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Type: Posts; User: HWRhoades

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  1. Replies
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    Hi Mowbray: First, let me say everything said so...

    Hi Mowbray: First, let me say everything said so far regarding your dreams makes sense. Any of the physical conditions mentioned could be responsible. Second, your MND diagnosis closely parallels...
  2. Thread: Oedema

    by HWRhoades
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    Nigel: I've worn compression socks for about...

    Nigel:
    I've worn compression socks for about four months now. They reduce the swelling but do not eliminate it. I now buy shoes that are 1/2 size larger and extra wide. The combination of the...
  3. Thread: Shoes

    by HWRhoades
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    2,477

    Totally agree Lynne - we have such beautiful...

    Totally agree Lynne - we have such beautiful mountains and national forests around Oregon it was my favorite way to renew my spirits and get exercise at the same time! Free gift to hikers. I miss...
  4. Thread: Shoes

    by HWRhoades
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    Thanks! I'll check them out!

    Thanks! I'll check them out!
  5. Thread: Shoes

    by HWRhoades
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    Great idea Doug. Thanks! I'll look into that. ...

    Great idea Doug. Thanks! I'll look into that. Have a great day. (Sounds like we both miss hiking!)
  6. Thread: Shoes

    by HWRhoades
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    Hi Ellie! Thanks for the info. I do have AFO's...

    Hi Ellie!
    Thanks for the info. I do have AFO's which I've only had for about 2 weeks. The shoes they advised me to use with them are extremely heavy. When I wear them they work great and totally...
  7. Thread: Shoes

    by HWRhoades
    Replies
    13
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    2,477

    Shoes

    Not sure where this topic belongs but let's start here. For those who still have the ability to walk, with or without assistance, what have you found to be the best footwear? Soft soles vs hard, ...
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    Thanks Barry. Will do. Appreciate your help....

    Thanks Barry. Will do. Appreciate your help.
    Regards,
    Howard
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    Barry: Is the PLS/PMA group still active? I was...

    Barry:
    Is the PLS/PMA group still active? I was away over the holidays and got behind in my email. I'm still interested in participating in that group.
    Thanks,
    Howard Rhoades
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    Thanks Barry. Good advice. Like the idea of...

    Thanks Barry. Good advice. Like the idea of starting out with only one and seeing how long I need it. Second hand, but meeting my requirements sounds like a good idea!
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    Thanks Terry. Just what I was looking for!...

    Thanks Terry. Just what I was looking for!
    Howard
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    Rollator to Wheelchair Time Frame

    I'm making the transition from cane to rollator. We all have varying progressions of leg strength loss with MND, but I have wondered what some of you have experienced as the time frame between your...
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    Sounds great Barry. Still working my way around...

    Sounds great Barry. Still working my way around this site. So far it seems I don't have the OK yet to send emails to other forum members. Once I solve that mystery, I'll take you up on your offer...
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    Thanks Ellie! That's exactly what I've been...

    Thanks Ellie! That's exactly what I've been looking for. I really appreciate your taking the time to clue me in!
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    Starting The Long Journey

    My name is Howard and I live in the US. My diagnosis with a rare form of MND called Progressive Muscular Atrophy (PMA) was finally revealed to me on October 10, 2018, after 15 months of evaluations....
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