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  1. Replies
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    Hi All OK - thanks Kayleigh Next...

    Hi All

    OK - thanks Kayleigh



    Next question do we have any ideas what these things do?
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    Good afternoon I said partly in jest elsewhere...

    Good afternoon

    I said partly in jest elsewhere that I wonder if this is a feature of the wish for Scottish independence!

    Gemma are you sure Sheffield is not involved?

    The MDN coordinator at...
  3. Thread: Terry

    by nunhead_man
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    Good afternoon Terry That is very good news -...

    Good afternoon Terry

    That is very good news - and I'm sure there will be lots you can do!
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    Good afternoon Juliet Is the person concerned...

    Good afternoon Juliet

    Is the person concerned able to communicate in anyway? I realise if they are deep into MND they may have lost their voice but must have been able to do so in some way to...
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    Hi Lynne Let's hope they can repeat the...

    Hi Lynne



    Let's hope they can repeat the success achieved by Viagra!

    In case you don't know this was a drug that was repurposed from proposed heart condition use to create heart stopping...
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    Good evening Doug Yes indeed ...

    Good evening Doug

    Yes indeed

    https://www.mndscotland.org.uk/latest/news/ground-breaking-mnd-drug-trial-launched/

    Assume some of Dodi's money is going to this?
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    Hi Ellie Okay so under the tongue rather than...

    Hi Ellie

    Okay so under the tongue rather than not down the stomach tube.

    Noted about the taste but I have slept quite well the last few nights so will just note where this information is in...
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    Thank you for this information Doug I'm afraid...

    Thank you for this information Doug

    I'm afraid I will not be attending but wish to give you my best wishes for getting your left shoulder better - I hope you have not broken bones et cetera
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    Good morning Ellie Regarding CBT oil has this...

    Good morning Ellie

    Regarding CBT oil has this to be taken by mouth or rubbed on?

    Noted as we say elsewhere YMMV - your mileage may vary

    And thank you regarding accommodation - focusing at...
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    Good morning Ellie, Thank you for this - I do...

    Good morning Ellie,

    Thank you for this - I do forget to look at our own resources



    One thing is a little worrying though;

    "Created: 09/19
    Next review: 09/22
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    Hi Misty You need to be aware that as you...

    Hi Misty



    You need to be aware that as you move away from a particular individual turning a key you can end up compromising security?

    There's a whole technology around keys being left in...
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    Technical fixes!

    As some of you know, we are having to move house to accommodate my eventual destination in a wheelchair so I've been looking around a bit and chatting on another forum I'm part of and I thought...
  13. Thread: Bob Adams

    by nunhead_man
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    Welcome Bob As said above sorry to see you in...

    Welcome Bob

    As said above sorry to see you in a place where I'm sure you would rather not be.

    Could you say what a Bowen therapist does?
  14. Thread: Terry

    by nunhead_man
    Replies
    68
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    7,340

    Good afternoon Terry Sounds like you might be...

    Good afternoon Terry

    Sounds like you might be proof of the saying that you going to hospital with one thing and come out with three more.

    Sorry to hear about your virus and hope you get better...
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    Hi Ellie Thank you - in the short term...

    Hi Ellie



    Thank you - in the short term wish us luck in selling this house and finding us a new good one in Southampton.

    Noted "they tend to be rather a sledge hammer to crack a walnut...
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    Suppression of fasiculation

    I'm at my desk at the moment with the muscle in my left hip twitching away and it is really quite distracting - and my calf twitching kept me awake a couple of nights ago

    Can somebody remind me of...
  17. Thread: Dina RIP

    by nunhead_man
    Replies
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    Thank you Doug for the information and I'm sorry...

    Thank you Doug for the information and I'm sorry for your loss.

    Please pass on our condolences to Peter and her family and friends if that is appropriate?

    It seems to me a light has gone out on...
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    Indeed Graham thank you for letting us know. ...

    Indeed Graham thank you for letting us know.

    Aside from Doug's question are you getting any support of the genetic counselling variety?

    I'm wondering if your family are beginning to wonder, as...
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    Good evening Hettie I have nothing practical...

    Good evening Hettie

    I have nothing practical to add to what is being suggested above just wanted to offer my welcome to the forum - which has may already been said is not a place anybody really...
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    Good evening Vicky, Please accept my...

    Good evening Vicky,

    Please accept my condolences for your loss - it must be devastating given the way in which you describe it.

    I'm afraid your story has pushed my buttons as I lost my father...
  21. Thread: Terry

    by nunhead_man
    Replies
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    Hi Terry I'm also sorry to hear in hospital...

    Hi Terry

    I'm also sorry to hear in hospital and by the sound of it not doing tremendously well - I hope things will get better for you soon?

    And if I may Barry I'll join you in drinking a toast...
  22. Thread: New

    by nunhead_man
    Replies
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    9,041

    Hi Jo jo This is quite a good read I think...

    Hi Jo jo



    This is quite a good read I think

    https://www.mndassociation.org/professionals/management-of-mnd/aac-for-mnd/voice-banking/
  23. Thread: Terry

    by nunhead_man
    Replies
    68
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    7,340

    Good afternoon I am sorry to hear this Terry...

    Good afternoon

    I am sorry to hear this Terry and I hope you will get home in time for Christmas. If indeed you want to be there at that time?
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    Welcome, Dave and Lynn Always glad to offer...

    Welcome, Dave and Lynn

    Always glad to offer help if I can, although given my state of development. I am kind of following along here.

    Do say more if there is anything else you think we can...
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    Hello Graham, Thank you for these posts - as...

    Hello Graham,

    Thank you for these posts - as Doug says "mis-folded proteins and the cell's inability to remove them seem to be pretty universal in neurodegenerative diseases.

    I just wish we...
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