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  1. Thread: Als forum

    by Mikael
    Replies
    5
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    1,945

    Sorry you took offense it was not meant to bother...

    Sorry you took offense it was not meant to bother anyone , that is why i posted in off topic. It basically is trivial you are right. Wont do it again. Again my apologies.
  2. Thread: Als forum

    by Mikael
    Replies
    5
    Views
    1,945

    also to add insult to injury, the guy i helped by...

    also to add insult to injury, the guy i helped by posting for him on his account proceeded to argue with these knowledgeable people and got banned. he created another acct with a different email, so...
  3. Thread: Als forum

    by Mikael
    Replies
    5
    Views
    1,945

    Thanks for replying terry, it wasnít a pal that...

    Thanks for replying terry, it wasnít a pal that was a bit sharp. An you know i realize that i may seem like a needless worrier but no one can figure out whatís going on with me. I have tried every...
  4. Thread: Als forum

    by Mikael
    Replies
    5
    Views
    1,945

    Als forum

    Hi, i have posted here once before and still have ongoing issues, with mucus and such . Every neuromuscular dr i have seen comes up with a different dx. Accept for my local neuromuscular dr who says...
  5. Thread: Hi there

    by Mikael
    Replies
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    1,332

    Hi , sorry you found yourself with this horrible...

    Hi , sorry you found yourself with this horrible disease.i have read a book by the head als specialist at Columbia presbyterian hospital in New York, that a study of long survival was found with...
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    Thank you for replying , of course i was thrilled...

    Thank you for replying , of course i was thrilled with their diagnosis but my symptoms dont match neuropathy. When I questioned this i get a shrug of shoulders and we will see you in 4 months.

    As...
  7. Replies
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    Hi Carol so glad you had a nice day at the...

    Hi Carol so glad you had a nice day at the center. I just was writing in my blog of being sick and tired of not knowing whatís wrong. I really think sometimes with all the testing that they reallly...
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    Hi, thank you for asking about me with all you...

    Hi, thank you for asking about me with all you have going on, i’m Feeling not up to par and really dont know what to do next . Hope you are feeling well this evening and have a smile on your face....
  9. Thread: Hello!

    by Mikael
    Replies
    33
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    6,699

    HI Cruisegirl, like your name, Sorry for you...

    HI Cruisegirl, like your name, Sorry for you having to join here.It sounds like you have been through a lot . Itís weird but those three little letters make such a difference in ones life, i will...
  10. Replies
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    Hi Carol, your story is inspiring to other...

    Hi Carol, your story is inspiring to other people. Anti-depressants are not addicting but if you decide to stop them you do need to. Wean off of them so you dont have unwanted side effects. You been...
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    Charles a year into this i decided to seek...

    Charles a year into this i decided to seek counseling because i started thinking it was all in my head and i was getting very anxious. The symptoms still continue and lack of energy. So i do...
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    Charles that’s what i feel like i’m Doing ,...

    Charles that’s what i feel like i’m Doing , stabbing in the dark. When the mucus problem started they did a modified swallowing test which turned up normal, have no trouble slurring words. Ive had...
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    Carol thank you for the offer as i live in the...

    Carol thank you for the offer as i live in the states it doesn’t make much sense to come to England. The three top hospitals in the United States are Columbia Presbyterian ,Johns Hopkins and first...
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    I have and appt with my local neuromuscular dr...

    I have and appt with my local neuromuscular dr and will show him the test results from mayo. I will also bring up the lumbar punch . I have tried all the remedies for mucus nac, mucinex, alka seltzer...
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    I have had blood work and mri of the brain and...

    I have had blood work and mri of the brain and cervical area, i’ve Been to several good neuromuscular dr at Johns Hopkins and mayo, they say they wouldn’t even think of als the trouble is the...
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    emg of all limbs and tongue, sweat test which...

    emg of all limbs and tongue, sweat test which showed mild small fiber neuropathy and autonomic reflex test
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    thank you terry, its very hard when you have...

    thank you terry, its very hard when you have these symptoms and some of the best neuromuscular drs are saying no mnd, i just want to scream than what the hell is it?
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    confused and scared

    Sorry for posting this but i have had numerous symptoms for year and half, had about 7 emgs last month even had one in the tongue, general twitching, now face is twitching a little, excess salvia and...
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