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Its my family rather than the carers, I'd love to have the carers in more so I can stop feeling apologetic about asking for basic needs, food,drink,hot cold, healthy food i ts been awful to lose all...

Get well soon sheil a xx

I don't get looked after, properly just resentment and anger, its been horrible.

Im feeling loads better, went to brownsea island today,saw a red squirrel!

Thankyou lovely x we're busy putting labels in uniform (well, im giving instructions 😂)and arranging the little big ones to walk together. Fingers crossed for tomorrow!

You can look up key turners, they work well. I found clothes/pants etc that were a bit big for me gave me a bit longer before carers,as did thumb splints, helps floppy thumbs!
I found playing zelda...

Very much appreciated, thankyou ellie and for your tips about talking to the carers

[QUOTE=Ellie;92185]Crikey Lisa, wasn't the carer even changing her gloves?? Gross!! (I wanted to say more than "crikey" but swearing isn't allowed :p) I've visions of her coughing into a gloved...

Thankyou Debbie, that's a lovely thing to say xx I had a good result from yesterday's emails, handwashing, glovesl changes and masks this morning! I guess they'd potentially be liable if they...

I'm I'm lymington way,other half lives in southbourne. Do you go to soton MND centre or is there a dorset alternative? Anyway, feel free to pm me:)
Everyone does say the peg/rig helps ease worry,...

Thankyou x youre from my part of the world i think, Bournemouth way?

That's super useful Kayleigh, thankyou x

The antibiotics are an insurance policy against it being bacterial i would assume Ellie , for viral it's fluids and rest isnt it.
The carer has copd, and while I expect its a coincidence i...

Went through 111 and the out of hours service, was given antibiotics. It's a chest infection. Feels like the viral sort i used to get. Concerned by the carers' lack of hand washing and the new...

I'm interested Terry, I seem to be getting worse and because I've not been in my own home the powerchair application won't kick off yet

Thankyou ellie x it feels like upper respiratory, that was very usual for me before mnd but ive been clear
Since leaving teaching. I'll get checked out tomorrow.

Do I need to see a doctor to check if its aspiration related?

Thankyou x the consultation was pretty horrible actually, a summary of my current and near future frailties including respiratory-although I knew Id been cleared , because I'd had to redo my night...

Haha, going to the loo has brought me and my ex closer i think..it's the massive pants wot dunnit 😂

That's good to remember , the sedation.. good luck sheila xx I'm worried about the cut and tube i think, ive still got to get to grips with that. But then i thought people helping me to the loo...

I had some as a pre peg screening last week . In one i breathed in deeply and out completely into a tube in my mouth like an inhaler. They took blood from an artery (wrist or earlobe) cos it shows...

Scoop dishes are awesome for one
handed eating, and i use cheap camping cutlery as its light and easy to hold(my elbows
Work but my shoulders don't)
I found i could cook with a soupmaker when...

Thankyou ellie, i really really appreciate that advice. And yes, i definitely need ti have it, but i dont want to neeď it! But we've planned in a trip somewhere nice afterward, and my nutritionist is...

Thankyou lovely, i appreciate it xx

Two weeks to go Kayleigh! We've had to stay at my parent's for almost six months which has been challenging, but the flat is shaping up lovely 😁
The daughter is starting secondary school soon !