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  1. Thread: Oedema

    by Nigel
    Replies
    15
    Views
    5,582

    Terry, thank you for your amazingly good advice...

    Terry, thank you for your amazingly good advice as always. I spoke with the MND nurse who said that the ones she is aware of are Flowtron but hospital use only. They are described for use to avoid...
  2. Thread: Oedema

    by Nigel
    Replies
    15
    Views
    5,582

    Thank you so much, Ihave an appointment with the...

    Thank you so much, Ihave an appointment with the GP and taking my wife so that we can be politely strong and firm! Thanks!
  3. Thread: Oedema

    by Nigel
    Replies
    15
    Views
    5,582

    Wow thank you all, you really are brilliant with...

    Wow thank you all, you really are brilliant with your help. Lovely to her from you Ellie and Terry your help and support is really appreciated. Ages ago you advised me about the Royo cushion which...
  4. Thread: Blood pressure

    by Nigel
    Replies
    2
    Views
    1,978

    Thank you for replying. I am going to phone the...

    Thank you for replying. I am going to phone the MND nurse and ask her advice rather than trying to battle the GP.... they also lost his urine sample re checking for type 2 diabetes but didn’t tell...
  5. Thread: Blood pressure

    by Nigel
    Replies
    2
    Views
    1,978

    Blood pressure

    Me again, donít post for ages then two!
    The other question I have is regarding blood pressure. I am taking part in the gTac research on MND in Edinburgh and when the nurse took my blood pressure it...
  6. Thread: Oedema

    by Nigel
    Replies
    15
    Views
    5,582

    Oedema

    Hi, I would be grateful if anyone can advise me regarding oedema of my feet. The MND started in my legs and I now use an electric wheelchair but can mobilise on a Troja, walking aid for short...
  7. Replies
    5
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    8,110

    I'm not sure if this is relevant but my son...

    I'm not sure if this is relevant but my son bought me a camera/cam that will be fitted in the garden so I can watch the bird feeder, also a nest box with camera. I have a wall mounted TV with wifi so...
  8. Replies
    10
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    4,380

    Thinking of you mate, sorry to hear that. Here's...

    Thinking of you mate, sorry to hear that. Here's hoping it slows down again and even improve again. Routing for you!
  9. Replies
    5
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    7,305

    Amazon Echo... Alexa

    I was given Alexa for Christmas and have to say it's been very useful. My voice hasn't been affected by MND yet. I was given the small gadget which is under £50. It is so simple to set alarms to...
  10. Replies
    35
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    10,417

    Hi Cath, well done re the cycle ride, it'll be...

    Hi Cath, well done re the cycle ride, it'll be good to hear more, well done!
  11. Replies
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    10,417

    Thank you Ellie, wow, you are so knowledgable!...

    Thank you Ellie, wow, you are so knowledgable! Thanks, in the same way... yey, I think!!!
  12. Replies
    35
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    10,417

    Afraid we don't have a hospice but I have a...

    Afraid we don't have a hospice but I have a fantastic GP so will discuss the meds with her. Always good to know that there's help. Thanks for all your advice.
  13. Replies
    35
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    10,417

    Many thanks, I live in Shetland and my...

    Many thanks, I live in Shetland and my neurologist is in Aberdeen and we have a nurse who covers MND on Tuesdays. I think I will be more pro active and make contact then now I know there are more...
  14. Replies
    35
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    10,417

    Been to look on Amazon, is there a particular one...

    Been to look on Amazon, is there a particular one you'd recommend?
  15. Replies
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    10,417

    Definitely going to get some. Do you take...

    Definitely going to get some. Do you take medication too?
  16. Replies
    35
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    10,417

    Very painful spasms

    Before I was diagnosed with MND I experienced very painful spasms in my upper thighs and belly. During the investigations I was given Baclafen and it really helped. I take 8 a day but the spasms are...
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