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  1. Thread: Sad news

    by kernowmum
    Replies
    19
    Views
    3,207

    Thank you all for your thoughts and kind words....

    Thank you all for your thoughts and kind words. This group has been supportive in so many ways, knowing there are others experiencing similar things even though journeys are different.

    Stay strong...
  2. Thread: Sad news

    by kernowmum
    Replies
    19
    Views
    3,207

    Sad news

    My darling husband lost his battle with MND yesterday. So very very brave but free of pain at last.

    Kernowmum
  3. Replies
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    1,835

    We have the same problem with my husband. I use a...

    We have the same problem with my husband. I use a dampened cotton bud gently then a dry one to wipe each nostril
  4. Replies
    8
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    1,873

    My husband had a supra pubic after discomfort and...

    My husband had a supra pubic after discomfort and infection with urethetal ones over months.
    He had problems with bowel control as he had to go as soon as he felt the need which wasn't always...
  5. Replies
    12
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    2,901

    Thank you for your thoughts. He is on a cocktail...

    Thank you for your thoughts. He is on a cocktail of medication including one for saliva Glyco....cant spell but I'm sure your aware. For a couple of months they have introduced methadone, only a low...
  6. Replies
    12
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    2,901

    Temperature control

    Hi all
    Just wondering if anyone has problems regulating their temperature.
    My husband has had chest infections for months on and off.
    After weighing up options the Dr have put him on a permanent...
  7. Replies
    7
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    1,343

    Hi Twinkle My husband had problems getting to...

    Hi Twinkle
    My husband had problems getting to the loo in time
    He tried a convene but it didn't work well. He had a urethral catheter but got infections. Unfortunately he lost all feeling when...
  8. Replies
    21
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    7,359

    Sorry Caela Can't message you it won't allow...

    Sorry Caela
    Can't message you it won't allow me!
    Admin any ideas?

    Kernowmum
  9. Replies
    21
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    7,359

    Hi Caela I can make Wednesday but not at noon....

    Hi Caela
    I can make Wednesday but not at noon. The travel lodge is fine but it would need to be a later time, would 5pm be too late?
    I'll try sending you a private message with my phone number. The...
  10. Replies
    21
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    7,359

    Thanks Terry It's his 6th admission since April...

    Thanks Terry
    It's his 6th admission since April with chest infections. He's supposed to be discharged into a local nursing home while we see what happens for a couple of weeks. He was only home 9...
  11. Replies
    21
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    7,359

    Hi Carla Sorry for late response. My husband is...

    Hi Carla
    Sorry for late response. My husband is in hospital again and I've not checked my messages
    Where do you live?
    I'm sure we can arrange something. I'll check my messages for your response ...
  12. Replies
    21
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    7,359

    Excess Fortisip

    My husband's been changed to an overnight pump for his Fortisip. This happened just after a delivery so I have 120+ bottles still in cardboard outer boxes with 2019 expiry date.
    I asked Nutricia to...
  13. Replies
    5
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    1,742

    Hi Ellie and Terry Thank you both for your...

    Hi Ellie and Terry
    Thank you both for your advice. He's out of hospital and in the local hospice (10 mins away) while we get things sorted. He's coughing again so they are tweaking the drugs to dry...
  14. Hi Jay My husband's just come out of hospital...

    Hi Jay
    My husband's just come out of hospital after nearly 3 weeks on the Respiratory High Dependence Unit.
    He now has a NIV, they stopped the patches and changed to Glyco...sorry can't remember...
  15. Replies
    5
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    1,742

    NIV Overnight

    My husband's in hospital for the third time in 8 weeks.
    He's had chest infection and problems with secretion.
    After a week in the high dependency respiratory unit its been agreed he needs a NIV...
  16. Replies
    4
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    1,872

    Hi Pen I'm experiencing the same problem with my...

    Hi Pen
    I'm experiencing the same problem with my husbands syringes. I wash them out in soapy water but when you use three times a day they just are not lasting.
    Because all the meds go through I...
  17. Replies
    1
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    3,024

    Hospitals and medication

    My husband was admitted to hospital Saturday with a chest infection. He has had intravenous antibiotics, fluids, been on a nebuliser, Bipap and had suction. He is improving slowly.
    My rant is...
  18. Thread: Hoist slings

    by kernowmum
    Replies
    1
    Views
    845

    Hi Chas My husband has two different slings a...

    Hi Chas
    My husband has two different slings a thin black one which stays in his motorised wheelchair as it is very fine. This only has to come off at night and be put on in the morning

    He also...
  19. Replies
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    1,722

    Hii Chris Tony had something called a pertch...

    Hii Chris
    Tony had something called a pertch stool, he used it to wash, it has adjustable legs and arms and was good. Supplied by OT before we moved.

    If you Google it there are examples.

    Hope...
  20. Replies
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    3,134

    medication via peg

    Following days of coughing and 2 courses of antibiotics, the SALT today has said nothing orally for the time being for my husband.
    He is devestated as he loves his food, but is coughing so much...
  21. Replies
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    2,227

    Thanks Ellie The GP gave us a letter which the...

    Thanks Ellie

    The GP gave us a letter which the care agency's happy with so once they have done the paperwork we should be all systems go!

    Kernowmum
  22. Thread: Stair Lift

    by kernowmum
    Replies
    8
    Views
    3,171

    Hi Sue My husband managed with a stairlift for...

    Hi Sue
    My husband managed with a stairlift for about 2 years. We moved counties to be nearer children and grandchildren as we were 4 hours away.
    We had a stairlift fitted in the new house,...
  23. Replies
    5
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    2,227

    Thank you Ellie I will chase up agency and if...

    Thank you Ellie
    I will chase up agency and if they continue to say they can't I'll do as you did and approach GP.
    Tony has all his meds crushed, or if capsules opened and sprinkled on cold...
  24. Replies
    5
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    2,227

    Carers and medication

    So, after 10 months and 3 days in a nursing home husband is finally home. Long story, he went in for 6 weeks while we had a through floor lift installed and wet room. It took 10 months! We waited...
  25. Replies
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    2,551

    Thank you all As you have said we live in hope...

    Thank you all
    As you have said we live in hope and we will continue to hang on to that.
    Streetwise, I know where you are coming from, Im Granny to 4 boys all on the ASD spectrum, but wouldn't...
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