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  1. Thanks again Lee. Great perspective as always....

    Thanks again Lee. Great perspective as always. I’ve re-read your Jan 6th post and realised I slightly disagree with you on one small point – about ignorant people slagging of MND researchers and...
  2. Beautiful Sarah! Thank you. A real carers'...

    Beautiful Sarah! Thank you.

    A real carers' anthem.

    Doug
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    Scottish MND drug trial

    It was good to see this new research trial into re-purposing drugs get the headline spot in the BBC 6 o'clock news this evening.

    Doug
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    Thanks Lynne That's marvellous you're able to...

    Thanks Lynne

    That's marvellous you're able to go!

    My shoulder is pretty painful in certain positions but bearable in others if I keep fairly still.

    Doug
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    Dina's funeral

    Dina's son has asked me to post this information about her funeral.

    It will be at 13:40 on Monday 20th January, at Agecroft Crematorium, Salford, M27 8SS. A celebration of her life will be held...
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    Hi Lynne How dare Model Talker object to a...

    Hi Lynne

    How dare Model Talker object to a Scouse accent - one of the finest in the world!

    I think you'd find Acapela quite straightforward and you may be able to get it funded through your SLT...
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    Hi Lynne The recording process was relatively...

    Hi Lynne

    The recording process was relatively straightforward. I did it in 3-4 sessions over Christmas.

    I haven’t been able to test it properly because I don’t yet have a text to speech system....
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    Hi Ellie I've been in touch with Mathew Hollis...

    Hi Ellie

    I've been in touch with Mathew Hollis at the MNDA and Rachael, who were very helpful over the recording process. It was he who mentioned Grid3 today.

    I will talk to Richard and my SLT....
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    Text to speech program advice please

    Having completed recording lots of phrases into Acapela and downloaded a big file, I thought I had everything I needed to convert text into speech via my own voice.

    I now understand I need a...
  10. Thanks for this and your posts throughout the...

    Thanks for this and your posts throughout the year, Lee, and especially your blog. It’s good to see constructive comments about the fiendishly difficult research being undertaken into MND, which I’m...
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    Dina RIP

    Friends

    I am sorry to be the bearer of terrible news.

    The world has suddenly become a poorer, darker place our brave, vibrant, mischievous Dina has left us.

    She died at 5.47 today, with...
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    Thanks for letting us know Graham. Good luck with...

    Thanks for letting us know Graham. Good luck with your research.

    May I ask - how does your MND manifest itself?

    Merry Christmas!

    Doug
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    Thanks for posting this Graham – very...

    Thanks for posting this Graham – very interesting. Mis-folded proteins and a cell’s inability to remove them seem to be pretty universal in neurodegenerative diseases.

    Please could you also post...
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    While wishing everyone the Happiest Christmas you...

    While wishing everyone the Happiest Christmas you can have, may I also thank you all for the immense amount of kindness, empathy, information and fun posted on this Forum. It’s truly inspirational!
    ...
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    Medical bulletin

    Im very aware that, compared to what many friends here bravely cope with, I have little to be concerned about yet.

    I had a routine four monthly visit to my MND clinic at the John Radcliffe...
  16. MND Publicity. Warning end of life issues

    Two brave people are raising the profile of MND in the media this weekend:
    ...
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    I'm sure you'll be pleased to get home. Have...

    I'm sure you'll be pleased to get home.

    Have you been given a diagnosis for your symptoms?

    Doug
  18. Thread: New

    by Doug Carpenter
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    Foot drop

    Hi Jo jo

    My MND started with foot drop. I was given an Orliman Boxia orthotic:

    https://www.orliman.com/en/product/calf-support-for-the-boxia-drop-foot-ankle-brace/

    Its still a very helpful...
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    Phew! Thank you ladies. I much prefer...

    Phew!

    Thank you ladies.

    I much prefer contented pussies.

    Doug xx
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    Thank you everyone for your advice and good...

    Thank you everyone for your advice and good wishes.

    Apparently, I need to do all the recording and then notify the MNDA at the end.

    Doug
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    Voice banking

    Today's good thing is learning that the MNDA will consider funding my attempt to bank my voice using Acapela.

    Thank you MNDA!

    Doug
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    I found a bottle of Grahams '77 I didn't know I...

    I found a bottle of Grahams '77 I didn't know I had!

    Doug
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    MNDA's action this morning on another thread! ...

    MNDA's action this morning on another thread!

    Doug
  24. Many thanks , as always, Lee for your thought...

    Many thanks , as always, Lee for your thought provoking blog, and especially for the link to the Bledlack paper on plateaux in MND - very interesting.

    Doug
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    Gosh, Kayleigh! You do find some amazing...

    Gosh, Kayleigh!

    You do find some amazing videos.

    Yes, that’s very like it. Mine was black. That one looks a bit posher. It seems to have a radio – unheard of in my day. The indicators in the...
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