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  1. Replies
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    Ann: I have had three antibiotic doses...

    Ann:

    I have had three antibiotic doses recently for UTI and gall bladder infection. No adverse reaction.

    Charles
  2. Thread: Hot flushes

    by njm
    Replies
    10
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    3,420

    In Rugby Union Ireland plays as one country...

    In Rugby Union Ireland plays as one country (Republic and N Ireland).
    Might there be a lesson in this.......................?


    Charles
  3. Thread: Hot flushes

    by njm
    Replies
    10
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    3,420

    Ireland were magnificent. They destroyed NZ....

    Ireland were magnificent.

    They destroyed NZ.
    They destroyed their scrum, crossed their line 3 times, and defended the gain line like it was the Brexit border.

    Freedom of the city to every one...
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    Tinm: Who is eligible? Where do you apply. I...

    Tinm:
    Who is eligible?
    Where do you apply.
    I have PIP.
    I stopped work April 2018.

    Charles
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    Lynne: What is ESA? Charles

    Lynne:

    What is ESA?

    Charles
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    Marigold: persevere with it. I did ModelTalker...

    Marigold:
    persevere with it.
    I did ModelTalker and recently have used my recording.
    It is excellent: It is clearly me talking.
    Be meticulous and get it done.


    Charles
  7. Replies
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    Guys: My point is that I fluctuate wildly day...

    Guys:

    My point is that I fluctuate wildly day to day and within days. If I think of what I have lost spiral into despair. Other times, when I focus on the present, I am peace. I can fully...
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    I am a massive fan of Ellie. I am humbled by her...

    I am a massive fan of Ellie. I am humbled by her optimism and determination to extract happiness from a diabolical illness. I will forever be moved by her fortitude. However I too don't share her...
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    Cruisegirl: Progression differs for each person...

    Cruisegirl:
    Progression differs for each person and takes a different 'shape'. However I have repeatedly head that if slow then expect slow. Some people (admittedly rare) live 10+ years. Some 15+....
  10. Thread: Rch4

    by njm
    Replies
    400
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    122,367

    Closed: Leo: I am pleased for your mum. Long may it...

    Leo:
    I am pleased for your mum. Long may it continue.
    Please do post info here. Its helpful.
    Are you in the UK?
    Charles
  11. Thread: Rch4

    by njm
    Replies
    400
    Views
    122,367

    Closed: carol: I sent you another pm. Charles

    carol:
    I sent you another pm.

    Charles
  12. Thread: Rch4

    by njm
    Replies
    400
    Views
    122,367

    Closed: When asked "Are you a mouse or a man?" I would...

    When asked "Are you a mouse or a man?"
    I would happily answer "A mouse".

    Charles
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    Thanks Prof. I am the last of the Luddites. ...

    Thanks Prof. I am the last of the Luddites.

    Charles
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    That should read Your diagnosis................

    That should read Your diagnosis................
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    our diagnosis suggests a long slow road ahead. I...

    our diagnosis suggests a long slow road ahead. I think you need to think positive now. PLS can and normally is a very slow long journey and can allow many years of great life ahead.
    charles
  16. Thread: Pupkin55

    by njm
    Replies
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    15,415

    You should be heartily relieved. What does that...

    You should be heartily relieved.
    What does that diagnosis mean?
    A slow, non-life shortening neuropathy?
    I would take that.

    Charles
  17. Thread: The daily dribble

    by njm
    Replies
    369
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    109,946

    Barry: Trust life on the high seas is treating...

    Barry:
    Trust life on the high seas is treating you well.
    At least nobody can make you "walk the plank".

    Charles
  18. Thread: The daily dribble

    by njm
    Replies
    369
    Views
    109,946

    Lynne: I grew up in Cape Town with an Irish...

    Lynne:
    I grew up in Cape Town with an Irish mother. My brother and I had a band called Liffey Banks. We did a pilgrimage in 1981 (and watched Offaly beat Kerry at Croke Park) to the west coast of...
  19. Thread: The daily dribble

    by njm
    Replies
    369
    Views
    109,946

    Lynne: Given your extremely slow progression...

    Lynne:
    Given your extremely slow progression your hubby has many years fiddling ahead of him. From what I have read you and he can extract great quality of life for a good while.
    He probably knows...
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    I encourage you to also go the Model Talker...

    I encourage you to also go the Model Talker route.
    You bank online. It cant crash. They save your voice.
    Then when ready you download it onto your ipad via the Predictable app. Predictable is the...
  21. Thread: RIP Dude

    by njm
    Replies
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    10,532

    Mark: Cherish your fond memories. Rather he...

    Mark:

    Cherish your fond memories. Rather he was a character.
    He sounds like he did a remarkable thing: By hard work he built a successful business.
    And hopefully left a comfortable legacy for...
  22. Thread: Rch4

    by njm
    Replies
    400
    Views
    122,367

    Closed: CC: I am interested in the following from purely...

    CC:
    I am interested in the following from purely a scientific perspective:
    In your research/inquiries have you ascertained what the chemical ingredients of the muti are?
    What is it comprised...
  23. Thread: Rch4

    by njm
    Replies
    400
    Views
    122,367

    Closed: Marlon: I wish your wife the best outcome. She...

    Marlon:
    I wish your wife the best outcome. She is doing amazingly well. Keep it up.

    Charles
  24. Thread: Rch4

    by njm
    Replies
    400
    Views
    122,367

    Closed: CC: You are correct. None of the MND...

    CC:
    You are correct.
    None of the MND specialists recommend or prescribe it in the UK. They only prescribe Riluzole.
    Some have had it approved by GPs but it is not common practice.
    It is not on...
  25. Thread: Rch4

    by njm
    Replies
    400
    Views
    122,367

    Closed: AnnieLou: Its not a scam. The jury is out....

    AnnieLou:

    Its not a scam. The jury is out. However worth a try given the paucity of treatments.
    it is not available in the UK.
    I am sure if it were many on this forum would try.
    Forget the...
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