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    My darling husband Mike has passed away

    I am so sad to tell you that my wonderful, darling husband Mike passed away on 3rd June. We were hoping to make him more comfortable with adjusting various medications, so we spent a few nights in...
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    I'm so sorry to hear of your sister's passing...

    I'm so sorry to hear of your sister's passing Debbie. I'm sure she was so appreciative of all the love and support she received from her family, it does make such a huge difference. My thoughts and...
  3. Thread: Hello out there

    by Joydy
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    Hi Charlie Welcome to the forum. I am so...

    Hi Charlie

    Welcome to the forum. I am so sorry to hear about your husband. My husband has MND too so I am only too aware of how you must be feeling. As others have already said, everyone is so...
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    Hi Steve A warm welcome to the forum. I am...

    Hi Steve

    A warm welcome to the forum. I am very pleased that you are already discovering how friendly everyone is and also how helpful. I find the forum really useful and 'the select group'...
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    Hi Eloise Welcome to the forum. I am sorry to...

    Hi Eloise

    Welcome to the forum. I am sorry to hear about your father-in-law. I am sure you will find the team of specialists very helpful and it is always very useful to have professionals you...
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    Hi Basil I am very sorry to hear about your...

    Hi Basil

    I am very sorry to hear about your loss. My husband is really suffering at the moment with this terrible condition. As John has said, it would be really helpful if we could have some...
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    Hi and welcome to the forum - you are obviously...

    Hi and welcome to the forum - you are obviously an extremely loving and caring daughter and I'm sure your Dad cherishes you. I can only reiterate what has already been said. My husband is really...
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    Hi Jason I have been reading about Aimspro and I...

    Hi Jason
    I have been reading about Aimspro and I have talked to my GP and to my husband's Consultant. I was hoping that there might be some way of trying it, but both said it was not possible for...
  9. Thread: New to forum

    by Joydy
    Replies
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    5,693

    Hello and welcome. My husband is suffering from...

    Hello and welcome. My husband is suffering from this heartbreaking disease and it is devastating to watch the illness progress. I have found the forum helpful and uplifting. Everyone seems so kind...
  10. Thread: Goodbye Bill

    by Joydy
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    I'm so sorry to hear that Bill has passed away. ...

    I'm so sorry to hear that Bill has passed away. My husband is suffering with this awful disease too. My thoughts and prayers will be with you and your family. Take care, love Joydy.
  11. Thread: R.I.P Jim

    by Joydy
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    My thoughts and prayers are with you Carol. I am...

    My thoughts and prayers are with you Carol. I am sure your family and friends will be a huge support for you at this sad time.
    Take care, love Joydy.
  12. Thread: Aimspro

    by Joydy
    Replies
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    43,645

    Hi Graham As I understood it the drug has been...

    Hi Graham
    As I understood it the drug has been used by MS sufferers for some time but only recently for MND. As the company state that MND patients who have tried the drug appear to be seeing some...
  13. Thread: Aimspro

    by Joydy
    Replies
    53
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    43,645

    Hi Adrian It will be very interesting for us to...

    Hi Adrian
    It will be very interesting for us to know what your GP says. I have written to my GP and he is hopefully currently looking into it. From what I understand one injection can cost about...
  14. Thread: Aimspro

    by Joydy
    Replies
    53
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    43,645

    Hi Everyone I phoned Daval International to ask...

    Hi Everyone
    I phoned Daval International to ask about the hospital presentations for the drug Aimspro but the gentleman I spoke to said he knew of no such meetings. I was hoping that if someone was...
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    Hi Caroline Hugs and good wishes from me too. ...

    Hi Caroline

    Hugs and good wishes from me too. The paperwork and red tape these days is beyond belief. Before my husband became ill with MND he looked after all his mother's affairs (she is 92...
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    Rory - what can I say? I think you are a...

    Rory - what can I say? I think you are a 'one-off'. You brighten up our lives. I wish you and your family a very happy Easter. Joydy.
  17. Thread: Hi

    by Joydy
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    5,729

    Hi Melvin Welcome. Joining the forum has been...

    Hi Melvin

    Welcome. Joining the forum has been a great help to me. I care for my husband who was finally diagnosed last year. You will find some really helpful advice - along with some extremely...
  18. Thread: sickness

    by Joydy
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    2,162

    Hi Wooz My husband suffers from feeling sick...

    Hi Wooz

    My husband suffers from feeling sick from time to time. We're not sure if it is down to the disease or to the feeds, as he also often feels bloated.
    He takes anti-sickness medication...
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    That's a really good idea - thanks Miranda.

    That's a really good idea - thanks Miranda.
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    That's brilliant Chrissy and I'm sure it will be...

    That's brilliant Chrissy and I'm sure it will be put to very good use. Take care, love Joydy.
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    Thank you Andrew I'm amazed at how quickly...

    Thank you Andrew

    I'm amazed at how quickly members reply. I do find the forum extremely helpful. Best wishes, Joydy.
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    Hi Lyn I appear to be working backwards on the...

    Hi Lyn

    I appear to be working backwards on the replies to my query. Thank you for this information. I'm trying to think up ways to raise money. The problem is I am caring for my husband so all...
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    Hi Rory I replied to Pete before I saw your...

    Hi Rory

    I replied to Pete before I saw your response. I was hoping this would be the case, so many thanks for that info.
    I do love your New Year's resolution by the way. It's so important to...
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    Donating to research

    Thanks Pete - I find myself becoming increasingly angry at all the money that is wasted in various ways, by governments and councils. We are always hearing about new schemes that have been...
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    Donating to research

    Does anyone know if a donation can be made purely for research?
    I realise that money is also needed in other areas such as care, equipment, etc. but because it is taking so long for any new...
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