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Good morning Lynn

I am sorry you are having to be press-ganged into more wheelchair use, but on the other hand, I am sure it is safer for you, given what you are describing.

Also, you describe...

Hi



Thank you for that and for introducing me to the term "collateral sprouting"!

Do you have any references to the exercise trials that reduce the rate of progression?

Good morning

In my case, I have had weakening before atrophy - for example, now the muscles in my left hand have gone to a large extent my fingers are very stiff - this is quite useful for me...

Good afternoon all

Yes he is being a great supporter for motor neurone disease research - some of his money is going through the MND Association for that purpose

There was some chat on MND...

Good morning Barry

I had a look at the programme as we bade Sally, the Chief Executive of the Motor Neurone Disease Association, farewell as she left the trustee meeting on Saturday 23rd November...

I assume all that are here know about this and are watching if they so wish?

https://symposium.mndassociation.org/symposium-live/

Hi Ellie



In fact, I was looking at my test results online rather than on a printed page and it only gave the two results I quoted in my original post.

Is the Se Thyroxine T4 test additional...

Does anybody else have thyroid issues that are linked to motor neurone disease or is it just something entirely separate?

The GP surgery ran me through the test mill earlier in the month and...

Good afternoon panniertank

I can only second what Sheila and Dina have said, and perhaps add that you could ask your GP to see if there is anybody who could talk to you about your panicking and...

Hi Andy

Thank you for your good wishes



Err - picture tells a thousand words, and all that stuff

There is a picture in this article, which may help your understanding?

Hi Annjac

You seem to have posted at the tag end of a thread about mobile phone access, which as I said above, is a bit ironic really as it says something about the usability of the forum.

Can...

Good morning Panniertank

I am pleased to see you looking more positive - I think I would be a much worse place if it were not for the fact that I presently live with my wife and daughter who are...

Hi Ellie

Thank you again – perceptive as ever



Interesting you should mention toxicity - I wearing my rose tinted spectacles assumed that keeping the stuff in my body for longer would mean...

Hi Andy

I guess you do have to believe him - I certainly have no other options than to believe what they say and comments from other people who look at my hand damage for example, and say that I...

Good morning Ellie

Thank you re theracumin - I have now heard from the supplier in the US uses exactly the same that it does not matter whether it is taken with food or without



Yes indeed I...

Good morning Andy

Thanks for coming back and letting us know, very pleased to hear, as Terry says that you will not be becoming a full member of the team.

I hope you can get your spinal issue...

Good morning

I saw this coming through on the MND research blog and so contacted my local team at Kings.

They will refer me, although unfortunately there is no very close participating centre -...

Good morning Mickey,

I am sorry you have had to join this rather sad crew - but you have come to the right place for some good advice.

I too went through the phase of being told I had some sort...

Good morning Ellie and Barry

Thank you for the information and the update.

At the moment I take it in the morning, along with my riluzole which I also take with my early morning substantial...

Good to hear Ben

No doubt we will get updated the next time we "meet"

What a lovely post - and are able to move on.

And I still have conversations with a person I knew very well who died over ten years ago and still have the occasional cry.

Interesting that you...

Hello all,

I was seeing something somewhere about having to take curcumin with some sort of fat to make it absorb properly - is that a true book?

Also having a dig around in a break from work...

Good evening

Yes, sorry Ellie I know you communicating this way - I think you are a wonder to keep going in the way that you are.

My alternative mask arrived in the post this morning so I will...

Hi Ellie

Okay - Thanks again

So we have……

Pulmonary function tests (PFTs)
Forced vital capacity, slow vital capacity, or inspiratory vital capacity (FVC/SVC)
Maximal inspiratory pressure...

Good afternoon Ellie



As I have just said to Dina I got my Nippy when having a base line test and sleep apnoea was diagnosed.

As to the other alphabet soup. I am afraid I do not recognise...