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  1. Thread: Pain/Agony

    by Lynne K
    Replies
    48
    Views
    2,049

    Thanks Rachel. I'll speak with my neurologist...

    Thanks Rachel. I'll speak with my neurologist when I see her next month. Lynne
  2. Thread: Pain/Agony

    by Lynne K
    Replies
    48
    Views
    2,049

    Thanks Rachel from MNDA. Do all MND sufferers...

    Thanks Rachel from MNDA. Do all MND sufferers eventually benefit from a PEG and when's the best time to have it done? I'm not too bad swallowing. In the last 6 months a bit of difficulty half a dozen...
  3. Thread: Pain/Agony

    by Lynne K
    Replies
    48
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    2,049

    Hi Chrissie, Great that your Gran's chest...

    Hi Chrissie, Great that your Gran's chest infection has cleared and that she's is now out of hospital. I hope that everything works better now with the care home. I don't know about the rotunda you....
  4. Thread: collection

    by Lynne K
    Replies
    9
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    336

    Thanks for the update Sheila. A very generous...

    Thanks for the update Sheila. A very generous crowd of Mick's friends and family. I hope that you and your loved ones are coping ok. Love Lynne x
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    Sounds good 4-6 wks to sort it out Doug. Good...

    Sounds good 4-6 wks to sort it out Doug. Good luck. I did the tear to my shoulder about 5 years ago in my teaching car. I struggled to lift a heavy bag from the back to my knee in the front passenger...
  6. Replies
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    Good luck with your shoulder exercises Doug. I...

    Good luck with your shoulder exercises Doug. I hope that you get relief soon. What did they say was the cause of your pain?

    My left shoulder has a tear in it's rotary cuff so I can relate to you....
  7. Hi Ellie. My OT got back to me today to say that...

    Hi Ellie. My OT got back to me today to say that she can't get me a mobile phone mount so advised me to ask MNDA for a grant. I sent a request and was very surprised to hear back within a couple of...
  8. Thread: Pain/Agony

    by Lynne K
    Replies
    48
    Views
    2,049

    Hi Chrissie. I wont rewrite the whole text but...

    Hi Chrissie. I wont rewrite the whole text but some.

    I'm glad that your gran has at last gone to hospital for tests. It's about time. I think that the care home ought to have done so much sooner....
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    Hi Ellie, I still couldn't see it. Maybe it only...

    Hi Ellie, I still couldn't see it. Maybe it only works when you are still in the window where you were when it disappeared. Thanks anyway. Lynne
  10. Replies
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    Hi Kayleigh, same here. I've only had the Sun...

    Hi Kayleigh, same here. I've only had the Sun Pharma Rilozone once - months worth. The Rilutek is given to me mostly. I sometimes struggle with Rilutek/Glentec because they sticks behind my teeth or...
  11. Thread: Pain/Agony

    by Lynne K
    Replies
    48
    Views
    2,049

    I just wrote a lengthy reply Chrissie and it...

    I just wrote a lengthy reply Chrissie and it disappeared :( I'll do it again later. I'm wrecked now. Lynne
  12. Thread: after the fall

    by Lynne K
    Replies
    7
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    546

    Hi Kate. I'm sorry about your fall. I'm not quiet...

    Hi Kate. I'm sorry about your fall. I'm not quiet at your stage yet but soon will be so watching the responses to your question. I hope that you heal quickly. Lynne
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    Hi Wailywoo. There's a sleep app with relaxing...

    Hi Wailywoo. There's a sleep app with relaxing music that a guy with heart problems created with friends on his website. It's based in New Zealand and is free to download on their website, address...
  14. Thread: Muscle spasms

    by Lynne K
    Replies
    13
    Views
    989

    I hope that your blood clot gets absorbed and...

    I hope that your blood clot gets absorbed and clears very quickly Panniertank. It must be very painful. Lynne x
  15. Thread: Forgiveness

    by Lynne K
    Replies
    6
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    615

    Hi Pen. I'm similar to you, the calm, patient and...

    Hi Pen. I'm similar to you, the calm, patient and caring one. But I'm the one with MND and when the sunami of anger out of the blue hits me in the face I no longer have the strength to deal with it....
  16. Thread: Housing

    by Lynne K
    Replies
    58
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    11,876

    Thanks Ellie. It looks like the one that my...

    Thanks Ellie. It looks like the one that my husband made from a window rubber blade wiper and a spare pole. So he had the right idea but tje rubber could do with being wider. Lynne
  17. Thread: Housing

    by Lynne K
    Replies
    58
    Views
    11,876

    Can you send me a link to the bathroom squeegee...

    Can you send me a link to the bathroom squeegee that you bought please Ellie so that I can buy one. Many thanks. Lynne
  18. Replies
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    Congratulations Hayls. I see that you already...

    Congratulations Hayls. I see that you already have good advice. I do sometimes cry when I want to laugh and visa vera. It happened recently when my daughter was telling me something worrying. I was...
  19. Thread: Quick Hello

    by Lynne K
    Replies
    9
    Views
    732

    Hi Beatz, welcome to forums. Sorry about you...

    Hi Beatz, welcome to forums. Sorry about you having to join us on this horrid journey especially seeing as you have enough on your plate already. As Ellie said it takes time to get your head around...
  20. Thread: Forgiveness

    by Lynne K
    Replies
    6
    Views
    615

    Pen, what a well written summary of dealing with...

    Pen, what a well written summary of dealing with relationships at this difficult time. About 'be kind to each other.' I always try, but my hubby sometimes lets rip verbally at me, very cruelly. I've...
  21. Thread: update...

    by Lynne K
    Replies
    35
    Views
    4,528

    I just read your message about your cancelled...

    I just read your message about your cancelled appointment Andy. Sorry to hear that. I hope that they sent or soon send you an alternative soon appointment. Good luck. Lynne
  22. Thread: Housing

    by Lynne K
    Replies
    58
    Views
    11,876

    I know the feeling about rubbish wet-rooms Andy....

    I know the feeling about rubbish wet-rooms Andy. Good luck with finding suitable accommodation. Ellie, our wet-room is now much better. It's not perfect as still collects a puddle under my shower...
  23. Thread: Rch4

    by Lynne K
    Replies
    281
    Views
    76,608

    Ok originalthought. I hope that it gets looked...

    Ok originalthought. I hope that it gets looked into by well qualified scientific researchers very soon. Lynne
  24. Thread: Rch4

    by Lynne K
    Replies
    281
    Views
    76,608

    Thanks for sharing your info originalthought, and...

    Thanks for sharing your info originalthought, and the links. I hope for the rolling out widely of RCH4 very soon so double blind trials need to get a move on. Is it a trial that you have been on or...
  25. Thread: Care/Respite

    by Lynne K
    Replies
    8
    Views
    678

    Hi Vix. I don't have experience of carers or...

    Hi Vix. I don't have experience of carers or respite. But I've read that if you and your husband are either referred or self refer to a hospice. They usually have plenty to offer including respite....
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