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  1. Replies
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    Good morning It looks like I'm coming to the...

    Good morning

    It looks like I'm coming to the end of my six months of theracumin and of course being as I am in sample of one I have no idea if it is doing me any good at all but my thought is I'll...
  2. Thread: New Guy :)

    by nunhead_man
    Replies
    9
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    1,524

    Hi Beemer Welcome! In respect of the...

    Hi Beemer

    Welcome!

    In respect of the difficulties I have with clothes, given I'm arm onset, I go for belt and braces.

    Luckily I've lost a bit of weight since I was diagnosed and so I can do...
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    Hi Jerry My search engine gives me ...

    Hi Jerry



    My search engine gives me

    https://www.checkatrade.com/Search/Wet-Rooms/in/Kent

    http://www.flintandson.co.uk/complete-service/wetroom
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    Good morning Benaldo Welcome to the forum from...

    Good morning Benaldo

    Welcome to the forum from me this and it looks likes you're managing well

    One comment on the driving stuff is that you need to tell the DVLA about your disease and they...
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    1,534

    Good morning Thank you all And feeling...

    Good morning

    Thank you all

    And feeling better this morning after the bruises from an incident at the weekend are fading - just untangling my neck and shoulders which I was holding in a strange...
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    Good afternoon Please keep fingers toes arms...

    Good afternoon

    Please keep fingers toes arms and legs crossed for us if indeed you can.

    We are moving towards exchange of contract in terms of selling our house with a very short chain I'm glad...
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    Good afternoon Musa and thank you I have...

    Good afternoon Musa and thank you

    I have indeed heard about the stem cell research and am afraid some people seem to spend money on something that doesn't really have a chance of working very...
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    Hi Jerry Are you East Kent or West Kent? ...

    Hi Jerry

    Are you East Kent or West Kent?

    https://www.mndassociation.org/support-and-information/local-support/branches/east-kent-group/

    It may well be some of the local group know a good...
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    697

    Good afternoon Musa I'm sure somebody will be...

    Good afternoon Musa

    I'm sure somebody will be along in a moment with more knowledge than I have but I believe that edaravone has only a limited impact on the progression of motor neurone disease....
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    Hi Lindy, Interesting update – thank you ...

    Hi Lindy,

    Interesting update – thank you

    I'm in fact in the opposite position because my critical illness cover lapsed a while ago but I still have a life insurance.

    My neurologist said he...
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    Hi MumaRics, My condolences for your loss and...

    Hi MumaRics,

    My condolences for your loss and I'm sorry to hear didn't happen where you would have preferred it - I hope the latter did not add to your pain too much.

    Thank you for your thanks...
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    Good morning Andy Welcome from me too although...

    Good morning Andy

    Welcome from me too although of course you are in a place that you would rather not be.

    My approach is to use of much as much as me as much as I can for as long as I can and...
  13. Thread: She's Gone

    by nunhead_man
    Replies
    14
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    1,664

    Good morning Chrissie Thank you for letting us...

    Good morning Chrissie

    Thank you for letting us know and thank you for your appreciation of us.

    May we appreciate you for your strength and fortitude?

    Please accept my heartfelt condolences...
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    Good afternoon Doug Thank you As I was...

    Good afternoon Doug

    Thank you

    As I was passing I had a look.

    You need to be careful with them as to the power they draw - the ones I saw would not for example be safe with an electric fan...
  15. Thread: RaphaLX

    by nunhead_man
    Replies
    2
    Views
    672

    Good morning Timm I looked in because Rapha is...

    Good morning Timm

    I looked in because Rapha is a cycling brand in the UK!

    This looks like another route to reduce glutamate and I guess this is to be welcomed but I can't see any clinical trial...
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    Good afternoon Chrissie As with everybody else...

    Good afternoon Chrissie

    As with everybody else thank you for keeping us updated and hope the nursing home is working out well.

    Hope your uncle despite being not much use to you is not been too...
  17. Replies
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    Fight for MND

    This....

    Fight For Hope | Eric Stevens & Amanda Stevens | TEDxBigSky

    https://www.youtube.com/watch?v=0KYK6A0j49s
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    Good morning Thank you all I'm cheered up...

    Good morning

    Thank you all

    I'm cheered up because the "Dutch auction" that our agent ran has resulted in rather more money for the place we live in at the moment that I was expecting.

    I've...
  19. Thread: So tired

    by nunhead_man
    Replies
    45
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    5,364

    Good morning Terry I'm sorry to hear you...

    Good morning Terry

    I'm sorry to hear you sounding so dispirited.

    My two pennies worth is that modern floorstanding hoists are quite easy to work if you have the space and somebody is trained to...
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    Good afternoon, Will be raising a glass this...

    Good afternoon,

    Will be raising a glass this evening to this house which is now under offer for sale and hoping to be sober enough to go down to Southampton on Friday to look at the place we think...
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    Good morning Nav Welcome to the forum and...

    Good morning Nav

    Welcome to the forum and thank you for such a detailed history.

    It seems you have had quite a lot of support from a base of substantial understanding of MND but if we can help...
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    Good morning Tangly, That communication from...

    Good morning Tangly,

    That communication from your Mum must have helped you quite a lot I guess?

    And I understand what you're saying about people saying what they think is kind but in fact...
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    Good morning Chrissie Thank you for updating...

    Good morning Chrissie

    Thank you for updating us and I'm sorry to hear that your grandmother is approaching the end.

    I can only salute your fortitude and the depth of your love and care and hope...
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    Good morning Hettie I hear what you say...

    Good morning Hettie



    I hear what you say but I'm interested in the side effects you attribute to riluzole - partly because I get no such side effects which makes me wonder if something else is...
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    Good morning Juliette Thank you for the...

    Good morning Juliette

    Thank you for the compliment and the update.

    I hope you have some success in getting your mother home.

    From my own information I wonder if you've had any contact with...
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