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  1. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    ccinjersey, kindly stop this. You are in...

    ccinjersey, kindly stop this. You are in violation of the forum rules by calling me a liar. I do not appreciate that from anyone, much less from a time wasting troll.
    You said "another false...
  2. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Thank you terry, you said “How do you know that...

    Thank you terry, you said “How do you know that she looked in for 36 seconds one day and a few another???????????????”

    I already said so. As usual, you fail to read the available information. I...
  3. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    No Terry, I am not attacking anyone, only...

    No Terry, I am not attacking anyone, only pointing out their true facts and numbers. That is observation, not attack.
    An afterthought Terry, you said "we don't get funding from drug companies or...
  4. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    This posting only states true facts and is...

    This posting only states true facts and is intended to draw attention that most forums become dominated by a few people who invariably have some agenda, either to promote themselves, or denigrate...
  5. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Hello again _______________________________ ...

    Hello again
    _______________________________

    ccinjersey, You made the following comments:

    I’m also curious to know if millions of dollars are going into research for a cure for this illness...
  6. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    My life is being extended by RCH4 and you must...

    My life is being extended by RCH4 and you must forgive me for saying that I view your incessantly negative comments as endangering my life expectancy and that of others, who naturally feel the same....
  7. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Lynne, you are correct! Truly an eye opener...

    Lynne, you are correct!

    Truly an eye opener and worrying. When I was in practice, although not a specialist, I participated in the role of Investigator for a number of trials. What became apparent...
  8. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Speaking as a retired GP and a user of RCH4 I am...

    Speaking as a retired GP and a user of RCH4 I am qualified to comment on the ALS Untangled review.

    I think that it is unfortunate that Terry has been selective in copying (above) portions of the...
  9. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Hi Chas, Thanks for your best wishes for my...

    Hi Chas,
    Thanks for your best wishes for my research. Sorry there is a misunderstanding. I am not smart enough to be a scientist or researcher! Just a retired GP dealing with this awful condition.
    ...
  10. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Sportingmac said I have always doubted the...

    Sportingmac said

    I have always doubted the veracity of ALSFR-S scales since a final number is used to assess the progress of ALS. I was doodling along with my usual research on ALS/MND when I came...
  11. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Hello nunhead_man. We must rejoice that we have...

    Hello nunhead_man. We must rejoice that we have an expert on charities contributing here.

    However, the web site you refer to above has nothing at all to do with the RC Charity. It is a site run by...
  12. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Again thank you Terry. You said If the...

    Again thank you Terry. You said

    If the company, (group) contacted you, why don't they have a presents here in a passive form, they must be reading it.

    Please read my post. I said I contacted...
  13. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Hello Terry and thank you for your post as...

    Hello Terry and thank you for your post as follows

    Most of you don't even put a country let alone a area.

    Sorry, I have corrected this oversight. I am in the UK, diagnosed 2014 and a retired...
  14. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Ellie, please do not be so upset. Sorry, you have...

    Ellie, please do not be so upset. Sorry, you have probably forgotten, you did know about the drug. Your post from September 12th. 2017.

    Have you filled out the form on their "Contact Us" page?
    ...
  15. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    I am very upset to read Ellie`s posting from...

    I am very upset to read Ellie`s posting from Dublin and the stress she has suffered as it is not available to her. This distress is certainly not intentional. Users of the drug RCH4 only wish to...
  16. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Sportingmac, you have appeared elsewhere as a...

    Sportingmac, you have appeared elsewhere as a nay-sayer. You do not take the drug so nothing for you to be interested in or be afraid of.

    They are an unpaid charity and they make clear that they...
  17. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Lynne the charity are all unpaid doctors and...

    Lynne the charity are all unpaid doctors and scientists see here
  18. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Lynn, no it is not a clinical trial. A charity...

    Lynn, no it is not a clinical trial. A charity supplies rch4 free of charge when they have funds. After malicious posters untruthfully said it is all a scam, their funding dried up and we are worried...
  19. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    Yes the whole MND scene is sad. This makes...

    Yes the whole MND scene is sad.
    This makes interesting reading.
    https://www.als-new-drug.com/difficulties

    Also the drug has had the highest number of votes ever on ALS Untangled for years. ...
  20. Thread: Rch4

    by originalthought
    Replies
    400
    Views
    116,186

    The FDA not only do not do trials, but they dont...

    The FDA not only do not do trials, but they dont pay for anything. In fact they charge $1 million if they grant approval. I think maybe they waive that charge for an orphan disease. The RCH4 charity...
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