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  1. Replies
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    Hi Ellie yes it is a smooth liquid and you have...

    Hi Ellie
    yes it is a smooth liquid and you have to keep it in the fridge x I have been having it in liquid form for 12/18 months
    love Sarah xx
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    PS I also take Lansoparazole but in liquid form...

    PS I also take Lansoparazole but in liquid form in my PEG x
  3. Replies
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    Hi Sarah I feel for you. I have just recovered...

    Hi Sarah
    I feel for you. I have just recovered (fingers crossed ) from two months of dreadful constant diarrhoea. It started for no conceivable reason and I ended up in hospital for a week. I had...
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    Thanks Ellie x

    Thanks Ellie x
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    Thanks everyone I do have the headmaster collar...

    Thanks everyone
    I do have the headmaster collar but it is very uncomfortable and hurts my chest. My Physio is coming on Tuesday so I will ask her to order one. Ellie did your Physio fit it or were...
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    Head up neck support

    Hi everyone

    I hope that everyone is coping with the dreary winter weather x I wondered if anyone is using the head up neck support? I really need a comfortable and supportive support for when I...
  7. Replies
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    Hi Hayls I have had a PA for about 4 years and...

    Hi Hayls
    I have had a PA for about 4 years and it has worked very well. I started with someone 3 days a week and over the years it has risen to 5 days. I have been in receipt of Direct Payments and...
  8. Replies
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    Pure therapy in a little body Ellie x I am so...

    Pure therapy in a little body Ellie x I am so lucky x
  9. Replies
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    5,620

    Dear Sarah I don't think that this time of the...

    Dear Sarah
    I don't think that this time of the year helps either because we are all stuck indoors too much x I do find that even ten minutes sat in the garden watching the birds and the dogs gives...
  10. Thread: So tired

    by slp
    Replies
    45
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    6,188

    Isn't it wonderful to see signs of spring and...

    Isn't it wonderful to see signs of spring and when the days start to drag out you know that you have nearly got winter behind you. Although I see that there may be snow on the moors tonight

    I...
  11. Thread: So tired

    by slp
    Replies
    45
    Views
    6,188

    Hi Ellie I am really fed up with it but I am...

    Hi Ellie

    I am really fed up with it but I am more concerned about being on so much imodium every few hours every day but my GP (who is brilliant and comes to the house regularly ) and my dietitian...
  12. Thread: So tired

    by slp
    Replies
    45
    Views
    6,188

    Hi Terry I am so sorry to see that you have...

    Hi Terry

    I am so sorry to see that you have been in hospital and I read that you lost a lot of weight, maybe that could be making you feel tired?

    I have been in hospital too for a chronic...
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    Hi Andy I have been trying to remember the...

    Hi Andy

    I have been trying to remember the things that helped me as various parts of the body ceased to function as they should
    It is is quite hard to recall but as my hands and arms stopped...
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    Hi Sue I can't use the hand controls on my...

    Hi Sue

    I can't use the hand controls on my wheelchair any more either but I had a control fitted that I can operate with my chin which is amazing but I can't use it despite my best efforts !...
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    Thanks Terry and Ellie I am hoping to go on...

    Thanks Terry and Ellie

    I am hoping to go on the 23rd just trying to drag Ian away from work ,we have a haulage company based from home and he is a workaholic !

    I will contact the people you...
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    Thanks Debbie We have travelled quite a lot...

    Thanks Debbie

    We have travelled quite a lot in the last few years and have had very good experiences of the assistance and have found it very easy

    My concern is taking a suitcase full of...
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    Travelling with liquid food Advice please

    Evening all

    I am thinking of booking a week away at the end of the month for much needed sun for me and a rest for Ian my husband

    However things have changed since our last holiday because I...
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    Hi Amanda That sounds like a good start , my...

    Hi Amanda

    That sounds like a good start , my pump etc is arriving tomorrow and my lovely nurse is coming to set it up

    I am looking forward to getting started !

    I hope that tonight goes...
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    Maybe we can share some ideas? I like salmon...

    Maybe we can share some ideas? I like salmon with mayo and spring onions chopped up small , I crave a bit of flavour ,chicken sliced never cubed , mixed with mayo and pesto, I only eat a little bit...
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    Hi Icecream is a funny one isn't it because...

    Hi

    Icecream is a funny one isn't it because some bits can melt and cause coughing and I have to hold it in my mouth for a while and then swallow , I find custard and yogurt easier

    It's...
  21. Replies
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    hi Pink how much do you have over 24hrs? and...

    hi Pink

    how much do you have over 24hrs? and what do you have? it is not fun being so skinny!
    best wishes

    Sarah x
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    Thanks everyone Terry at the moment I have 3...

    Thanks everyone

    Terry at the moment I have 3 bottles of Fresubin 200ml 400calories daily although my dietitian would like me to have 4 but anymore leaves me feeling very sick on top of meds
    I...
  23. Replies
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    Peg feed advice please

    :o
    Hello lovely people

    I have been using my peg almost entirely for 5 months having daytime syringe feeds but I am losing weight still so I am thinking about trying overnight feeding to get more...
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    Hi I know exactly what you mean Terry I have...

    Hi

    I know exactly what you mean Terry I have the same limitations and that is why I am interested in this device x

    Barry that is great news I am looking forward to hearing more x

    love Sarah
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    Hi Lynne I hope you have had a good day in the...

    Hi Lynne

    I hope you have had a good day in the sunshine , it was a lovely day x

    Sarah x
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