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  1. Replies
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    Thanks Ellie and Terry Richard

    Thanks Ellie and Terry
    Richard
  2. Replies
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    Hi Ellie 1 litre takes 10 hours 100 ml flush...

    Hi Ellie
    1 litre takes 10 hours
    100 ml flush
    Eye drops
    No bowel gurgling.

    Richard
  3. Replies
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    Hi Terry

    About 10 days ago
    My body temperature is normal
  4. Replies
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    Feeling Hot with a PEG

    Hi
    Iíve recently had PEG fitted. I feed overnight with Nutricia Multi Fibre. I feel very hot in my bed overnight. Any one else get the same thing?
    Richard
  5. Thread: Toilet Lifts

    by Mr W
    Replies
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    3,241

    Sorry for the delay in replying, but thanks to...

    Sorry for the delay in replying, but thanks to all for your advice.

    Regards

    Richard
  6. Thread: Toilet Lifts

    by Mr W
    Replies
    7
    Views
    3,241

    Toilet Lifts

    Hi

    Currently I have a normal toilet with a frame around it. My legs are very weak, but I have still have some strength in my arms, so I can lift myself off the toilet using the frame. But what...
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    Hi All Update. I was still undecided which...

    Hi All

    Update.

    I was still undecided which to go for, when my condition dictated that I had to do something. So I bought a Buckingham Bottom Wiper on-line for £16. It works and much cheaper...
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    37,320

    Thanks Ellie, Barry & Terry. Richard

    Thanks Ellie, Barry & Terry.

    Richard
  9. Thread: VAT Exemption

    by Mr W
    Replies
    4
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    3,942

    VAT Exemption

    Hi

    Most you probably know about this, but in my case I had to find out about it myself as no support professional told me about it.

    I'd noticed that when buying odds & ends to help with my...
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    Hi Barry I have ALS and my legs are weak. I...

    Hi Barry

    I have ALS and my legs are weak. I used to use 2 sticks or a walker around the house, but now I am using my wheelchair more and more indoors. I've only fallen over twice and since then...
  11. Replies
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    37,320

    Wash and Dry Toilets - Do they work?

    Hi

    I'm thinking of getting a Wash and Toilet. They're expensive, so I'd be interested in the opinion of people who've actually used them - do they work?

    I'm a bit sceptical because when you...
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    Thanks Barry & Terry Richard

    Thanks Barry & Terry

    Richard
  13. Replies
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    Physio & OT Support

    Hi

    When I was first diagnosed with MND, I was referred to the local NHS Trust Physio/OT team. I was visited regularly & assessed. After 6 months or so I was discharged. They would still answer...
  14. "All Terrain" Tramper Scooter Hire in the South West

    Hi

    Before the MND struck I used to do a lot of walking and now miss being out in the countryside. However I've recently discovered Countryside Mobility. This a charity which organises Tramper...
  15. Thread: Wash Basins

    by Mr W
    Replies
    5
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    2,457

    Thanks for the replies everybody. Richard

    Thanks for the replies everybody.

    Richard
  16. Thread: Wash Basins

    by Mr W
    Replies
    5
    Views
    2,457

    Wash Basins

    Hi

    I am having a wet room installed in my house, and I am looking around for fittings. I was going to choose a fairly standard wash basin (my OT recommended a square style), but I've come across...
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    Scooter vs Wheelchair

    Hi

    I was diagnosed with MND (ALS) about 6 months ago (the symptoms started 12 months ago). It mainly affects my legs, my speech and my balance. At the moment I can manage to walk a few hundred...
  18. Thread: Exercising

    by Mr W
    Replies
    41
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    35,318

    Hi Ellie & Jaytee No the Otago set hasn't been...

    Hi Ellie & Jaytee

    No the Otago set hasn't been modified for me and the Physios I have seen are not specialised in Neurological issues - but no ankle weights!
    I'm seeing my specialist nurse next...
  19. Thread: Exercising

    by Mr W
    Replies
    41
    Views
    35,318

    I have recently been diagnosed with MND (ALS). ...

    I have recently been diagnosed with MND (ALS). So far it mainly affects my legs - specifically the muscles that work my ankles (calf muscles?) and latterly the front of thigh muscles that lift my...
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