Search:

Type: Posts; User: Henrietta45

Search: Search took 0.04 seconds.

  1. Replies
    21
    Views
    7,945

    Hi Joyce, My dad had a small round patch/...

    Hi Joyce,
    My dad had a small round patch/ plaster that we put behind his ear and it lasted for 72 hours before we chanced it. I can't remember what the drug on it was called so probably not very...
  2. Replies
    13
    Views
    5,802

    Dear Daisy and Melelie, Thinking of you both in...

    Dear Daisy and Melelie,
    Thinking of you both in the days, weeks and months to come. I lost my dad in January and my heart goes out to you both.
    Love Hen x
  3. Replies
    8
    Views
    4,439

    Hi David, My dad had a small patch that we put...

    Hi David,
    My dad had a small patch that we put behind his ear. It had to be changed every 72 hours as was a slow release. It was like a small round plaster. I can't remember what it was called but...
  4. Replies
    18
    Views
    7,697

    Very sorry to hear the news of your beloved dad....

    Very sorry to hear the news of your beloved dad. Sending you much love and strength in the following days and months.
    Hen x
  5. Replies
    18
    Views
    11,466

    Dear Blondie, My heart goes out to you and your...

    Dear Blondie,
    My heart goes out to you and your family. My dad was diagnosed with bulbar mnd in August last year and he died in January. He only presented with slurring speech initially and we were...
  6. Thread: New here

    by Henrietta45
    Replies
    15
    Views
    7,212

    Hi Lycan, My dad had bulbar mnd and sadly died...

    Hi Lycan,
    My dad had bulbar mnd and sadly died in January ... devastated and struggling to accept it all but find comfort coming on here and realising what we felt and went through were what most...
  7. Replies
    16
    Views
    9,985

    Dearest Jackie, I lost my wonderful dad to MND...

    Dearest Jackie,
    I lost my wonderful dad to MND in January after just over 5 months. My parents were married for over 55 years and like your parents did everything together. It's hard. I too like...
  8. Replies
    6
    Views
    3,544

    What a wonderful idea. I wish we had thought of...

    What a wonderful idea. I wish we had thought of it as I long to hear my dad's voice . He sadly died in January after 5 months living with bulbar Mnd and lost his speech very early. Good luck with it....
  9. Replies
    20
    Views
    14,842

    Hi all, I too know exactly what you mean. My dad...

    Hi all,
    I too know exactly what you mean. My dad died in January after only 6 months. I just can't believe that he is gone. It was so awful I willed him to die but the relief was short lived. He is...
  10. Thread: Pip

    by Henrietta45
    Replies
    88
    Views
    72,558

    Hi Lyn, That's good news! Once you get that...

    Hi Lyn,
    That's good news! Once you get that through you can apply for carers allowance which should be back dated to application date for pip! Hope you get it through quickly. Keep phoning if you...
  11. Thread: Pip

    by Henrietta45
    Replies
    88
    Views
    72,558

    My dad was diagnosed with bulba MND is August I...

    My dad was diagnosed with bulba MND is August I completed PIP forms and sent off with DS1500 forms and dad got his payments through very quickly, about month to 6 weeks. He sadly died in January but...
  12. Replies
    1,552
    Views
    499,026

    You are grieving for what you have lost already...

    You are grieving for what you have lost already and all that you will lose in the future. You are scared and angry .. All normal when faced with what is going on. Stay strong but take time for you...
  13. Replies
    1,552
    Views
    499,026

    Dear Davec, I remember so well the rawness and...

    Dear Davec, I remember so well the rawness and hurt of diagnosis . This time last year my dad was a very fit and healthy man. His speech started to slur and was diagnosed with Bulbar MND in August...
  14. Dear Alice, Your poor dad and mum , I hope he...

    Dear Alice,
    Your poor dad and mum , I hope he gets some answers and more comfortable quickly.
    Love Hen x
  15. Replies
    28
    Views
    14,894

    Dear Helen, I lost my dad 10 weeks ago with...

    Dear Helen,
    I lost my dad 10 weeks ago with Mnd. Very quickly but very brutally . Our thoughts are with you in the next coming weeks and months. He was courageous and uncomplaining and the void...
  16. Replies
    9
    Views
    8,852

    Hi Phillipa, My dad had bulbar Mnd and chose...

    Hi Phillipa,
    My dad had bulbar Mnd and chose from the very beginning not to have a peg. His disease declined very rapidly and he died within 6 months of diagnosis. For him it was absolutely the...
  17. Replies
    10
    Views
    4,906

    Dear Alice, My dad had trouble with wee , felt...

    Dear Alice,
    My dad had trouble with wee , felt like he needed to go and then couldn't . He was diagnosed with bulba mnd last summer and sadly died in January. All very quick and very brutal . In...
Results 1 to 17 of 17