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Type: Posts; User: Barbara M

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  1. Replies
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    Thank you to everybody who has responded to my...

    Thank you to everybody who has responded to my question. Lots of food for thought!
    I'll let you know how I get on.. . . . .
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    Saliva problems

    I have bulbar onset ALS and recently have had a PEG fitted. I am finding it very difficult to swallow anything now - I manage one cup of tea (with thickener) per day and maybe a little white bread...
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    Thickening drinks

    Hello.
    I have bulbar onset ALS and have to thicken drinks to be able to swallow them. I also have to sweeten them. But I find that in spite of this, the drinks seem to be very bitter, especially if...
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    Thanks to everybody for all this helpful and kind...

    Thanks to everybody for all this helpful and kind information. I'm sure I'll have more questions!
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    Thanks to everybody for really helpful replies....

    Thanks to everybody for really helpful replies. I've requested the PEG.
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    Thanks everybody for helpful replies. I'll try...

    Thanks everybody for helpful replies. I'll try the Mucadyne. I'd also love to know how people get along with a PEG. I'm finding it very difficult to get enough fluid and nutrition into me and I've...
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    bulbar onset - catarrh problems

    I was diagnosed with bulbar onset ALS about 6 months ago - still getting used to it!
    I have terrible problems with catarrh - hawking and spitting all the time and coughing a lot. Does anybody have...
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