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We will be having a support group meeting for those living with MND and their carers on Saturday 8 October 2016 at 2pm to 4pm.

The venue is Church End in Lewes. Come along and say hello

If you...

We will be having a support group meeting for those living with MND and their carers on Saturday 14 May 2016 at 2pm to 4pm.

The venue is Church End in Lewes. Come along and say hello

If you...

We will be having a support group meeting for those living with MND and their carers on Saturday 6 February 2016 at 2pm to 4pm.

The venue is Church End in Lewes. Come along and say hello

If...

I was about to have one but sadly dad passed away before it could take place but the idea of it was very similar to that you've described.

So sorry for your loss. Thinking of you and yours x

Dad had the twitching but he also suffered with his eyes watering and stinging for no reason....could have been the MND, we weren't sure. I had off the shelf eyedrops which helped. The ones from...

Just a little reminder about our support group meeting this coming weekend.

I second Miranda, we were given a note pad from the MND Association which Dad could then right a message on whilst he was still able.

We will be having a support group meeting for those living with MND and their carers on Saturday 24 October 2015 at 2pm to 4pm.

The venue is Church End in Lewes. Come along and say hello :)

...

Sorry to hear of your loss x

We will be having a support group meeting for those living with MND and their carers on Saturday 22 August 2015 at 2pm to 4pm.

The venue is Church End in Lewes. Come along and say hello :)

If...

So sorry to hear your news. Will be thinking of you and yours x

I know what you mean Nettie. There doesn't seem to be enough support or follow on for bereaved carers.

Just a little 'bump' as we have our Support Group Meeting this Saturday....there will be cake!

Glad you've got the creams Anna, Cavilon worked wonders on an area Dad had that was deemed stage 1.

There are special creams that you can get on prescription which help if you don't have them already. Proshield is one and this is better used as a preventative. If you have what could become a...

We will be having a support group meeting for those living with MND and their carers on Saturday 20 June 2015 at 2pm to 4pm.

Please note that the venue will now be Church End in Lewes. Pop the...

Most local branches have support group meetings for those with MND and their carers. I'm not sure what area you're in but your local branch will be able to let you know and many of them post in the...

I would suggest that this is opened up to bereaved carers, we have invaluable experience and insights that can be shared.

I was worried about going to see Dad but I'm so glad I did. Seeing him back in his 'normal' clothes and not in pj's etc meant I was left with an image of the Dad that I remembered before...

I remember when my dad was diagnosed the whirlwind of people coming and going was really tough.....telling you things but in all honesty most of them next to no help. This forum was my...

I used to do it for my Dad it was a good 'benchmark' if you like.

We will be having a support group meeting for those living with MND and their carers on Saturday 25 April 2015 at 2pm to 4pm.

Please note that the venue will now be Church End in Lewes.

If...

I think donating it to the MNDA is a great idea....who better to make sure it gets to someone who really needs it.....my Dad's one was loaned to him by the MNDA :)

I certainly do think it's postcode dependant. If your mum has a nurse offering weekly visits I'd take it! All Dad got was the consultant from the hospice come round now and again and when I tried...