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Type: Posts; User: Rainbow12

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  1. Thread: Isolation

    by Rainbow12
    Replies
    12
    Views
    5,573

    Hi CC I know with my mum she used to find it...

    Hi CC

    I know with my mum she used to find it difficult and tiring to talk and pushed some of her friends away because of this. I would often sit with her and watch tv or read the paper or anything...
  2. Replies
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    4,630

    My mum had a Fieldmaster that was excellent for...

    My mum had a Fieldmaster that was excellent for the type of terrain you are talking about. Only downside is that it was too wide to be used around the house - although it was ok in shopping centres....
  3. Replies
    3
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    2,760

    Hi CC Thank you so much for your reply. I am...

    Hi CC

    Thank you so much for your reply. I am so sorry you lost your mum at an early age. It really is an awful thing to have to deal with. I feel like a kid throwing my toys out of the pram when...
  4. Replies
    3
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    2,760

    some days are really hard

    I lost my mum 6 months ago from ALS. Some days are just so much harder than others.I try to stop myself from looking at this site as in some ways I want to stop thinking about my mum having had this...
  5. Hi Sophie My mum had a similar issue where...

    Hi Sophie

    My mum had a similar issue where because she wore glasses the eye gaze technology did niot really work for her. Instead she used something that involed sticking these sticker like dots...
  6. Thread: mum

    by Rainbow12
    Replies
    7
    Views
    3,381

    mum

    Mum passed away a couple of weeks ago. I can hardly believe she is gone. It is unbelievable that 18 months ago she was going on walking holdays and now she is gone.

    Her whole illness felt like a...
  7. Replies
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    28,275

    My understanding is that the option to take the...

    My understanding is that the option to take the lump sum but then continue paying into your pension will depend on both the rules of the pension scheme you are in and the policy operated by your...
  8. Thread: Hoists

    by Rainbow12
    Replies
    7
    Views
    5,826

    Hoists

    Hi

    My mum is now in a position where she is unable to move her arms, hands or legs. Up until now my dad has lifted her in and out of her chair into the bed etc etc. The time has come where we...
  9. Replies
    23
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    11,560

    Hi SJ13 I know it may sound impossible but try...

    Hi SJ13

    I know it may sound impossible but try not to be so hard on yourself. Dealing with finding out your dad has MND is incredibly tough. My mum was diagnosed in March last year and i still...
  10. Replies
    3
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    3,780

    Cough Assist machine

    Hi

    I was wondering if anyone uses a cough assist machine? If so, was it difficult to get hold of one and has it been useful? I saw that Sheffield University have recently completed a study about...
  11. Thread: Thank you

    by Rainbow12
    Replies
    1
    Views
    2,241

    Thank you

    I just wanted to post a quick thank you. My mum has als and it is incredibly hard watching what she is going through with no way of helping apart from being there as much as possible. Since she was...
  12. Thread: Wheelchais

    by Rainbow12
    Replies
    3
    Views
    5,241

    Wheelchais

    Hi

    I was hoping you might be able to help me. I am looking to buy two power wheelchairs. One is purely for use around the house and the other needs to be transportable in a normal car and is for...
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