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  1. Replies
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    It is surprising what we celebrate although I...

    It is surprising what we celebrate although I initially read this as mashed potato in yogurt ! Hmm!

    My good thing this week has been sitting in the sunshine. It was my husband's birthday...
  2. Thread: Motability

    by Deb
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    5
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    228

    Hi Breemer , We have a Peugeot Horizon...

    Hi Breemer ,

    We have a Peugeot Horizon provided by Allied mobility, under the motability scheme. We could have two named drivers on the insurance so one is my husband and the other our eldest...
  3. Thread: Progression

    by Deb
    Replies
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    Hi Matthew, As Lynne said, progression is...

    Hi Matthew,

    As Lynne said, progression is different for everyone and almost impossible to predict. When I first met my MND nurse she said that everyone she knew with MND was on a different...
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    Hi Matthew and a warm welcome to the forum from...

    Hi Matthew and a warm welcome to the forum from me !

    I am very sorry for your recent diagnosis and that you're losing your voice. It's good you've found the forum because it's a good place for...
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    I've signed it. So sorry for your problems...

    I've signed it.

    So sorry for your problems music man 's wife. It sounds very difficult.

    Love Debbie x
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    Hi Haylis and Kate, As Ellie said theres...

    Hi Haylis and Kate,

    As Ellie said theres definitely no such thing as giving up too soon. I think us folks with MND are the opposite and tend to persevere with things until they are becoming...
  7. Thread: Feeling Brave

    by Deb
    Replies
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    1,112

    Welcome to the forum Tess and well done for...

    Welcome to the forum Tess and well done for taking this step and being brave.

    I am so sorry for your boyfriend's diagnosis. It's such a shock even if it is expected. I remember feeling totally...
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    Hello Andrew and a warm welcome to the forum. ...

    Hello Andrew and a warm welcome to the forum.

    I am so sorry for your diagnosis this morning but well done for posting on here so soon. Even if an MND diagnosis is suspected it's still a huge...
  9. Thread: Tips for dressing

    by Deb
    Replies
    9
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    1,170

    Hi Sarah and a warm welcome to the forum from me....

    Hi Sarah and a warm welcome to the forum from me.

    I am so sorry for your mums diagnosis and that she is having such problems. It must be heartbreaking for you both.

    It's good that she's...
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    That's great news Doug and I am glad you're...

    That's great news Doug and I am glad you're feeling better,

    I have a salsa mini chair like yours and it is comfortable enough for me to spend all day in and transfer to my riser recliner in the...
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    Hello David and welcome to our friendly forum. ...

    Hello David and welcome to our friendly forum.

    I am very sorry for your diagnosis.. It took me a while to come to terms with mine and it must make it especially difficult for you during this...
  12. Thread: Moving house

    by Deb
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    1,121

    That's great news Andy, Good Luck .. hope...

    That's great news Andy,

    Good Luck .. hope everything goes well for you. Take Care and try not to do too much. .

    Love Debbie
  13. Thread: Als

    by Deb
    Replies
    11
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    2,867

    Hi Puddy, I am so sorry that Nigel's...

    Hi Puddy,

    I am so sorry that Nigel's progression has been so swift. I am not a carer but I appreciate how utterly heartbreaking it must be to see your husband struggling. It's good you are able...
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    Hi Doug, So sorry you've been noticing...

    Hi Doug,

    So sorry you've been noticing changes. I agree how sneaky MND is ( that's a polite word !) .. We are looking for changes we expect and an then unexpected one crops up. I cant turn In bed...
  15. Thread: Hip pain

    by Deb
    Replies
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    1,174

    Hi Mowbray, I am sorry you have hip pain. Life...

    Hi Mowbray,

    I am sorry you have hip pain. Life is hard enough with MND so I do hope you get to the bottom of what's causing it.

    I dont know if this is relevant to you but I had really bad hip...
  16. Thread: Hello

    by Deb
    Replies
    8
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    1,243

    Hi Elvisfan and a warm welcome to the forum from...

    Hi Elvisfan and a warm welcome to the forum from me.

    I am so sorry for your diagnosis but I'm glad you've found the forum as it's a good place for friendship and support. I was a primary school...
  17. Thread: Please help

    by Deb
    Replies
    12
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    1,780

    Hello Sarah, I am sorry you feel so scared and...

    Hello Sarah,

    I am sorry you feel so scared and anxious. I am no expert on bulbar onset as my mnd is limb onset but nothing I have seen or read sounds like what you're describing. As Ellie has...
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    Hi Lesley, So sorry to hear your mum's...

    Hi Lesley,

    So sorry to hear your mum's operation has been postponed. This must be so scary and upsetting for the both of you and I really hope she gets it done soon.

    In the meantime, I hope...
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    Hi David and a warm welcome to our friendly forum...

    Hi David and a warm welcome to our friendly forum from me.

    I am so sorry for your diagnosis last year but thank you for your positive posts about your RIG. It's really reassuring to read this and...
  20. Hello and a warm welcome to the forum, I am...

    Hello and a warm welcome to the forum,

    I am so very sorry for your very sad post. How you feel is totally understandable and it must feel impossible for you at the moment. I am sure there must...
  21. Thread: Hello everyone!

    by Deb
    Replies
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    4,985

    Hi Peanut and a very warm welcome to our friendly...

    Hi Peanut and a very warm welcome to our friendly forum.

    I am very sorry for your diagnosis. Like you it took me over a year to be diagnosed and I was referred to a multiskelital clinic and...
  22. Thread: New member!

    by Deb
    Replies
    7
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    1,789

    Hi Hazel and a warm welcome to the forum, I...

    Hi Hazel and a warm welcome to the forum,

    I am sorry about your diagnosis and also to read about your husband. As Ellie says, that's a tough hand in life.

    It sounds like you have a really...
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    Hello GG and a warm welcome to the forum from me,...

    Hello GG and a warm welcome to the forum from me,

    I am so sorry for your diagnosis but glad you have found our forum. It's a good place for practical advice on living with MND and emotional...
  24. Hi Leanne and a warm welcome to the forum, I...

    Hi Leanne and a warm welcome to the forum,

    I am really sorry for your mum's diagnosis. It's such a dreadful shock for everyone so I hope you're all getting as much support as possible. Within...
  25. Thread: Terry

    by Deb
    Replies
    114
    Views
    18,679

    It's heartbreaking to hear about the loss of...

    It's heartbreaking to hear about the loss of Terry.

    Terry has been an inspiration to so many families affected by MND over the years with his positivity and sound advice. He was always one of the...
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