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  1. Replies
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    Well tweaking continues pressure down to 22,...

    Well tweaking continues pressure down to 22, slightly different rise time and 6.1 ...more pertinently it was a much more pleasant night on the reduced pressure

    Oh and the PEG test went well
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    So 21st 5.1 22nd no reading 23rd no reading ...

    So 21st 5.1
    22nd no reading
    23rd no reading
    24th 6.1
    25th 6.5

    They are talking about moving me to a local authority assessment bed as there’s a waiting list for PEG
    The doctor is finding...
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    They want to use the same profile for both masks...

    They want to use the same profile for both masks

    24 into the nose mask was not bearable 22 or 23 were ok but 16 was better still
  4. Replies
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    No CO2 reading last night - the nurse said they...

    No CO2 reading last night - the nurse said they didn’t need to !
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    Well I hope it’s not a glitch but last nights CO2...

    Well I hope it’s not a glitch but last nights CO2 was 5.1

    Apparently the initial setting after the Jaffa was 26

    The nose mask for the PEG trial started at 12/5 and the last hour was spent at...
  6. Replies
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    I asked Dr Bentley about this - it was originally...

    I asked Dr Bentley about this - it was originally set lower but due to the swallowing problems ( see Jaffa Cake ) it was upped. He did say it might be reduced in time if the target range is overshot
  7. Replies
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    Co2 6.8 ipap 24 epap 5

    Co2 6.8

    ipap 24
    epap 5
  8. Replies
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    Yes just room air after it痴 passed over the...

    Yes just room air after it痴 passed over the water tank
  9. Replies
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    Well I’m sleeping much better but of course the...

    Well I’m sleeping much better but of course the CO2 is reset and last night 6.9

    PEG is back on the agenda but maybe not on this hospital stay
  10. Replies
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    Still haven’t been told the sleep study results ...

    Still haven’t been told the sleep study results

    The consultant listened to my description and had the mode changed to support

    I told him “
    ventilation is brutal

    When the mask is fitted...
  11. Replies
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    Pressure Support vs Pressure Control ?

    Pressure Support vs Pressure Control ?
  12. Replies
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    Well the last 2 CO2 readings were 6.4 then 6.6 ...

    Well the last 2 CO2 readings were 6.4 then 6.6

    They aim to combine a sleep study with the overnight ventilation as the current settings sometimes send the next boost before I breathe out

    The...
  13. Thread: tandem jump

    by Dis1960
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    Just donated and shared to Twitter and Facebook ...

    Just donated and shared to Twitter and Facebook

    Fantastic thing to do
  14. Replies
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    Sorry I wasn’t told last night’s reading as today...

    Sorry I wasn’t told last night’s reading as today was spent trying out nose masks that would be used in PEG - I really didn’t like the pressure bombarding my nostrils

    To be continued
  15. Replies
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    Nope 6.8 again The doctor is still aiming for...

    Nope 6.8 again

    The doctor is still aiming for 6 or below before PEG - I asked about RIG but that was ignored again

    Last night was notable for 4 attempts to get blood from my earlobe at 0500
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    The opposite - they were happy to come back and...

    The opposite - they were happy to come back and the partner of the guy with the chest infection fought to get him in this unit from a normal ward. People who’ve been here are happy with their...
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    yes Dina but each side ward is single sex I...

    yes Dina but each side ward is single sex

    I apologise if alumni was taken badly but 3 of the 7 so far have been in the unit previously within the last year and only1 is in because of a chest...
  18. Replies
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    Badly, unappetising, tasteless and a consistency...

    Badly, unappetising, tasteless and a consistency to simply coat the tongue

    Roast chicken, stuffing, creamed potatoes and parsnip/swede but nothing tasted

    Nutritious?
  19. Replies
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    Watching Amazon Prime ( Good Omens ) and Netflix...

    Watching Amazon Prime ( Good Omens ) and Netflix ( iZombie and Lucifer ) when I can

    Yesterday my wife was given a whistle stop tour of the Nippy screen
  20. Replies
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    Yes I知 in the North West Ventilation Unit ward ...

    Yes I知 in the North West Ventilation Unit ward

    Most of the men who have been in this side ward are fellow MND sufferers so most of the staff are great with it. What痴 a bit worrying is how many...
  21. Replies
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    They did not know about that model and spent time...

    They did not know about that model and spent time searching for leaks and trying the older masks

    The specialist nurse today said one repeated alarm was an over volume alarm I was doing 700ml and...
  22. Replies
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    That was the worst night so far - every 8 - 11...

    That was the worst night so far - every 8 - 11 breaths ALARM. The nurses gave me a break for ~15 minutes at 0200 and finally gave up about 0500
  23. Replies
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    Fortisips,yoghurts and creamed puds count...

    Fortisips,yoghurts and creamed puds count thankfully as the pur馥d menu is less tasty than the soft

    Terry A fortisip and normal drink at each meal makes 1l per day. So any extra drinks are a...
  24. Replies
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    Sadly it was the Jaffa cake that did me in..it...

    Sadly it was the Jaffa cake that did me in..it took a few swallows and a sip of barium-infused water to get it down and the playback clearly showed a bit of liquid headed the wrong way

    So I’ve...
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    Wythenshawe offers the basic 5 channels free but...

    Wythenshawe offers the basic 5 channels free but others can be paid for
    Wi-fi is free but reregister daily with name and email address just after 8am
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