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  1. Thread: Car Cane

    by GrannieAnnie
    Replies
    8
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    3,702

    Hi Pete, why doesn't your OT provide you with a...

    Hi Pete, why doesn't your OT provide you with a shower chair mine is having one made to go over the biobidet. I'm having a ceiling hoist fitted tomorrow to get me in and out of bed as my legs are...
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    10,466

    Hi I should find yourself another OT. Ours is...

    Hi I should find yourself another OT. Ours is very helpful and brings all sorts of equipment to try. I have been using my stair lift for a year now. They stopped us having a lift on elf and safety...
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    3,311

    When I was introduced to PEG feeding I was shown...

    When I was introduced to PEG feeding I was shown a backpack that could contain the feed and one could be fed continuously. I have never used this option but its not unusual to take back pack on a day...
  4. Hi like Chas I have a Wheelchair 88 and fLew...

    Hi like Chas I have a Wheelchair 88 and fLew with it to Hong Kong as it pack down to small suitcase size with a cover and can be pulled along. I then took a cruise back to UK and took it on all...
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    38
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    33,214

    Charles. My SALT originally loaned me a hospital...

    Charles. My SALT originally loaned me a hospital iPad with the Predictable App but it was password protected with the hospital password so I couldn't use it for Emil or anything else much as I knew...
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    17
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    6,052

    Hi Mags. I'm the same as you. I force my...

    Hi Mags. I'm the same as you. I force my electric tooth brush into my mouth and then switch on and it nearly does the trick. I have several chipped teeth and because of this they hook into my lips...
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    4,049

    Hello Ashley, you have had rough couple of years...

    Hello Ashley, you have had rough couple of years and Lisa is young but its good you have support from fantastic family and friends. You have come to the right place as we all support one another. I...
  8. Hi Cumbria, I was alone with the neurologist...

    Hi Cumbria, I was alone with the neurologist when he first though I had MND and I couldn't believe it, I have bulbar onset and that was four years ago in June. To get through I concentrate what I...
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    Hi Barry, nice way to spread the word, well...

    Hi Barry, nice way to spread the word, well done. G.Annie xx
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    5,936

    Hi Poppy, as you have found from the above, the...

    Hi Poppy, as you have found from the above, the forum is filled with people all anxious to help. I am the one with MND and what gets me through the day is to remember what I can still do rather than...
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    3,893

    Trooker I am so sorry for the loss of your uncle....

    Trooker I am so sorry for the loss of your uncle.
    May he be at peace now. I hope you have happy memories of times together. Ann x
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    Little O and family I am so sorry for your loss,...

    Little O and family
    I am so sorry for your loss, Bakerchick was a good contributor and we shall all miss her. Take comfort she passed peacefully in her sleep. At peace now.
    Ann xx
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    1,970

    Hi. Mags, what is the dry mouth gel you put on...

    Hi. Mags, what is the dry mouth gel you put on your lips. Ann x
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    1,970

    Hi Maggs I have the same problem. Jaw jerk,...

    Hi Maggs
    I have the same problem. Jaw jerk, biting my lips and cleaning my teeth. I have to force the toothbrush in to my mouth and often can't get it out. If it goes electric there's no end of...
  15. My condolences Snodgrass for the loss of your...

    My condolences Snodgrass for the loss of your beloved father. Happy memories every day. Ann x
  16. Replies
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    9,367

    Bu...ger the neighbours, I think its great and...

    Bu...ger the neighbours, I think its great and know a lot of people who would agree and want one. xxxx
  17. Replies
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    8,224

    Hi Clevblue. Sound advice from Ellie and Terry. ...

    Hi Clevblue. Sound advice from Ellie and Terry. I lost two stone and its hard to get back. I was on Fresubin 2kal drinks with a 5kl shot through the day. Eventually I've gone over to full feed and...
  18. Replies
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    9,367

    Love the car Barry x

    Love the car Barry x
  19. Thread: New

    by GrannieAnnie
    Replies
    10
    Views
    3,868

    Hi Leanne, when you first told us about your...

    Hi Leanne, when you first told us about your diagnosis you mentioned moving out of your Condo, so I wondered are you resident in either US or Canada as its an expression we dont use over here. ...
  20. Go for it Barry! I took my motorised wheelchair...

    Go for it Barry! I took my motorised wheelchair on the flight to Hong Kong then on the cruise back to UK it was invaluable never regretted it. Ann x
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    3,629

    Sounds dotty but everything's worth a try if you...

    Sounds dotty but everything's worth a try if you are a sufferer. Cheap as chips x
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    7,132

    Happy New Year

    To all friends on the Forum may 2017 bring all that you could wish for. Ann. Grannie Annie. xxxxx.
  23. Replies
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    14,498

    Hi CC. Take your own advice, calm down and you...

    Hi CC. Take your own advice, calm down and you will do it. You know how the thing works now and where to put the pads etc. etc. You'll do it for sure. GA xxxxx
  24. Thread: Sad News

    by GrannieAnnie
    Replies
    8
    Views
    4,700

    Sad news Dave. I am so sorry to hear this. You...

    Sad news Dave. I am so sorry to hear this. You did well with your 270 I am sure MNDA were very grateful. I had sad news too my cousin who took out a monthly SO in support of MND because of me, was...
  25. Replies
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    4,438

    Hi DVD. I have a peg feed but I use Fresubin...

    Hi DVD. I have a peg feed but I use Fresubin feed. Before the feed I was on their high calorie drinks that made up 2000 calories a day. I take my feed during the day when at home, from a riser...
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