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I think we can all hear plain as day that this is not really robyn speaking anywhere in these scripted statements I completely agree.

shame as i agree these 'corporate' responses as G60 puts it...

Thank you for letting us know about this. Are any carers welcome to take part? I may have a read of the survey tonight when hubbie has gone to sleep.

Jenny

I'm really sorry to hear this news. My thoughts are with you and your family.

Jenny

Thanks for the recommendation. I started this book and put it down when I couldn't find the time. Maybe I should make time.

Jenny x

for the mnda or for dyslexia awareness? a double whammy maybe!

Hello from me too and thanks for all your efforts

Jenny

sorry for taking so long to reply! Fridays seem to be the best time for me to have a few spare moments :)

Rachel, I noticed my husbands symptoms before he did too. I didn't say anything at the...

I don't know how this will sound so bare with me! I think it's numbers. How many people do you see at branches or in fundraisers that have been personally affected by mnd? When something touches you...

Really sorry to hear that Alan. Thank you for your support to the rest of us PALS and carers in the time youve been here too.

Jenny

Hi All,

I was reading Pete's thread here http://forum.mndassociation.org/showthread.php?1119-First-signs&p=8103#post8103

and I wondered about this question.

How long was it from the time you...

Thanks for this thread. Really helpful to us.

Jenny

We can send prayers for everyone, Elle. Sometimes I find it helps to think about other peoples troubles and not just our own. I hope that makes sense and evreyone reading this is doing well.

Jenny

I found a thread I added to a while ago now. There is some info from the mnda research info in it here

http://forum.mndassociation.org/showthread.php?398-Does-Cannabis-help-with-living-with-MND
...

I'd like to echo that, Persevering. Thank you so much for hosting things like this MNDA, and for everything else that you work towards as well.

Jenny

:D:D;)

A big Thanks to Robyn!!!

And a big hello to Vikas

PS. Thanks for finding the font sizes, Batty! :)

Sorry, I really came on to say hello to Vikas :)

please don't bother spamming our forum. the moderators are really great at moving your stuff anyway. I've reported this post and it will be gone within an hour I'll bet!! Stop wasting everyones time,...

Mata,

Please do not feel guilty hen you get down or reach the end of your tether. I often feel like that and it does not mean you love the person you are caring for any less. please remember that...

the sooner there is a definite test for mnd, the better :(

John,

I would try the tonic water... bt maybe put some gin in it, too!

I would maybe suggest your gp rings the MNDA. i know they help health professional peolpe too. we spoke to them about my...

Hi Jeannie,

I wondered this. The only one we know about is the MNDA and they have been fantastic to us so i agree with Barefoot John and Sarah. I'd be interested to know any other charities that...

we don't have any experience on this, we havent discussed it yet. but thank you to you all for giving some really good advice here.

Jenny

Some great work going on :)

Jenny

Welcome to the forum, Laurence.

I care for my husband. Our children are not living with us any more and are all grown up. I feel so much for you all who feel that you may be missing out on their...