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  1. Replies
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    Hi Ellie I ordered six month supply in the...

    Hi Ellie

    I ordered six month supply in the hope it would work and so paid over that amount, and now seem to have call from the Post Office for just over 50 for customs duty or something
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    Good morning, Devonmaid I can only echo the...

    Good morning, Devonmaid

    I can only echo the thoughts of those above - a day full of tragedy and joy.

    My condolences for your loss and my congratulations on the arrival
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    Hi Catherine Welcome! Generally...

    Hi Catherine

    Welcome!



    Generally speaking, everybody's MND is their own and everyone is different, but the information I have is that once you start slow you carry on slow.

    The trouble is...
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    Good afternoon Hayls Belated congratulations...

    Good afternoon Hayls

    Belated congratulations from me too.

    I was talking to my supervisor one morning last week for our quarterly session and was trying to untangle the emotion that arises from...
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    Hi Ellie I seem to have made an order from...

    Hi Ellie

    I seem to have made an order from somebody who will ship to the UK of the type of Theracurmin by Integrative Therapeutics you mention.

    Now waiting to see how much I get charged as it...
  6. Hello panniertank Sounds like you have some...

    Hello panniertank

    Sounds like you have some good advice there!

    I am not sure whether it has been discussed with you before, but you may know that you need to tell the Driver and Vehicle...
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    Hi Ellie Okay - will have a look later when I...

    Hi Ellie

    Okay - will have a look later when I get near a safe machine
  8. Replies
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    Good afternoon Ellie Thank you for your...

    Good afternoon Ellie

    Thank you for your comments - where is the best place to get this stuff from as I will try anything once!

    I know this place in Vancouver in, BC Canada who might ship it -...
  9. Replies
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    Good afternoon all Hey Dina and Sheila - I am...

    Good afternoon all

    Hey Dina and Sheila - I am sorry to hear what you have to say as I also think I have drawn the short straw as most of my family live into their 90s and I am not 70 yet.

    As...
  10. Thread: Hello

    by nunhead_man
    Replies
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    Hi Serenity and Bexxy Welcome from me too. ...

    Hi Serenity and Bexxy

    Welcome from me too.

    Bexxy, being where you are, there is probably a local group that you could join for support - I find my South London branch colleagues really...
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    Good afternoon all Forgive me butting in but...

    Good afternoon all

    Forgive me butting in but the pictures I saw describing this all showed folk in wheelchairs.

    I assume it does not work if you are otherwise mobile, given the need for some...
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    Good afternoon Steve I am a bit of a dyed in...

    Good afternoon Steve

    I am a bit of a dyed in the wool techie, although properly more a digital tourist than a digital native!

    I have a number of apps which I look at, but I do not really want...
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    Good morning Wailywoo My immediate reaction to...

    Good morning Wailywoo

    My immediate reaction to this is that you are an excellent manager of all this work you are trying to do - I do worry about people who are not used to organising their own...
  14. Thread: Milestone!

    by nunhead_man
    Replies
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    559

    Milestone!

    I seem to have reached a milestone in that I was trying to clip some papers together this morning with a bulldog clip and could not open the bulldog clip with my right hand.

    This means my right...
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    Hi Barry Thank you - well out of date this...

    Hi Barry



    Thank you - well out of date this lot then - https://www.dlf.org.uk/content/events

    This 1 a while away - https://www.naidex.co.uk

    And this is more up-to-date -...
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    Good evening Kayleigh Thank you for the...

    Good evening Kayleigh



    Thank you for the wishes for me and my family - S O is away at the moment so my number 2 daughter is looking after me - at least she had dinner with me and then went out...
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    Artificial tail

    Good morning,

    In the hope it may prompt further posts about possible robotic uses to help MND sufferers.

    I hope some of you will find it amusing, if not possible useful....
    ...
  18. Thread: Hello

    by nunhead_man
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    Hi ChrissyG Welcome - and hope that...

    Hi ChrissyG



    Welcome - and hope that developing slowly is a comfort to you?

    With my arm onset I do still cycle at the moment using a bicycle that is amended so that I can brake with one hand...
  19. Thread: Rch4

    by nunhead_man
    Replies
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    Good afternoon Doblett I see you are now back...

    Good afternoon Doblett

    I see you are now back on the forum after being thrown off after you declared information about me that I shared here outside this forum against the rules thereof.

    If I...
  20. Exploring the electro-mechanical coupling of fasciculations in motor neurone disease

    The full title of this study, in which I participated this morning is "Exploring the electro-mechanical coupling fasciculations in motor neurone disease using surface electromyography and ultrasound;...
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    Hi Dina So sorry to hear that you are still in...

    Hi Dina

    So sorry to hear that you are still in hospital and the social services are screwed up.

    I can see you are having a dark day, or indeed dark days and I am sure I shall have some more of...
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    Good morning I thought it was against the...

    Good morning

    I thought it was against the rules to copy information about members of it outside the forum without permission?

    Because this is what happened to me when you banned Doblett the 1st...
  23. Good morning Hayls I am sorry to hear your...

    Good morning Hayls

    I am sorry to hear your news and hope that you have all the support that you need?

    We do our best here to help each other



    Do please keep us updated with how this goes...
  24. Thread: Rch4

    by nunhead_man
    Replies
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    94,267

    Hi, Speaking is a charity expert of some...

    Hi,

    Speaking is a charity expert of some long-standing the designation of "informal charitable organization" is meaningless.

    I take this from https://rch4als.com/rch4-charity

    An organisation...
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    Good afternoon Dina Just popping in to add my...

    Good afternoon Dina

    Just popping in to add my 2 pennies worth to say great and hope you are now beginning to feel stronger and better?

    Warmly
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