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  1. Thread: Swollen Feet.

    by Bern
    Replies
    28
    Views
    8,411

    Hi Wendy/ Terry, I'm wondering the same. Not...

    Hi Wendy/ Terry,

    I'm wondering the same. Not sure what size to order.

    Thanks,

    Bern x
  2. Thread: A new challenge

    by Bern
    Replies
    34
    Views
    8,592

    Oh Barry I'm really sorry to hear this. Try and...

    Oh Barry I'm really sorry to hear this.
    Try and stay positive.
    Sorry you missed a holiday because I know you love to be out and about.
    Take care.
    Bern x
  3. Thread: Hello

    by Bern
    Replies
    34
    Views
    11,119

    Thanks too for the link. Found a loo in...

    Thanks too for the link.
    Found a loo in Newcastle via the link and contacted the shopping centre.
    Interesting that it doesn't open with a radar key. They are posting me a form for some sort of...
  4. Replies
    14
    Views
    13,148

    Very sad news but what a wonderful, talented and...

    Very sad news but what a wonderful, talented and inspirational man he was, despite living most of his life with MND.

    Bern
  5. Replies
    72
    Views
    18,073

    Hi Kushy, Welcome to the forum. It is...

    Hi Kushy,

    Welcome to the forum. It is somewhere that you can get lots of support and advice.
    As John said, spend your money on good things.
    Stem cell treatment is not proven.

    Take care,
    ...
  6. Replies
    119
    Views
    38,668

    You do indeed! I often say if we didn't laugh...

    You do indeed!
    I often say if we didn't laugh we'd cry.
    I'm just getting so exhausted going back and forth to the loo upstairs.
    Bern x
  7. Replies
    119
    Views
    38,668

    Hi Ellie, Got it on my list for the OT. Can't...

    Hi Ellie,
    Got it on my list for the OT.
    Can't believe I'm asking for one .......
    Bern x
  8. Thread: Cough Assist

    by Bern
    Replies
    9
    Views
    4,992

    Thanks Ellie. I'll go prepared! Bern x

    Thanks Ellie.
    I'll go prepared!
    Bern x
  9. Replies
    119
    Views
    38,668

    Hi Pink, What a brilliant story. As Newbie...

    Hi Pink,

    What a brilliant story. As Newbie says it's wonderful all those people working together to help you.
    It'll be great when it's finished.
    Please put some photos online when it's done.
    ...
  10. Replies
    119
    Views
    38,668

    Ah Pink, I'm not on Facebook so it won't let me...

    Ah Pink, I'm not on Facebook so it won't let me see your story!

    Bern x
  11. Thread: Cough Assist

    by Bern
    Replies
    9
    Views
    4,992

    Thanks Ellie. Spent hours yesterday trying to...

    Thanks Ellie.

    Spent hours yesterday trying to get rid of phlegm.
    I was exhausted.

    Bern x
  12. Replies
    81
    Views
    23,694

    Hi, I had my MND appointment this week....

    Hi,

    I had my MND appointment this week. Consultant took one look at my power chair and said that the arm rests were totally unsuitable!
    Wheelchair services will be replacing them, hopefully...
  13. Thread: Cough Assist

    by Bern
    Replies
    9
    Views
    4,992

    Hi, I've been referred to the RVI in Newcastle...

    Hi,
    I've been referred to the RVI in Newcastle for a cough assist machine. I'm really hoping it's helpful!
    My cough is very weak.
    Bern x
  14. Replies
    81
    Views
    23,694

    Thanks Ellie. It’s very annoying! I notice it...

    Thanks Ellie.

    It’s very annoying!
    I notice it also says comfort padded arm pad. Mine are rock hard.
    Really struggling with the chair.

    Bern x
  15. Replies
    81
    Views
    23,694

    Hi girls, Just like mine except I have a head...

    Hi girls,

    Just like mine except I have a head rest.

    Definitely no support for back or shoulders.

    Bern x
  16. Replies
    81
    Views
    23,694

    Hi Ellie, My chair back definitely isnít 8 or...

    Hi Ellie,

    My chair back definitely isnít 8 or 9 cm. Must be the 2cm one.
    Itís a Quickie Salsa Mini.
    My manual chair is more comfortable!

    Bern x
  17. Replies
    81
    Views
    23,694

    I was - no back rest cushion for me either!...

    I was - no back rest cushion for me either!
    Thanks!
    Bern x
  18. Replies
    81
    Views
    23,694

    Hi Ellie and Pink, The physio altered the...

    Hi Ellie and Pink,

    The physio altered the footplates and head rest on my wheelchair.
    She rang wheelchair services about a back cushion but they told her to get me to experiment with the tilt.
    I...
  19. Thread: Wet Room Help

    by Bern
    Replies
    37
    Views
    16,960

    Hi Ellie, Evidently it slides/glides over the...

    Hi Ellie,

    Evidently it slides/glides over the toilet.
    I'll get in it at the top of the stairs, it will be wheeled to the bathroom and over the toilet.
    I await it with interest! I'm a bit unsure...
  20. Thread: Wet Room Help

    by Bern
    Replies
    37
    Views
    16,960

    Hi Ellie, We have a stair lift. I have a walk...

    Hi Ellie,

    We have a stair lift. I have a walk to it - about 4 metres and a walk from it to the toilet - about 3 metres. By the time I get back to my rise and recline chair, my legs have had it!...
  21. Thread: Wet Room Help

    by Bern
    Replies
    37
    Views
    16,960

    Hi Newbie, We have a wetroom upstairs in the...

    Hi Newbie,

    We have a wetroom upstairs in the family bathroom. It's been great until this week when my legs have weakened more. I was very blinkered and said I had no intention of having a...
  22. Thread: Hello

    by Bern
    Replies
    34
    Views
    11,119

    Hi Streetwise, I think it's PBP - progressive...

    Hi Streetwise,

    I think it's PBP - progressive bulbar palsy which is a type of MND.
    Hope I'm right!

    Bern
  23. Replies
    81
    Views
    23,694

    Thanks Steve. Four hours sitting wouldn't get...

    Thanks Steve.

    Four hours sitting wouldn't get you far at all! Grrr!!
    Definitely foot rest alterations needed.

    Bern
  24. Replies
    81
    Views
    23,694

    Hi Pink, I've looked online and there are...

    Hi Pink,

    I've looked online and there are various ones. I'm seeing the physio tomorrow and I'm hoping she'll advise.
    I'll let you know.

    Bern x
  25. Replies
    81
    Views
    23,694

    Hi Ellie, Roy is the first to admit he's not...

    Hi Ellie,

    Roy is the first to admit he's not technically minded!
    You're right - it's never ending!!

    Bern x
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