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    It is a randomised, double blind trial, so the...

    It is a randomised, double blind trial, so the fact that some people will be or won't be or maybe will stop or start taking another glutamatergic drug (riluzole) during the memantine trial, seems odd...
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    Yes people can continue taking Riluzole if also...

    Yes people can continue taking Riluzole if also taking Memantine, but not everyone takes Riluzole.

    So, if some in the Memantine trial cohort take it, andothers don't, given its similar...
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    No Kayleigh, your post didn't confuse anything,...

    No Kayleigh, your post didn't confuse anything, don't worry - I was aware Memantine mops up glutamate.

    My 'confusion' stems from fact that, in a randomised, double blind trial, there seems to be...
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    Notwithstanding any newly found preclinical...

    Notwithstanding any newly found preclinical evidence regarding Memantine, its previous clinical trial, for which results were published, consisted of one cohort of patients taking Memantine plus...
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    Hi Barbara, I am sorry about your dad’s...

    Hi Barbara,

    I am sorry about your dad’s predicament and know it must be so hard for you being in a different country to him.

    When you say “ER”, do you mean ICU, Intensive Care Unit? And I take...
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    Oh my days Juliette, that is utterly appalling. ...

    Oh my days Juliette, that is utterly appalling. Your mum isn't a commodity but a real person with real feelings and a family with the same.

    The only thing I can say is a feeble Good Luck in...
  7. Thread: Terry

    by Ellie
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    Well you're home at least - your own bed and...

    Well you're home at least - your own bed and chairs, and a female cook to kiss.

    Sorry you're still in pain - any hope of a community physio visiting you?

    Best of luck with the carer later. ...
  8. Thread: New Guy :)

    by Ellie
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    Sorry you've had to join the Forum Beemer, but a...

    Sorry you've had to join the Forum Beemer, but a warm welcome to you.

    I presume you're attending the excellent MND Clinic in Sheffield?

    Work: Ah yes, that old chestnut! There are different...
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    I am so sorry to hear that your beloved Gran is...

    I am so sorry to hear that your beloved Gran is in her final stage, Chrissie, but I am glad she's in a hospice and being cared for appropriately.

    You've been a wonderful grandaughter and I hope...
  10. Thread: Whistle Blowing.

    by Ellie
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    No need for regrets Juliette. You need to...

    No need for regrets Juliette.

    You need to channel that energy now into getting your lovely mum home. It appalls me what some people have to do to get CHC :mad::mad:

    I posted on your other...
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    I'm so sorry your mum was brought to the brink...

    I'm so sorry your mum was brought to the brink Juliette. I cannot imagine the torment you were put through and you still have massive uncertaintity now re getting your beloved mum home.

    Is there...
  12. Thread: Pain/Agony

    by Ellie
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    That's good to hear Hayls, you must be over the...

    That's good to hear Hayls, you must be over the moon. Thanks for the update.

    Hospices or specialist palliative care units are great places to go for symptom management and I'm glad you were...
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    Great news Debbie and thanks for posting in this...

    Great news Debbie and thanks for posting in this thread.

    Hope the chair is comfortable for you finally...

    Love Ellie.
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    Hi Shaun and a warm welcome to the Forum nobody...

    Hi Shaun and a warm welcome to the Forum nobody wants to join...

    Good to hear how you're getting on with life ! It's important to do all you can and what you enjoy - it's great for the spirit,...
  15. Thread: Nervous newbie

    by Ellie
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    Hi Claire, I am sorry for your Superhero Dad's...

    Hi Claire,

    I am sorry for your Superhero Dad's diagnosis - I know I'd be devasted if my own dad got the same diagnosis (I'm a Daddy's girl :))

    Please feel free to ask questions, especially...
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    Tradazone Hydrochloride: ...

    Tradazone Hydrochloride: https://www.medicines.org.uk/emc/product/8881/smpc

    Memantine Hydrochloride: https://www.medicines.org.uk/emc/product/3312/smpc
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    Welcome to the Forum, Nicky. Love Ellie.

    Welcome to the Forum, Nicky.

    Love Ellie.
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    Apart from Edinburgh, trial centres are: ...

    Apart from Edinburgh, trial centres are:



    Aberdeen
    Birmingham
    Cambridge
    Dundee
    Glasgow
    Inverness
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    Well Sarah, I'm so glad your wife's pestering...

    Well Sarah, I'm so glad your wife's pestering worked !! Thanks for sharing it.

    It's a beautiful poem which, I don't mind admitting, brought a tear to my eye... And I think all of us can...
  20. Energy Supply: Priority Services Register For People In Need

    I know this topic won't be new to some Forum users, but I'm reposting it in case the newer members are unaware it exists and as it's storm season !!

    If you are disabled or have a chronic/long-term...
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    It was great to see MND being the headline item...

    It was great to see MND being the headline item on the BBC's 6pm News.

    I think its focus on following the trial over the next few years is particularly beneficial and will keep MND in the news.
  22. Thread: Terry

    by Ellie
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    Hi Grandad Richard - nice to meet you! By...

    Hi Grandad Richard - nice to meet you!

    By the sound of it, Terry's pain seems to be brought under control or lessened substantially at least, which is great.

    He could get a dongle for a...
  23. Thread: Pain/Agony

    by Ellie
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    Oh Lynne, please don't ever think you're butting...

    Oh Lynne, please don't ever think you're butting in :( The more opinions and discussion the better :)

    Love Ellie.
  24. Thread: Pain/Agony

    by Ellie
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    There is anecdotal evidence that prolonged stress...

    There is anecdotal evidence that prolonged stress can speed up progression of one's ALS/MND Hayls.

    If a person is stressed, they are more likely to have poor quality sleep and not eat well, both...
  25. Thread: Pain/Agony

    by Ellie
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    Dear Hayls, (I know I'm not MND Connect but...

    Dear Hayls,

    (I know I'm not MND Connect but it's Sunday so I'll reply today)

    Please remember just how much you’ve been through in the last 18 months - your beloved dad died; you were...
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