinkelle 💕

    by Barry52
    Replies
    12
    Views
    416

    I am so saddened to hear that we have lost our...

    I am so saddened to hear that we have lost our wonderful Pink. May she rest in peace now.

    Eleanor brought so much to this forum family and she will be sorely missed. My condolences go out to her...
  2. Thread: tandem jump

    by Barry52
    Replies
    23
    Views
    1,077

    Thanks for posting the link Ellie. I have just...

    Thanks for posting the link Ellie. I have just listened to the interview and Maz does a good job of promoting MNDA. Good luck with the weather and the jump Maz.

    Barry
  3. Thread: Eye control

    by Barry52
    Replies
    5
    Views
    458

    Hello Andy, I read you have been busy recently...

    Hello Andy,

    I read you have been busy recently and I guess it’s all about campaigning for your election to the board of trustees for MNDA. I have cast my votes but like Our PM I’m not giving any...
  4. Replies
    11
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    663

    Hello Vix123 and welcome to you and your husband....

    Hello Vix123 and welcome to you and your husband.

    You have had great medical advice from our forum family so far and when you have the meeting with the medical team you might want to ask about...
  5. Thread: Eye control

    by Barry52
    Replies
    5
    Views
    458

    Eye control

    We had a presentation of this device yesterday at our Nottingham branch meeting. The demonstration was well received by our members and for anyone who has lost the use of their arms it will be...
  6. Replies
    10
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    973

    Hi Vicky, It is difficult to explain but there...

    Hi Vicky,

    It is difficult to explain but there are many videos on YouTube. If your dad is finding the switch difficult then maybe he can use the head control which uses the camera to access the...
  7. Thread: tandem jump

    by Barry52
    Replies
    23
    Views
    1,077

    Well done for raising awareness Maz as the...

    Well done for raising awareness Maz as the publicity will help. I hope you raise lots of money and when you get the video you can post a link for us all to see.

    Best wishes,
    Barry
  8. Thread: Meltdown

    by Barry52
    Replies
    53
    Views
    5,586

    I’m sorry that the hospice has let you down and...

    I’m sorry that the hospice has let you down and this is not what we expect from an establishment meant to help. I hope your wife will register a complaint with the management as the care staff are...
  9. Thread: Speech apps

    by Barry52
    Replies
    2
    Views
    328

    Hi Polly, I use an iPad Air which weighs less...

    Hi Polly,

    I use an iPad Air which weighs less than 500gm. You can buy one for less than 」400 depending on the capacity of the memory or you may find your local speech therapist provides one on...
  10. Replies
    159
    Views
    11,538

    I wish that Doug gets relief soon. It is...

    I wish that Doug gets relief soon.

    It is clear from the posts that only the 22 MND hospitals are capable of managing the symptoms associated with the disease. Once again this is an example of how...
  11. Thread: Mum with MND

    by Barry52
    Replies
    12
    Views
    1,531

    Hi Roo, This is copied from the MNDA website...

    Hi Roo,

    This is copied from the MNDA website and I hope it will help explain what may be occurring with your mum. These symptoms are not present in every body with MND.

    What changes might...
  12. Replies
    12
    Views
    1,492

    Good news Debbie. You can start planning days out...

    Good news Debbie. You can start planning days out and may I recommend national trust and other gardens as they are wheelchair friendly and a good place to have lunch.

    Happy travels.

    Barry x
  13. Replies
    10
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    973

    The button is the same Ellie except mine is...

    The button is the same Ellie except mine is yellow. Yes it requires a Bluetooth connection.

    Love,
    Barry
  14. Replies
    10
    Views
    973

    Hi Ellie, I have a button switch which links...

    Hi Ellie,

    I have a button switch which links to my iPad via Bluetooth . It operates all the functions once it is paired. The button works like a mouse so it helps when your dexterity is...
  15. Replies
    10
    Views
    973

    Hello Vicky86, I read your other posts and I...

    Hello Vicky86,

    I read your other posts and I am sorry that your dad has been diagnosed with MND. I can’t offer more advice than our other members however I can help with the iPad.

    Go into...
  16. Thread: Hiya

    by Barry52
    Replies
    11
    Views
    1,129

    Hi Maz and welcome. You have already met some...

    Hi Maz and welcome.

    You have already met some of our forum family and no doubt if you have any questions or issues then someone will answer you.

    Best wishes,
    Barry
  17. Replies
    5
    Views
    782

    Hi Rosie and welcome to the forum. I’m sorry...

    Hi Rosie and welcome to the forum.

    I’m sorry to hear that your husband has been diagnosed with MND and I understand how you must both be feeling. Depending on where you live I hope you have access...
  18. Replies
    159
    Views
    11,538

    Hi Dis, That’s a significant weight loss over...

    Hi Dis,

    That’s a significant weight loss over 6 months. Did the doctor recommend diet supplements?

    Best wishes,
    Barry
  19. Thread: Mum with MND

    by Barry52
    Replies
    12
    Views
    1,531

    Hi Roo, I’m sorry to hear about your mum. From...

    Hi Roo,

    I’m sorry to hear about your mum. From what you say your mother may qualify for nhs continuing health care (CHC). I would request an assessment.

    Regards,
    Barry
  20. Replies
    12
    Views
    1,502

    Hi Polly, Make sure you describe the worst...

    Hi Polly,

    Make sure you describe the worst days for your husband as it is our inclination to play down how this disease affects us. You get no points on the assessment scoring for saying we are...
  21. Thread: bereavment

    by Barry52
    Replies
    30
    Views
    6,385

    Hello Caljake, Please accept my condolences...

    Hello Caljake,

    Please accept my condolences for the loss of your beloved husband. We all hope that when the time comes it will be peaceful and don’t reproach yourself for not being awake at the...
  22. Hi Katski and welcome. Sorry to hear about...

    Hi Katski and welcome.

    Sorry to hear about your dad and it must have been dreadful for him prior to diagnosis. Not that the going will be easier henceforth but maybe when you see him next you can...
  23. Hi Katherine and welcome to the forum. I’m...

    Hi Katherine and welcome to the forum.

    I’m sorry to hear about your mother and you might suggest she looks into our very friendly group. We can’t offer advice about what may develop as everyone...
  24. Thread: On the border

    by Barry52
    Replies
    8
    Views
    1,090

    Different garden today as I took advantage of the...

    Different garden today as I took advantage of the fine weather. The highlight of the Royal Botanical Garden in Edinburgh was again the azaleas and the blue poppies. This time I managed to buy some...
  25. Thread: On the border

    by Barry52
    Replies
    8
    Views
    1,090

    I was going to reply to our cheeky cat but I...

    I was going to reply to our cheeky cat but I couldn’t have bettered your post Dina.

    CC,

    The shrub is an azalea and there were many different colours or in your case colors xx
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