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  1. Thread: Clothing?

    by Explorer
    Replies
    4
    Views
    1,545

    Hi Vicky, I have oedema and I get my shoes from...

    Hi Vicky, I have oedema and I get my shoes from Cosyfeet.com and they are very good shoes. If you ask them to send you a catalogue, you
    will see all the different designs and they are vat free for...
  2. Replies
    7
    Views
    1,377

    Hi Stewie, do you live in Denbighshire or Conwy?...

    Hi Stewie, do you live in Denbighshire or Conwy? I live in Abergele and have a lovely GP at the main Abergele medical practice. Also I get a lot of help from the local team and the St Kentigern...
  3. Replies
    22
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    4,856

    Hi Kernowmum, I was diagnosed with PLS in 2014 ....

    Hi Kernowmum, I was diagnosed with PLS in 2014 . I was having problems with severe constipation and had a colostomy in July 2916
    I soon got used to it and it has made life so much better for me and...
  4. Replies
    1,552
    Views
    486,324

    Oh Dave, Surely it can only get better, Saying...

    Oh Dave,
    Surely it can only get better,
    Saying a prayer for you
    Love Gwen
  5. Replies
    17
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    5,723

    Hi Fee, I am so sorry to hear about your very...

    Hi Fee, I am so sorry to hear about your very difficult situation and it must be very hard for you to know how best to help. I think Terry was right in saying to try to be as supportive as you can...
  6. Replies
    1,552
    Views
    486,324

    Thanks Dave, I'll look it up and see what it says...

    Thanks Dave, I'll look it up and see what it says about that hoist ,but I would like to think there might be a simpler one I could use when the time comes that I need one, Maybe I am getting too far...
  7. Replies
    1,552
    Views
    486,324

    Hi Dave, I don't know much about hoists so I...

    Hi Dave, I don't know much about hoists so I would be most interested to hear about Sharyn's hoist and how it works.
    I have a feeling I might need one in the not too distant future,
    Thank you so...
  8. Thread: Pls

    by Explorer
    Replies
    9
    Views
    4,443

    Charles, thanks for your pm to me. I tried to...

    Charles, thanks for your pm to me. I tried to answer you by pm but it said 'error ', so decided to answer on the forum. I would say that my pls started very slowly but after about 4yrs I was at the...
  9. Thread: Pls

    by Explorer
    Replies
    9
    Views
    4,443

    Hi Charles, I was diagnosed with PLS in May...

    Hi Charles, I was diagnosed with PLS in May 2014 but I started having problems with walking and falls about 6yrs ago! Now I can't walk and am in a power chair all day. My legs have started...
  10. Replies
    15
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    6,105

    Hi Whisper, I really feel so much for you both...

    Hi Whisper, I really feel so much for you both and I pray that you will completely ignore that advice.The very fact that he is feeling good at this time is what counts. Don't give up .
    I do not know...
  11. Thread: Powerchairs

    by Explorer
    Replies
    8
    Views
    3,756

    Hi Treelover, my wheelchair sounds very similar...

    Hi Treelover, my wheelchair sounds very similar to yours but it does not have the riser function, and also I am keeping it for outdoor use. It sounds as if we have similar problems as my legs also...
  12. Replies
    15
    Views
    6,105

    Hi Lynne, I have had a Bipap for about a month...

    Hi Lynne,
    I have had a Bipap for about a month now for sleep apnoea and weak chest muscles, and I was advised to use it nocturnaly and to eventually aim to keep it on for up to eight hours.
    At...
  13. Thread: Powerchairs

    by Explorer
    Replies
    8
    Views
    3,756

    I already have a wheelchair from the NHS which is...

    I already have a wheelchair from the NHS which is mainly for outdoor use so can't really go to them again. Also that one took a long time and several visits to get it right so I feel I would be...
  14. Thread: Powerchairs

    by Explorer
    Replies
    8
    Views
    3,756

    Thanks a lot Terry, I will certainly take a look...

    Thanks a lot Terry, I will certainly take a look at that website. It sounds like a really good power chair!
    All the best, Gwen
  15. Thread: Powerchairs

    by Explorer
    Replies
    8
    Views
    3,756

    Powerchairs

    Hi all,
    Does anyone have any experience of a good powerchair that can rise up to help you access areas that are too high to reach?
    I have problems doing chores at the sink and also particularly...
  16. Thread: Closomat

    by Explorer
    Replies
    7
    Views
    3,968

    Hi Terry and John, Thank you both for your...

    Hi Terry and John, Thank you both for your helpful answers. At least I now understand a little more about what is involved in having either of them installed.
    Hope you both have a good day. Best...
  17. Thread: Closomat

    by Explorer
    Replies
    7
    Views
    3,968

    Thanks for your answer Pete. My OT was saying...

    Thanks for your answer Pete. My OT was saying that if you tend to 'drop' onto the seat as I do.. the bio bidet can get damaged. I don't have the strength in my lower back to sit down gently, so...
  18. Thread: Closomat

    by Explorer
    Replies
    7
    Views
    3,968

    Closomat

    Can anybody tell me their experience of having a Closomat installed? Is it a big job?

    I live in a 2nd floor apartment and am somewhat anxious about the possibility of anything going wrong.
    ...
  19. Replies
    3
    Views
    2,385

    Hi Derek, I was interested in what you were...

    Hi Derek,
    I was interested in what you were saying and I also find it very difficult to cope when out. Even our local hospital doesn't have enough well positioned grab rails and easy access into...
  20. Thread: Two questions

    by Explorer
    Replies
    8
    Views
    3,791

    Hi John Many thanks for telling me about...

    Hi John
    Many thanks for telling me about continuing health care. I had never heard of it before! I shall certainly look into it. I am not sure if it is available in Wales as we are run differently...
  21. Thread: Two questions

    by Explorer
    Replies
    8
    Views
    3,791

    Good to hear from you Gerald. I am certainly...

    Good to hear from you Gerald. I am certainly doing my best to find out all I can about what is on offer in my area of N.Wales as you so wisely suggested. I still have a lot to find out but will...
  22. Thread: Two questions

    by Explorer
    Replies
    8
    Views
    3,791

    Hi Terry Thanks for info re the numbers of...

    Hi Terry

    Thanks for info re the numbers of males versus females affected. Very strange!

    At the moment I own a lovely apartment in an "Extra Assisted Living" Complex where help is available w...
  23. Thread: Two questions

    by Explorer
    Replies
    8
    Views
    3,791

    Thanks Peter I guess all of us must wonder...

    Thanks Peter

    I guess all of us must wonder how things will be for us in the future! I had my first visit to our local Hospice yesterday and the OT there was very helpful and reassuring about...
  24. Thread: Two questions

    by Explorer
    Replies
    8
    Views
    3,791

    Two questions

    Hi all, I have recently been diagnosed with PLS and find this forum very helpful!

    I am amazed by the fact that there seem to be so many more men than women with MND!

    Also as I live alone. Do...
  25. Thread: Pls

    by Explorer
    Replies
    12
    Views
    6,406

    Hi Trevor and many thanks for your welcome! It is...

    Hi Trevor and many thanks for your welcome! It is such a help to know that we are able to get encouragement from others whO really understand.
    All the best. Gwen
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