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Type: Posts; User: broken_nails

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  1. Replies
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    Thanks Deb every thing they put in place has...

    Thanks Deb every thing they put in place has memory foam stealing the little movement I have today carer revved to get me up
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    Just home been to Oxford to meet MND team now...

    Just home been to Oxford to meet MND team now shattered got my recline and. Rise chair but it's covered in memory foam.. I can't move on it
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    I fell again yesterday broke my right fibula...

    I fell again yesterday broke my right fibula stuck in hospital as unsafe transfers
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    6,372

    Nose is fine. All the time it's left alone hurts...

    Nose is fine. All the time it's left alone hurts like he'll when people helping me bump it
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    6,372

    Unfortunately where I am living is not suitable...

    Unfortunately where I am living is not suitable for electric wheelchair I am waiting to either get adapted housing from local authority or use my pension in one lump as deposit for a home with my...
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    Sorry you didn't find this helpful

    Sorry you didn't find this helpful
  7. Replies
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    6,372

    I am too weak to push with brakes on. Don't...

    I am too weak to push with brakes on. Don't really push at all just hold and walk
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    Thanks Kayleigh yes I can breathe ok the Stoke...

    Thanks Kayleigh yes I can breathe ok the Stoke was straight so no bend on the plus side two hours face down bleeding means no black eyes
  9. Thread: Housing

    by broken_nails
    Replies
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    20,749

    Congrats on your new home. Sorry your wet room...

    Congrats on your new home. Sorry your wet room is not right
  10. Thread: Pillow

    by broken_nails
    Replies
    5
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    1,807

    You might find a neck roll better try a travel...

    You might find a neck roll better try a travel pillow you know the U shape ones.
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    I am getting over the cold now thanks everyone....

    I am getting over the cold now thanks everyone. Except Fri night I got up to go to bed but someone else had put one of the brakes on on my rollator damn thing swung around on me lost my balance fell...
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    Ideas for throat clearing

    Every time I try to clear my throat my gag reflex engages leaving me unable to breathe and panicing. I have a mild cold and for some reason most of the muccus is going down my throat instead of...
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    If your blood gas was normal you are not...

    If your blood gas was normal you are not retaining CO2
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    Not sure about shoulders mine were hypermobile...

    Not sure about shoulders mine were hypermobile before now they have much reduced mobility. My hips on the other hand are too shallow and I feel my right one subluxating when I walk up ramps or turn...
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    This is so very interesting I was diagnosed with...

    This is so very interesting I was diagnosed with Small Intestinal Bacterial Overgrowth less than one year before the rapid acceleration of my symptoms they got into fast gear immediately after I went...
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    My GP is waiting on a sample from me as I am...

    My GP is waiting on a sample from me as I am peeing far too much for example my chipped tooth made it too painful to drink today and before a drop was drunk I peed 3 times this makes me dehydrated. ...
  17. Thread: Sad news

    by broken_nails
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    19
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    4,418

    So sorry for your loss

    So sorry for your loss
  18. Replies
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    I gave up driving just before diagnosis. ...

    I gave up driving just before diagnosis. Steering became difficult. A great shame as I felt almost like nothing wrong. I have been signed off work since September and have appointment for medical...
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    Oh exciting news just as a thinking point...

    Oh exciting news just as a thinking point Parkinson's and Huntingdon's can both come under MND so not a huge jump to trial on ALS
  20. Replies
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    Oh my goodness my heart goes out to how could...

    Oh my goodness my heart goes out to how could anyone be so callous ? I sincerely hope your solicitor can make things happen quickly for you.
  21. Thread: 1 in 400?

    by broken_nails
    Replies
    30
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    10,334

    Kayleigh afaik dementia care is fully funded by...

    Kayleigh afaik dementia care is fully funded by NHS. Social care needed after stroke recovery is not. All very complicated but it's to do with ongoing disease. So carers for people should be fully...
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    Thanks for all of your answers

    Thanks for all of your answers
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    Shivers down spine?

    You know those "someone walked over my grave" shivers? Well I can only feel that on one side now. Is thar a known feature of MND?
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    Are you sure it's chillblanes? My feet hurt all...

    Are you sure it's chillblanes? My feet hurt all the time and sometimes go red and blotchy but my hands also go red and blotchy but do not hurt. Weird things happen when nerves are not working as...
  25. Thread: How long

    by broken_nails
    Replies
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    7,841

    David so sorry to hear about your wife. My...

    David so sorry to hear about your wife. My struggle to get a diagnosis which I hope beyond reason will be for MS or functional disorder but which my prior knowledge says is most likely MND. Must...
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