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Type: Posts; User: Kayleigh

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  1. Replies
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    Hello Lee, The names of the drugs are listed...

    Hello Lee,

    The names of the drugs are listed on the EU clinical trials register:-

    http://https://www.clinicaltrialsregister.eu/ctr-search/trial/2019-000099-41/GB

    Best wishes,
    Kayleigh
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    A beautiful expression of your heartfelt thoughts...

    A beautiful expression of your heartfelt thoughts and feelings. Thank you for sharing your very special poem with us Sarah.
    Kayleigh x
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    Hi Jerry, I would have thought neurologists at...

    Hi Jerry,

    I would have thought neurologists at UCL would have been given advance notification about the launch of such a significant trial but perhaps your neurologist only found out about it when...
  4. Thread: Terry

    by Kayleigh
    Replies
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    6,896

    I'm always captivated by you TC - and even...

    I'm always captivated by you TC - and even behind your Santa disguise, I find your hypnotic cat's eyes, cheeky chuckles, and sunny (& sometimes saucy) sense of humour are purrrfectly irrisistable! ...
  5. Thread: Terry

    by Kayleigh
    Replies
    66
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    6,896

    Thank you for your message Grandad Richard. Terry...

    Thank you for your message Grandad Richard. Terry has mentioned you (and his wonderful days out with you) many times - and it's lovely to say hello to you.

    I havn't been annoying/entertaining...
  6. Thread: Terry

    by Kayleigh
    Replies
    66
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    6,896

    So sorry to hear you are still in hospital Terry...

    So sorry to hear you are still in hospital Terry and sorry you also have a nasty bug to deal with as well.

    I hope the doctors are able to provide some effective painkillers. Also, as you are not...
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    Hi Sarah, I don't have experience of using a...

    Hi Sarah,

    I don't have experience of using a beach wheelchair but the disability horizons website has information about where they can be hired in the UK and it also includes information about...
  8. Thread: Dina RIP

    by Kayleigh
    Replies
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    2,292

    Thank you for kindly letting us know the very sad...

    Thank you for kindly letting us know the very sad news Doug. Your tribute to Dina is beautifully written and is exactly how I will always remember her.

    Dina was genuinely concerned about people...
  9. Thread: Terry

    by Kayleigh
    Replies
    66
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    6,896

    Hi Terry, Very glad to hear from you again...

    Hi Terry,

    Very glad to hear from you again Terry. I miss your cheeky smile, if it doesn't pop up on the forum every day - but with no Internet at the hospital, I will let you off!

    Cooked...
  10. Thread: Terry

    by Kayleigh
    Replies
    66
    Views
    6,896

    Hi Terry, Sorry to hear that you are still in...

    Hi Terry,

    Sorry to hear that you are still in pain. Hopefully you will be provided with some effective pain relief and I hope you will be well enough to return home very soon.

    Thinking of you...
  11. Thread: New

    by Kayleigh
    Replies
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    8,905

    Hello Jo Jo I remember your partner was due...

    Hello Jo Jo

    I remember your partner was due to have his first appointment with an OT before Christmas. I hope all went well at the appointment.

    Hopefully he will also be seen by other...
  12. Thread: Frieda

    by Kayleigh
    Replies
    41
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    6,240

    Hello Frieda, The type of ventilation that is...

    Hello Frieda,

    The type of ventilation that is usually provided for us is non-invasive ventilation (which is designed to assist breathing without it being dangerous for MND patients to use).
    ...
  13. Hello Sarah Thank you for raising the...

    Hello Sarah

    Thank you for raising the important issue of mouth hygiene. I was wondering how I might manage now that my arms and hands are getting weaker and found a useful information sheet on...
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    Although we didn't have White Christmas, this...

    Although we didn't have White Christmas, this festive fairy didn't need The Snowman to be walking in the air ...

    http://https://m.youtube.com/watch?v=A1-41Memra0

    festive fun fact: Snowmen at...
  15. Thread: Terry

    by Kayleigh
    Replies
    66
    Views
    6,896

    It's great to hear from you Terry and I'm glad...

    It's great to hear from you Terry and I'm glad your breathing is good.

    However, it must be very frustrating not being provided with the pain relief or physio you need.

    I hope things improve...
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    Thank you Sheila. I hope you and your family have...

    Thank you Sheila. I hope you and your family have a lovely Christmas and very best wishes to you all for the New Year.

    I am looking forward to my husband having the rest of this week off work and...
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    Hi Sheila, How lovely of your friend to bring...

    Hi Sheila,

    How lovely of your friend to bring you such a special gift. I think that pearls always look very elegant and are great to wear with any outfit (just like the famous style icon Jackie...
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    28,392

    Hi Dina, You are a very caring lady with a...

    Hi Dina,

    You are a very caring lady with a heart of gold and it was good to hear about the lovely time you had with your special friend today. I expect your friend will treasure the gift,...
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    Thank you for you kind messages Dina, Debbie and...

    Thank you for you kind messages Dina, Debbie and Sheila - I hope you and your loved ones have a very enjoyable Christmas. xx

    The clip posted by Dina brought back memories of watching the Goodies...
  20. Thread: Terry

    by Kayleigh
    Replies
    66
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    6,896

    Thank you for kindly letting us know CC. ...

    Thank you for kindly letting us know CC.

    Thinking of you Terry and sending you lots of love and get well hugs.

    Kayleigh x
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    Wishing everyone a Christmas that is as peaceful...

    Wishing everyone a Christmas that is as peaceful and as happy as possible.

    http://https://m.youtube.com/watch?v=pFrlkl0y1H0

    Many thanks to everyone in this forum family who have brought rays...
  22. Replies
    410
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    77,052

    The days of my rock-n-roll lifestyle are long...

    The days of my rock-n-roll lifestyle are long gone but, at this time of year, my powerchair is fully charged-up and I'm ready to rock around the Christmas tree ...

    ... with Brenda Lee ...
    ...
  23. Thread: Panic attacks

    by Kayleigh
    Replies
    21
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    2,594

    Hello Lesley, I found those small bottled...

    Hello Lesley,

    I found those small bottled drinks tasted too unpleasant and the consistency was too thick for me to swallow comfortably and it made me cough. (However, some MND patients might find...
  24. Thread: So so tired

    by Kayleigh
    Replies
    55
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    10,273

    Hi Terry, Sorry you are feeling so poorly -...

    Hi Terry,

    Sorry you are feeling so poorly - sending you get well wishes for a speedy recovery ...

    Your heart of gold brings sunshine to the lives of many of us - on this bumpy road in life's...
  25. Replies
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    On the twelfth day of Christmas my true love sent...

    On the twelfth day of Christmas my true love sent to me 12 drummers, drumming along with half a dozen seasonal family favourites.

    Drum-roll please ...
    ...
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