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  1. Replies
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    hi to you Mick welcome to the forum and. I...

    hi to you
    Mick
    welcome to the forum and. I hope progression is slow for you. Wendy x
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    I was 48 Wendy

    I was 48
    Wendy
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    Hi Celyn and a warm welcome to the forum. Wendy...

    Hi Celyn and a warm welcome to the forum.
    Wendy xx
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    So very sad to hear this, my love and prayers to...

    So very sad to hear this, my love and prayers to her family at this sad time. Wendy xx
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    a medication review and physio or massage to...

    a medication review and physio or massage to help pain on Movement's
    As for the rest it depends on how well she does with the peg nutrition and how long her breathing holds out.

    my breathing is...
  6. Thread: RIP Dude

    by WendyWooG
    Replies
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    6,299

    Dudes son, I am so sorry for your loss. I...

    Dudes son,

    I am so sorry for your loss. I enjoyed Dudes contributions to the forum and will sincerely miss him.
    Wendy
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    find a quiet time of the day when it's just you...

    find a quiet time of the day when it's just you and your mum. Ask her if she would be willing to practise with you. Its likely that she will want to be more upright if swallow is a problem. Have...
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    hi Coco it's a very hard thing to judge, as to...

    hi Coco
    it's a very hard thing to judge, as to whether he is in final stages or just very poorly through dehydration malnutrition and not using his mask.

    last week my mum was struggling with a...
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    Hi and welcome Wendy x

    Hi and welcome Wendy x
  10. Thread: Tracheostomy

    by WendyWooG
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    aww thanks Ellie, mum is doing well today. Chris...

    aww thanks Ellie, mum is doing well today. Chris took his ipad into hospital for her and she is starting to learn text to speech. He has preloaded some phrases for her, and I just hope that he...
  11. Thread: Tracheostomy

    by WendyWooG
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    1,364

    Thanks Ellie, Thankfully her lung function...

    Thanks Ellie,

    Thankfully her lung function is good, so she doesn't want need a vent at present. I understand that it's likely to be permanent but will be crossing fingers and really hoping not. ...
  12. Thread: Tracheostomy

    by WendyWooG
    Replies
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    1,364

    Tracheostomy

    Hi
    Does anybody have any experience with tracheostomy and bulbar mnd ?
    My mum was diagnosed in December she has had a rough time as it was found to be impossible to fit a peg, she has therefore...
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    its so worth asking your environmental support...

    its so worth asking your environmental support team. My physiotherapist referred me. They have provided a number of different things for me, updating each time I lost functionality.

    at the...
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    hi Terry they are boot shaped and they zip oN. ...

    hi Terry
    they are boot shaped and they zip oN. They go right up to my knees, they are start to fill up from the bottom and running work up the leg. It inflates and deflates as it goes. The full...
  15. Thread: Pain in bed

    by WendyWooG
    Replies
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    7,621

    I have a variety of different sized and shapes of...

    I have a variety of different sized and shapes of cushion all feather and as I find the hollow fibre ones created pressure points. I also have a medical grade sheepskin that alleviates and any...
  16. Hi Roy this may be too much information but at...

    Hi Roy
    this may be too much information but at that stage I stopped bothering with underwear. I changed to wearing wide leg soft jersey trousers. I get them one size larger than I need. They are...
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    hi all I use the Cleo active leg massager...

    hi all
    I use the Cleo active leg massager booties. I have found them good for reducing swelling of my feet, ankles and legs. They come in two different sizes and have variable pressure levels....
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    There are alternative masks available it may be...

    There are alternative masks available it may be worth experimenting a bit . I use the nasal pillows and find them good with the eyegaze.
    Wendy x
  19. Hi I am sorry that your mum has not found the...

    Hi
    I am sorry that your mum has not found the carers helpful. Fifteen minutes is just not enough time I am so dependent on my carers. It sounds like you need a thorough review with your social...
  20. Hi Welcome to the forum. This is the perfect...

    Hi Welcome to the forum. This is the perfect place to vent, as we all understand. Care! Varies drastically between local authorities, I am lucky here in Hertfordshire, however my mum also has mnd...
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    Hi Gretch Welcome, as you can see there are...

    Hi Gretch
    Welcome, as you can see there are friendly helpful people here to support you. I hope your husbands problems ease up soon.
    Wendy x
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    this has been a problem for me from early on. I...

    this has been a problem for me from early on. I have a fan near my bed that has remote control. Getting too hot or cold is a constant problem, I use lots of thin layers.

    Wendy
  23. Thread: Happy News

    by WendyWooG
    Replies
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    4,823

    congratulations Bern, lovely news :-) Wendy xx

    congratulations Bern, lovely news
    :-)
    Wendy xx
  24. Thread: Dave K

    by WendyWooG
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    Welcome back Dave :-) wendy

    Welcome back Dave :-)

    wendy
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    hi pink i have a second hand geberit very...

    hi pink
    i have a second hand geberit very pleased with it
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