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Type: Posts; User: Doug Carpenter

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    Well done Sar. A truly ripping yarn! Doug

    Well done Sar.

    A truly ripping yarn!

    Doug
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    No. But I have sent her a very concerned PM...

    No.

    But I have sent her a very concerned PM and will let you know the instant I hear anything, if I do. I am very, very worried!

    It is just conceivable she's taking a fortnight's holiday with...
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    Hi Barry No. It looks like her last post...

    Hi Barry

    No.

    It looks like her last post was on February 10th, which is a worryingly long time ago that I hadn't noticed.

    Thank you for alerting us. I hope she's ok.

    I'm worried now!
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    TV programme

    Last night's BBC2 programme Hospital featured an MND patient.

    Doug
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    I seem to have successfully brought a new desktop...

    I seem to have successfully brought a new desktop computer (Windows 10) into use in place of my old Windows 7 machine, which is about as slow as I am. This involved transferring over 100Gb of data.
    ...
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    ALS for Dummies

    As a result of an article in todayís Guardian about its author

    https://www.theguardian.com/music/2020/feb/14/pone-paralysed-producer-making-music-with-his-eyes

    -I found this:
    ...
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    MNDA Connect will be very helpful. They have a...

    MNDA Connect will be very helpful. They have a couple of experts in voice banking and may even assist with funding – using a system called Acapela. A person has to read aloud 350 short sentences...
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    Trials criteria

    Then please post the correct list

    Doug
  9. What a fabulously positive and inspiring...

    What a fabulously positive and inspiring attitude!

    Doug
  10. Mindfulness

    Hi Sarah

    Mindfulness can definitely be helpful in coping with MND. For one thing, itís a DIY therapy you can use anytime. Start by concentrating on your breathing.

    But its great merit is that,...
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    Remote control wall sockets

    A friend drew these to my attention. They should be a great help to those of us who can't bend down to reach existing sockets. Costco about £14.

    As I understand it, they plug in to existing...
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    MNDA supporters

    Iíve been feeling a bit low recently Ė a combination of Dinaís death, shoulder pain, weight loss and the insidious assault of MND on my mobility. But this morning I opened my winter edition of Thumb...
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    Hi Jaqui The oft repeated claim about only 3-4...

    Hi Jaqui

    The oft repeated claim about only 3-4 months benefit from Riluzole arises from the relatively short duration of the trial, not necessarily any limited effectiveness of the drug.

    I have...
  14. Hi Vicky In view of Nettie's interest and her...

    Hi Vicky

    In view of Nettie's interest and her proximity to you, please ignore my earlier PM and give her priority if the chair is still available.

    Doug
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    Don't worry Wallywoo. It's easy not to notice...

    Don't worry Wallywoo.

    It's easy not to notice how quickly we can build up to the limit of 50 messages in our boxes.

    Don't forget, you can export them and save them if you want to before your...
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    Many, many thanks Kathryn – and Lynne and Steve –...

    Many, many thanks Kathryn – and Lynne and Steve – for attending. And for letting us know about what was clearly a marvellous celebration of the life of a very special, complex lady who is much...
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    Shoulder improving

    I hope Iím not tempting fate by speaking too soon but, after the third Steroid/painkiller injection, the pain in my left shoulder is beginning to ease. It will be such a relief to be free of it.

    I...
  18. Thanks again Lee. Great perspective as always....

    Thanks again Lee. Great perspective as always. I’ve re-read your Jan 6th post and realised I slightly disagree with you on one small point – about ignorant people slagging of MND researchers and...
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    Beautiful Sarah! Thank you. A real carers'...

    Beautiful Sarah! Thank you.

    A real carers' anthem.

    Doug
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    Scottish MND drug trial

    It was good to see this new research trial into re-purposing drugs get the headline spot in the BBC 6 o'clock news this evening.

    Doug
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    Thanks Lynne That's marvellous you're able to...

    Thanks Lynne

    That's marvellous you're able to go!

    My shoulder is pretty painful in certain positions but bearable in others if I keep fairly still.

    Doug
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    Dina's funeral

    Dina's son has asked me to post this information about her funeral.

    It will be at 13:40 on Monday 20th January, at Agecroft Crematorium, Salford, M27 8SS. A celebration of her life will be held...
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    Hi Lynne How dare Model Talker object to a...

    Hi Lynne

    How dare Model Talker object to a Scouse accent - one of the finest in the world!

    I think you'd find Acapela quite straightforward and you may be able to get it funded through your SLT...
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    Hi Lynne The recording process was relatively...

    Hi Lynne

    The recording process was relatively straightforward. I did it in 3-4 sessions over Christmas.

    I haven’t been able to test it properly because I don’t yet have a text to speech system....
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    Hi Ellie I've been in touch with Mathew Hollis...

    Hi Ellie

    I've been in touch with Mathew Hollis at the MNDA and Rachael, who were very helpful over the recording process. It was he who mentioned Grid3 today.

    I will talk to Richard and my SLT....
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