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Type: Posts; User: Doug Carpenter

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    OK, there are very few good things around to...

    OK, there are very few good things around to celebrate at the moment……

    But sitting in the garden this morning in a T-shirt in the gorgeous Spring sunshine, looking at the bulbs and listening to...
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    Death rates

    I do not, repeat NOT, wish to detract in any way from the terrible seriousness of the Covid19 pandemic, for people in general and for ourselves in particular.

    I find the blizzard of numbers we are...
  3. Thread: Dreams

    by Doug Carpenter
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    Thank you for your interesting replies folks. ...

    Thank you for your interesting replies folks.

    It’s clear we dream in very different ways, but often with no reference to our MND.

    Lynne – your ability to control your dreams is amazing!
    ...
  4. Thread: Dreams

    by Doug Carpenter
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    Dreams

    I think Ive always dreamed a reasonable amount, with the usual problem of not being able to recall most of them on waking.

    Since diagnosis, I dont think the frequency of dreams has changed much,...
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    It's good to see this, indicating the MNDA's...

    It's good to see this, indicating the MNDA's level of concern.

    By "calling on the Government" I hope they mean they are in direct contact with whoever is controlling the register and getting MND...
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    Many thanks, Guy, for that very helpful link. ...

    Many thanks, Guy, for that very helpful link.

    As you say, easy!

    Doug
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    Many thanks for the detailed info, Ellie, and the...

    Many thanks for the detailed info, Ellie, and the link to the main document.

    My personal view is that the only prudent thing to do is to regard ourselves as part of that vulnerable shielded group....
  8. Thanks, Lee, for speaking up for us to the DWP ...

    Thanks, Lee, for speaking up for us to the DWP

    Doug
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    Mothering Sunday reflections

    My mum died of breast cancer when I was a teenager. I still remember the smell and feel of the cotton aprons she wore, like most working-class women in the forties and fifties. She was beautiful....
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    Thanks Barry! I hadn't heard it. Very...

    Thanks Barry!

    I hadn't heard it.

    Very appropriate somehow.

    Re. Kayleigh - ditto

    Doug
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    Absolutely priceless!! Thank you, Ellie. I...

    Absolutely priceless!!

    Thank you, Ellie. I haven’t laughed so much since somebody told me about Tassles, which, though delicious, are not a biscuit I believe.

    Hugs

    Doug
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    A narrow escape?

    I may have just had a narrow escape.

    A little under three weeks ago I visited one of my physios for a final steroid injection for my painful shoulder. This one, thank God, seems to have worked, in...
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    MND-SMART update - coronovirus effect

    I've just received the following email from the MND-SMART management team:

    In response to the rapidly evolving circumstances surrounding Coronavirus (COVID-19) we have, in accordance with guidance...
  14. Thread: Douglas

    by Doug Carpenter
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    So sorry Chrissie. Please accept my...

    So sorry Chrissie.

    Please accept my condolences and a hug.

    As Ellie said, you arranged things as he wanted. Nobody could have done more.

    Doug
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    Oh Chrissie! It breaks my heart to read that....

    Oh Chrissie!

    It breaks my heart to read that.

    All I can do is send you both the biggest of hugs and much love.

    He is at least at home where I'm sure he wants to be.

    Thinking of you both.
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    Hi Boden Very sorry about your dad. Yes, I...

    Hi Boden

    Very sorry about your dad.

    Yes, I think you should talk to somebody about your own very understandable feelings. See it as a positive thing. You must look after yourself so that you...
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    Spring sunshine

    This morning, for the first time in three weeks, I sat outside on my walker in beautifully warm sunshine. It was gorgeous! Many bulbs were up and flowering and you could believe Spring was round the...
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    Yes and yes. Doug

    Yes and yes.

    Doug
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    Mnd-smart

    A little while ago I registered interest in MND-SMART, without any great expectation of being able to take part.

    Ive just received from them the email below, which gives a useful update of how...
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    Well done Barry - very brave! I've put a few...

    Well done Barry - very brave!

    I've put a few pennies in your tin.

    Doug
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    Well done Sar. A truly ripping yarn! Doug

    Well done Sar.

    A truly ripping yarn!

    Doug
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    No. But I have sent her a very concerned PM...

    No.

    But I have sent her a very concerned PM and will let you know the instant I hear anything, if I do. I am very, very worried!

    It is just conceivable she's taking a fortnight's holiday with...
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    Hi Barry No. It looks like her last post...

    Hi Barry

    No.

    It looks like her last post was on February 10th, which is a worryingly long time ago that I hadn't noticed.

    Thank you for alerting us. I hope she's ok.

    I'm worried now!
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    TV programme

    Last night's BBC2 programme Hospital featured an MND patient.

    Doug
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    I seem to have successfully brought a new desktop...

    I seem to have successfully brought a new desktop computer (Windows 10) into use in place of my old Windows 7 machine, which is about as slow as I am. This involved transferring over 100Gb of data.
    ...
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