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  1. Replies
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    Hi Allan and welcome to the forum. This is a...

    Hi Allan and welcome to the forum. This is a great place to share information, ask advice and have a moan.

    It's interesting to know you have Gridpad as I'm having it installed in November. I may...
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    I'm beginning to wonder if you are indulging in...

    I'm beginning to wonder if you are indulging in illegal substances, Kayleigh, with the number and extreme corniness of your jokes. Ha ha ha.
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    Devonmaid, I am so sorry that MND stole your...

    Devonmaid, I am so sorry that MND stole your beloved husband, Tony, yesterday on what should have been such a wonderful, special day for you all with the birth of your first grandchild. I hope you...
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    Barry, the rum i Old Jamaican may have just been...

    Barry, the rum i Old Jamaican may have just been flavouring but the thought of doing something naughty, like underage drinking would have been enough to get most young girls giggling!
  5. Thread: New Member

    by Gillette
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    Hi Rick and welcome to the forum no-one wants to...

    Hi Rick and welcome to the forum no-one wants to need.

    Thank you for the work you are doing to develop apps that can be used by MND sufferers and others. As I'm sure you will have seen, this is a...
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    Hi Ash and welcome to the forum no-one wants to...

    Hi Ash and welcome to the forum no-one wants to need.

    It's understandable that you're worried. Symptoms can vary so much and I have little real medical knowledge and no medical training so I...
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    Oh yes, I remember it: it was a rare treat. And...

    Oh yes, I remember it: it was a rare treat. And it was definitely giggle inducing. :D
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    My favourite chocolate bar as a child was Caramac...

    My favourite chocolate bar as a child was Caramac but I was seldom allowed it. As I grew up Marathon usurped it. (I refuse to call it Sn*ckers - such a vulgar word, Dahlink!
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    I'm sure about being exceedingly good - that's...

    I'm sure about being exceedingly good - that's always been too boring to me! I think perhaps a Dundee cake would suit me best as I'm as nutty as a fruit cake.

    As for Doug, you could be right.
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    Not so sure about the "nice" in my case,...

    Not so sure about the "nice" in my case, Kayleigh! No room for nice as I was always too naughty .
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    Hi Doug, It's good to reminisce with friends,...

    Hi Doug,

    It's good to reminisce with friends, isn't it? Although I'm not sure I would dare let anyone mention what I got up to in the 70's! Mind you, I'm just as naughty now... in my head! Ha ha...
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    Fabulous, CC. Thank you. Sorry, Kayleigh, I...

    Fabulous, CC. Thank you.

    Sorry, Kayleigh, I couldn't manage to read about the circus, but I did enjoy Nellie the Elephant. :D
  13. Thread: Ventilation

    by Gillette
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    I certainly am, Ellie. I can't overstate how...

    I certainly am, Ellie. I can't overstate how amazing they have been - I've probably bored everyone silly, going on about it - sorry! Not only that but communication between here, MND clinic and...
  14. Good news about the 2 zimmer frames, Sarah. I'm...

    Good news about the 2 zimmer frames, Sarah. I'm really pleased for you that you have good services - it makes life so much easier and smoother.
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    Hi Eileen, Unfortunately, not all MND nurses...

    Hi Eileen,

    Unfortunately, not all MND nurses offer a visiting service - certainly not those at the Salford clinic. However, we can ring them and leave a message at any time which will return...
  16. Thread: Ventilation

    by Gillette
    Replies
    173
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    16,018

    Good(ish) news

    Sort of good news yesterday. After a sudden, marked but sustained deterioration, the doctors and palliative care nurses are putting a plan into place which, it is hoped, will alleviate symptoms. We...
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    Sue, that is fabulous news. Fingers crossed for...

    Sue, that is fabulous news. Fingers crossed for you both.
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    What an interesting idea, Kayleigh! Perhaps you...

    What an interesting idea, Kayleigh! Perhaps you could email the consultant to request it on my behalf.

    I like the song, Autumn Leaves, but I'm afraid Acker Bilk brings back unhappy memories so...
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    Definitely tiring, Ellie!

    Definitely tiring, Ellie!
  20. Thread: Hi

    by Gillette
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    Hi Moto and a warm welcome to the forum no-one...

    Hi Moto and a warm welcome to the forum no-one wants to need. I'm afraid I know nothing about stem cell therapy but others seems to have been able to give you information.

    This forum is a...
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    Lovely variety of corn there, Kayleigh. Thank you...

    Lovely variety of corn there, Kayleigh. Thank you for making me chuckle
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    Thanks, Chrissie. I can hardly believe it. ...

    Thanks, Chrissie. I can hardly believe it.

    Today's good things: meeting the carers went well yesterday, they all practised on me with the Cough Assist and all 'passed' the training. Phew! Two...
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    Kayleigh, thank you for your post using all those...

    Kayleigh, thank you for your post using all those bingo calls - very clever!
  24. Hi Sarah, apologies for not being supportive of...

    Hi Sarah, apologies for not being supportive of you but I couldn't think of anything useful to say - too selfishly distracted.

    It sounds as though you and your wife are taking sensible steps to...
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    Thanks, Kayleigh. I may have given support and...

    Thanks, Kayleigh. I may have given support and advice (I am very fond of telling people what to do! Ha ha ha.) but I really welcomed and needed the support of members. But that's what this forum is...
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