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  1. Hello all, Has anyone heard from Graham? I am...

    Hello all,
    Has anyone heard from Graham? I am hoping he knows he is not banned from here and I'd hate to think he was feeling he has been left out on his own. He's got so many friends on here all...
  2. Hello MND I too am supportive of Graham in his...

    Hello MND
    I too am supportive of Graham in his request to address the steps taken by the MND charity for his particular case involving the Salford hospital which I believe to be the main topic of...
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    28,476

    Happy birthday CC and blue eyes. Hope you had a...

    Happy birthday CC and blue eyes.
    Hope you had a fab day.
    Xx
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    4,341

    Hello MND connect, I wish you would publish...

    Hello MND connect,

    I wish you would publish the steps we can take to lobby the early release of trial drugs. Who do we contact? How do we contact? What can we do?
    I am fed up donating money to...
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    8,824

    Hello Nettie, I've been wondering how you are...

    Hello Nettie,
    I've been wondering how you are doing. Glad to see you've settled in your new home.
    I also had us both on a low fat diet for at least 2 years before Kevin was diagnosed and I asked...
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    5,574

    Hi I used to take my hubby to the pictures a...

    Hi

    I used to take my hubby to the pictures a lot. Really easy to book a disabled seat which is not really a seat its a space for the scooter or wheelchair. It's the one place we both forgot the...
  7. Hello mutleylarf Glad all your tests have come...

    Hello mutleylarf
    Glad all your tests have come back clean, that is wonderful news. Hope all your symptoms have subsided now for you too.
    Best wishes
  8. Replies
    78
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    34,769

    Hello all, I'd like to say how much I will miss...

    Hello all,
    I'd like to say how much I will miss her cheery self on Facebook and here. She always had time to help, she loved her birds, her garden and adored her Pippa and I know she will be...
  9. Replies
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    34,769

    Hello, I think Joycie might have a chest...

    Hello,
    I think Joycie might have a chest infection and probably finds it all a bit wearing.
    Glad to say hello to you all on here.
    Sylvia X
  10. Replies
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    6,570

    Sorry mine is a little late. I've been lucky to...

    Sorry mine is a little late.
    I've been lucky to receive many invitations and have been to family and friends so far and not been on my own much since Kevin's funeral so not had many moments to look...
  11. Replies
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    6,822

    Hello Mizzki, This is such a hard awful time for...

    Hello Mizzki,
    This is such a hard awful time for you and all your family. Your grandmother is very special to you I can tell. It's only natural you feel scared and bewildered at what your...
  12. Thread: Thank you

    by Night walker
    Replies
    16
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    6,063

    Hi Bonnylass So very sorry to hear this. My...

    Hi Bonnylass
    So very sorry to hear this. My heartfelt condolences and I so hope you have support and help from your friends and family to get you through the days ahead.
    Take care and one step at...
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    2,944

    Ibudilast Nasdaq.com

    A new trial of a "ALS" treatment being used in MS trials has been fast tracked by the FDA

    About MN-166 (ibudilast)

    MN-166 (ibudilast) has been marketed in Japan and Korea since 1989 to treat...
  14. Replies
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    8,186

    I am so sorry Joycie you have been mucked about...

    I am so sorry Joycie you have been mucked about so much. I do feel for your Peter too. I hope your niece and daughter can help,push for the things you must have. I am glad you don't have any...
  15. Replies
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    16,777

    Hello all, You are all so kind. So many...

    Hello all,

    You are all so kind. So many people have offered help and it's wonderful.
    Kevin will be cremated on 22nd. All the crematoriums are busy and 1 is being refurbed. Wasn't expecting...
  16. Replies
    27
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    16,777

    Thank you all for your kind words of comfort. I...

    Thank you all for your kind words of comfort. I sent you a PM Joycie.
    I am lucky to have a brilliant family and lovely friends. I feel like I am in a plastic bag at the moment waiting for the...
  17. Replies
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    16,777

    My darling hubby Kevin has passed away

    Hi
    I am very sad and devastated to tell you my darling hubby Kevin has passed away during the morning of 3rd December.
    He was 60 years old and was my bear of a man.
    We are waiting for the coroners...
  18. Replies
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    6,830

    Joycie I am really sad you are having to wait 6...

    Joycie
    I am really sad you are having to wait 6 days for the suction machine!
    I know the medical teams view these machines as a nice to have and are not as critical as the Nippy's but they give...
  19. Thread: Genervon

    by Night walker
    Replies
    264
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    120,222

    X Hi Barry, It hurts to think some relief...

    X

    Hi Barry,
    It hurts to think some relief could be out there but we're not important or significant in the scheme of things to get it. How incredibly sad.
    He has lost his speech and can no...
  20. Thread: Genervon

    by Night walker
    Replies
    264
    Views
    120,222

    Hi I was also contacted by Genervon in the...

    Hi
    I was also contacted by Genervon in the summer when I was in contact with them and they asked if our neurologist would prescribe it. I wrote to our neurologist at Addenbrookes, forwarded...
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    7,435

    Hi I've just installed a shower pod type cubicle...

    Hi
    I've just installed a shower pod type cubicle into my dining/lounge room. We could not afford an extension and did not have a room we could transform into a wet room. The shower pod cubicle Is...
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    10
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    4,082

    Hi So sorry to hear about your dad passing. ...

    Hi
    So sorry to hear about your dad passing. Take care of you now.
    Best regards
    Sylvia
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    Hello Get your GP to complete the DS1500 form...

    Hello

    Get your GP to complete the DS1500 form as this will fast track benefits such as the PIP and anything else Mum is entitled to. Its really important to get this type of stuff rolling ASAP as...
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    12
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    8,182

    Hi We have a thin air mattress as an addition to...

    Hi
    We have a thin air mattress as an addition to hubby's hospital bed, it's like a thin lilo and this helps him turn and also has reduced pain in his hips.
    His hospital bed has side rails that he...
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    So sorry Jan. May your dad RIP he is disease...

    So sorry Jan. May your dad RIP he is disease free now. All my thoughts and condolences to you and your family.
    Sylvia x
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