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    Thanks Hayls. That has been my experience too,...

    Thanks Hayls. That has been my experience too, some very good doctors and some not so much. I have had to push the NHS for absolutely everything e.g medication, physio, referral to a...
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    Thanks Ellie. No not had a muscle biopsy (yet)...

    Thanks Ellie.

    No not had a muscle biopsy (yet) although this was mentioned by my neurologist. I had an MRI on my thigh muscles a few weeks ago, apparently this might show something. It's all a...
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    For those of you kind enough to respond to my...

    For those of you kind enough to respond to my original post a few months ago, I thought I would update you.

    I had a brain MRI in July which came back normal.

    I had another EMG in Sept and...
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    The head drop is caused by a problem with my neck...

    The head drop is caused by a problem with my neck and has always been there. The neurologist I saw in March thought my head drop was caused by dystonia. Muscles mis behaving and pulling my head...
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    That's reassuring then. Thanks. X

    That's reassuring then. Thanks. X
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    I just had the EMG not NCS. My neck muscles were...

    I just had the EMG not NCS. My neck muscles were not tested with the EMG. The closest needle was on my shoulder. I actually saw a different neurologist in March and he thought I had dystonia so I had...
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    Thankyou for your response and advice Ellie. I...

    Thankyou for your response and advice Ellie. I think it's strange the neurologist hasn't recommended an MRI. I will definitely ask him about this. I was referred to NHS neurology too but waiting time...
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    Thankyou so much for taking the time to read and...

    Thankyou so much for taking the time to read and comment.

    I think I need to keep badgering my neurologist. I have paid privately for these tests so all the more frustrating I have no definitive...
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    Some advice please

    Hi, please could I ask for some advice.

    I am a 37 year old female and have numerous symptoms which I think could indicate MND. I have seen a neurologist and have had some tests including an EMG...
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