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  1. Thread: This forum

    by Iron Will
    Replies
    20
    Views
    1,156

    waiting foe eye gaze. arms gone.

    waiting foe eye gaze. arms gone.
  2. Thread: Terry

    by Iron Will
    Replies
    114
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    18,850

    our thoughts are with him and his wife.

    our thoughts are with him and his wife.
  3. Replies
    7
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    1,647

    i hear your pain. july 18 for me.

    i hear your pain. july 18 for me.
  4. Replies
    99
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    17,874

    we too are struggling with delivery or indeed...

    we too are struggling with delivery or indeed collection slot. got a tesco collection for this week but thats it. we ordered a box of basics from "Farm to Fork", its great and was delivered in 2 days.
  5. Replies
    6
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    1,783

    i use a on screen keyboard.

    i use a on screen keyboard.
  6. Replies
    43
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    6,421

    whilst a fantastic gesture £1 .5 million needs...

    whilst a fantastic gesture £1 .5 million needs topping up, our government should be all over this. MND is shamefully ignored.
  7. Replies
    3
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    1,529

    hi Ellie,i have asked about AT. thanks

    hi Ellie,i have asked about AT.

    thanks
  8. Replies
    3
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    1,529

    Portable hoist

    Any good ?

    edit.

    my arms are poor now and so struggle to type .however i just found the on screen keyboard :)

    do these hoists work ?

    thinking of getting one for holiday .
  9. Replies
    21
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    13,713

    my insurance company is trying not to pay my...

    my insurance company is trying not to pay my terminal cover out. worse than VAR
  10. Replies
    35
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    6,034

    hi Dina, i was there yesterday as a day patient....

    hi Dina, i was there yesterday as a day patient.

    we are taking over the world :)
  11. Replies
    11
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    2,361

    thanks again Terry.

    thanks again Terry.
  12. Replies
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    2,361

    not been able to walk for 2 years so I'm used to...

    not been able to walk for 2 years so I'm used to that. however my arms are now very weak too. I will soon be applying for the trough idea where my arms can be placed whilst I drive my power chair. I...
  13. Replies
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    32,634

    hi, Douglas. I'm the same, I'm scared for my wife...

    hi, Douglas. I'm the same, I'm scared for my wife when this is over. I am totally reliant on her for my every need, its not fair that her reward for all her hard work will be to be a widow. all we...
  14. Thread: Heartbroken

    by Iron Will
    Replies
    27
    Views
    5,327

    awful news. you sound like my wife, a legend....

    awful news. you sound like my wife, a legend. he'll have known that.
  15. Thread: Stair lifts

    by Iron Will
    Replies
    9
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    2,329

    i bought one from a firm called "stairlift...

    i bought one from a firm called "stairlift express". it was reconditioned cost £ 1400. I only used it for a year but it was worth its weight in gold. I sold it back to them for £300. so £1100 for 12...
  16. Thread: Meltdown

    by Iron Will
    Replies
    53
    Views
    10,619

    I'm in Manchester. I was talking to someone about...

    I'm in Manchester. I was talking to someone about beds, hoists and carers when they just said there were carers and carers. the feeling was go private . not ready yet but I thought it was worth...
  17. Thread: Meltdown

    by Iron Will
    Replies
    53
    Views
    10,619

    I feel for you. it's a topical topic for me this...

    I feel for you.
    it's a topical topic for me this as carers are now being discussed for myself. I was told yesterday that there are two grades of carer, standard NHS and a "premium" team that you pay...
  18. Replies
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    2,754

    hi, all I can say is you are not alone, not often...

    hi, all I can say is you are not alone, not often but I too "bark" at my wonderful wife, it's simply not something I would ever do prior to my illness. they always say you hurt the one you love, well...
  19. Replies
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    12,986

    thanks people. I just can't shift any weight....

    thanks people. I just can't shift any weight. which brings me to another question if you don't mind. I thought I saw on here that I could trousers with a Velcro flap at the front for using a bottle...
  20. Replies
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    12,986

    just reading this thread makes me wonder how I...

    just reading this thread makes me wonder how I will go on when I need a PEG. I weigh 115kgs, I reckon i'll have to get Dyno rod to fit my PEG :)
  21. Thread: Riluzole

    by Iron Will
    Replies
    25
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    6,938

    that's great Ellie thank you. Boots came up...

    that's great Ellie thank you. Boots came up trumps last night, I got a months supply. will bookmark your post as to avoid any further worries. I am not usually one to panic but was rattled there for...
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    3,545

    hi, your story could mirror my own, cramps,...

    hi, your story could mirror my own, cramps, falling and so on. if I had my time again I would get things in place to help in the practical things sooner. stair lift, scooter and so on. my legs went...
  23. Thread: Riluzole

    by Iron Will
    Replies
    25
    Views
    6,938

    having nightmares with this. can't find a...

    having nightmares with this. can't find a stockist for any brand. Boots have promised me some tomorrow, lets see. all about money this.

    I have rang Salford Royal to see if they can help. awaiting...
  24. he's right, we will beat it. will it be in time...

    he's right, we will beat it. will it be in time for me, you or anyone else on this forum right now? we have no idea but who cares as long as it is beaten and beaten quickly enough to stop more...
  25. so sorry for your loss. you are incredibly brave...

    so sorry for your loss. you are incredibly brave coming on here and telling us your story. to me that is a giant step in your recovery. well done xx
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