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  1. Replies
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    Hello Denise, Im so sorry that you are not sure...

    Hello Denise,
    Im so sorry that you are not sure exactly what is happening to your husband. For him having an MND diagnosis might well mean that he would become very emotional and at times angry and...
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    Hello Naomi, Thank you very much for your...

    Hello Naomi,

    Thank you very much for your reply. Im so sorry to hear about your mum. Especially to hear that her journey was so rapid and short.

    Do you mind me asking how far her MND...
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    Weíve never been told which type of FTD really...

    Weíve never been told which type of FTD really because it all came as part of the MND. That said we think itís behavioural.

    Mark got his diagnosis last year. What hospital are you under? We are...
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    Hello Gill Lovely to hear from you but Iím sorry...

    Hello Gill
    Lovely to hear from you but Iím sorry for your news. What tests are Dave having. Mark had an EMG which confirmed his MND diagnosis.

    If I can help at all please feel free to message me...
  5. Thread: Hot Tub!?

    by Sue1
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    Will do! :) xx

    Will do! :) xx
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    Hello Denise, I know just what you mean about...

    Hello Denise,

    I know just what you mean about having to do all the jobs around the home, or actually waiting to find someone to help you! At first I used to be saddened about having to lock the...
  7. Thread: Hot Tub!?

    by Sue1
    Replies
    7
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    987

    Hello Barry, thank you so much for your reply. I...

    Hello Barry, thank you so much for your reply. I will do as you suggest and after covid I will find out about local aqua therapy.

    Hello Hayls, Mark does have muscle twitches or fasciculations but...
  8. Thread: Hot Tub!?

    by Sue1
    Replies
    7
    Views
    987

    Hot Tub!?

    Hello

    Iíve noticed how my husband stands under the shower jet of warm water and seems to enjoy it on his back. I wonder if itís soothing on aches and pains. Sorry for what appears to be an odd...
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    Hello Denise, Im caring for my husband too and...

    Hello Denise, Im caring for my husband too and your words resonate with me too. About the anger mixed with intense sadness. I too get very tearful even at the silliest things which in the past I...
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    Hello Ellie I will contact my local branch...

    Hello Ellie

    I will contact my local branch thank you x
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    Thank you Miranda for your reply. Yes,hopefully...

    Thank you Miranda for your reply. Yes,hopefully someone will reply. Surely we can't be the only ones?......
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    Frontotemporal Dementia (FTD) and MND

    Hello Everyone,

    My name is Sue and I care for my husband Mark who has FTD MND. From what I have read I know there is a strong connection between the two conditions, but I don't actually know...
  13. Thread: Bed Advice

    by Sue1
    Replies
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    Hello Sarah, Lovely to hear from you. Yes...

    Hello Sarah,

    Lovely to hear from you.

    Yes thats why the decisions are so difficult as you don't know how things will progress. Im pleased to hear your symptoms are very slow and you still...
  14. Thread: Bed Advice

    by Sue1
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    Hello Hayls, Thank you so much for the idea of...

    Hello Hayls,

    Thank you so much for the idea of the HSL beds. I will take a look at their website. When everyones on the same journey (don't like that word! lol) I knew it must be a well trodden...
  15. Thread: Bed Advice

    by Sue1
    Replies
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    Hello Ellie, Thank you for that link, ill take a...

    Hello Ellie,
    Thank you for that link, ill take a look. I actually think Theraposture do dual beds that can be turned into singles when/if necessary. So thats a good point.

    I think the fact that...
  16. Thread: Bed Advice

    by Sue1
    Replies
    11
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    2,333

    Hello Ellie Thank you for your further advice...

    Hello Ellie

    Thank you for your further advice its very kind of you to take the time to write to me.

    Take care

    Sue xx
  17. Thread: Bed Advice

    by Sue1
    Replies
    11
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    2,333

    Hello Ellie, Thank you for your reply and for...

    Hello Ellie,
    Thank you for your reply and for looking at the Theraposture website. Its the rotaflex I was looking at which actually rotates the user round in the bed so they are ready to come to...
  18. Thread: Hello everyone!

    by Sue1
    Replies
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    6,280

    Hello Piglet, Thank you for your kind words....

    Hello Piglet,
    Thank you for your kind words. Please keep in touch.
    Take care Irene.
    Sue xx
  19. Thread: Bed Advice

    by Sue1
    Replies
    11
    Views
    2,333

    Bed Advice

    Hello,
    We have just had an extension built for my husband Mark, who has FTD MND, as I wanted to create a downstairs bedroom, wetroom and larger kitchen/living room. Its nearly completed and I need...
  20. Thread: Hello everyone!

    by Sue1
    Replies
    29
    Views
    6,280

    Hello Piglet, Lovely to hear from you. It sounds...

    Hello Piglet,
    Lovely to hear from you. It sounds like you are doing very well all things considered. Did you say that your husband hasn't actually been diagnosed with FTD?

    I am lucky too as Mark...
  21. Thread: Hello everyone!

    by Sue1
    Replies
    29
    Views
    6,280

    Hello Hayls, Im very sorry your dad had FTD....

    Hello Hayls,

    Im very sorry your dad had FTD. You are right it is very difficult to diagnosis. Ive actually heard several wives say they were just about to divorce their husbands as their behaviour...
  22. Thread: Hello everyone!

    by Sue1
    Replies
    29
    Views
    6,280

    Hello Piglet, We had Marks diagnosis at the...

    Hello Piglet,
    We had Marks diagnosis at the beginning of last year. It was then that they diagnosed the FTD and MND. Yes, Mark is at home with me. His MND symptoms are not progressing as quickly as...
  23. Thread: Hello everyone!

    by Sue1
    Replies
    29
    Views
    6,280

    Hello Piglet, Im so sorry I haven't replied...

    Hello Piglet,

    Im so sorry I haven't replied sooner.

    Diagnosing FTD can be a tricky thing as the changes in behaviour can be very slight at first and sometimes its only the partner that notices...
  24. Thread: Hello everyone!

    by Sue1
    Replies
    29
    Views
    6,280

    Hello Peanut, I have often looked at this forum...

    Hello Peanut, I have often looked at this forum but this is actually the first post I've made, but it was nice to see someone else is under Queens Square hospital and I thought they were very caring...
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