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Type: Posts; User: Lynne K

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  1. Replies
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    Hi Allan, welcome to forums. It's good to hear of...

    Hi Allan, welcome to forums. It's good to hear of your technology experiences. Good luck with your memoirs. I'm sure that everybody who reads them will be wowed by your positivity and grateful for...
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    For ideas Panniertank look at ...

    For ideas Panniertank look at

    theramppeople.co.uk/wheelchairramps

    I couldn't manage to copy a hyperlink so can you type this address into your browser.
    Good luck, Lynne
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    Hi Panniertank, sounds like you need to have your...

    Hi Panniertank, sounds like you need to have your front door frame widened and a suitable easy to open door ie automatically opening by clicking an associated key fob. Also you need that any internal...
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    Hi Panniertank, Ruths advise is great from MNDA...

    Hi Panniertank, Ruths advise is great from MNDA so good luck with those suggestions.

    I think that you need a powered wheelchair and if your arms and hands are ok then a WAV that you can drive to...
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    Good morning Devonmaid. What a challenging day...

    Good morning Devonmaid. What a challenging day for you all. I'm very sorry for Tony's passing and that he didn't get to see his new grandson, thanks, as you say to f...... MND. I hope that Leanne...
  6. Thread: Hi

    by Lynne K
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    Hi Moto, my MRI showed anterior horn effects that...

    Hi Moto, my MRI showed anterior horn effects that suggested MND. Then muscle and nerve conduction studies three times, a few months apart. The first of these confirmed MND and the three compared to...
  7. Thread: New Member

    by Lynne K
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    Hi Dr Rick. Welcome to the forums. Sounds like...

    Hi Dr Rick. Welcome to the forums. Sounds like you still work hard despite your neurological problems. I'm tired too so chat another time. Lynne
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    SueB what great news. Getting enough sleep is so...

    SueB what great news. Getting enough sleep is so important for anybody, but especially carers. Lynne
  9. Thread: Hi

    by Lynne K
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    Hi Moto, welcome to forums. I see that you've...

    Hi Moto, welcome to forums. I see that you've already had good advice about stem cell therapy and research. So I won't repeat, just let you know that I agree with all of them.

    I tell all new...
  10. Thread: Muscle spasms

    by Lynne K
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    Hi Ellie, you aren't alone about your ovarian...

    Hi Ellie, you aren't alone about your ovarian cyst. I was 5 months pregnant with my first child when they took out a huge one, 5. 5 inches by 2. 5 inches I was told. Are you going to have yours...
  11. Thread: New

    by Lynne K
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    Voicebanking is to save recordings of common...

    Voicebanking is to save recordings of common phrases that gets worked on by technicians so that it can be downloaded to a speech program on an ipad. Then when an MND sufferer loses their voice they...
  12. Hi Sarah, how's your head? I did similar a few...

    Hi Sarah, how's your head? I did similar a few weeks ago. Scary indeed. I too have a hero but I got up eventually through team work. Lynne
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    Kayleigh has given you good advice Panniertank. ....

    Kayleigh has given you good advice Panniertank. . Right click on the link and forward it to your OT. Ask him or her to order one for you asap. Love Lynne
  14. Thread: New

    by Lynne K
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    Hi Jo Jo. I'm very sorry about your partners...

    Hi Jo Jo. I'm very sorry about your partners recent diagnosis. It must be a huge shock for you both.

    You have found a great place for sharing tips, for the giving and receiving of support and a...
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    Congratulations Hayls and new hubby. I'm sorry...

    Congratulations Hayls and new hubby. I'm sorry that you haven't been well. Good luck for a quick recovery and back to Sertraline. Love from another scouser, Lynne x
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    Lucky you Miranda. What a treasure is your baking...

    Lucky you Miranda. What a treasure is your baking friend. Lynne
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    Dina, that's a very good idea if Peter can still...

    Dina, that's a very good idea if Peter can still manage to drive a manual Berlingo. Be prepared that it shakes you around more than the other WAV that your son has. So Peter will have to drive slower...
  18. Good evening Sarah. Welcome to forums. I'm sorry...

    Good evening Sarah. Welcome to forums. I'm sorry about your recent diagnosis.

    I wondered at my first few regular hospital appointment why I kept getting asked about fatigue when I didn't have any....
  19. On a recent shopping trip I noticed a sign by the...

    On a recent shopping trip I noticed a sign by the petrol pumps that said something to the effect of "if you need help in filling up ring for assistance." A contact number was given. I don't know how...
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    That's great about your Berlingo Dina. What...

    That's great about your Berlingo Dina. What happened with your other vehicle? I got an auto nearly new black Berlingo WAV on Motability a couple of months ago.

    I hope that you enjoy your new WAV. ...
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    Hi Smudge. Welcome to forums. I'm sorry about...

    Hi Smudge. Welcome to forums. I'm sorry about your husbands diagnosis and that you feel that he buries his head in the sand. You both obviously deal with stress and/or trauma in different ways, lots...
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    Oh dear, so sorry for your husbands passing...

    Oh dear, so sorry for your husbands passing Wallywoo. Sending you love and hugs, Lynne
  23. Thread: Ventilation

    by Lynne K
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    If you have an ipad Dina you can get a key to...

    If you have an ipad Dina you can get a key to attach from Amazon. I got one for my ipad air2 and the ipad clips into so looks like a mini laptop. I used it for a couple of weeks but took it out of...
  24. Thread: Hello

    by Lynne K
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    Hi Bexxy, very sorry about your husbands...

    Hi Bexxy, very sorry about your husbands diagnosis. I won't repeat what others have said but I second them.

    Where you on the Facebook MND site recently? Your story is very familiar. That site is...
  25. Thread: Lining alone#2

    by Lynne K
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