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    Treelover's passing

    Hi all, this is Pat's (aka Treelover) son Dan updating on behalf of Pat. We are sorry to say that our Pat finally lost her battle with MND late yesterday afternoon. She died peacefully at home as she...
  2. Thread: Powerchairs

    by Treelover
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    3,661

    I've got a Spectra XTR with seat riser, 30cm, and...

    I've got a Spectra XTR with seat riser, 30cm, and recline. I use it indoors mainly but it's fine outdoors if it's a decent surface. My legs were not up to standing so the Genie would not have suited...
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    I found my first visit difficult. It's a new...

    I found my first visit difficult. It's a new environment. But I went again and grew to enjoy it. Don't worry if you are not on time, they don't mind at all. He will be spoilt by the carers, and you...
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    Link with Parkinsons Disease?

    In a Christmas card my 60 year old cousin told me he has recently been diagnosed with Parkinson's. An uncle to both of had Parkinson's and my dad, not related to my cousin, had it too. I developed...
  5. Thread: Hospice

    by Treelover
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    7,309

    That was the one I told you about Joycie. I found...

    That was the one I told you about Joycie. I found it to be really good. Try ebay for a second hand one maybe as they are quite expensive. I got the tray too and could wheel it about with a cup of tea...
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    Yes Terry, I have a voice amp but it's not good...

    Yes Terry, I have a voice amp but it's not good for the phone and I have a complicated phone that opens the door and acts as an internal intercom. You are full of bright ideas!
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    I think if depends if you have bulbar issues or...

    I think if depends if you have bulbar issues or are bulbar onset. I have ordinary ALS with little bulbar involvement after nearly 3 years so all those SALT and breathing visits were not needed. I...
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    I think you are right to question whether these...

    I think you are right to question whether these appointments are necessary or beneficial. I opted out of most but left a channel open to ask for one if things changed. The consultants were all quite...
  9. Thread: Catheter

    by Treelover
    Replies
    5
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    3,980

    Just another thought, my tube looks just like...

    Just another thought, my tube looks just like Karena 's picture of her peg in today's posts. Clean little hole, no dressing.
  10. Thread: Catheter

    by Treelover
    Replies
    5
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    3,980

    Hi Michael, I had a supra pubic catheter fitted...

    Hi Michael, I had a supra pubic catheter fitted in May this year at my request. It was a straightforward procedure under a spinal block, took about half an hour. It's easier if you are slim...
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    Yes I had one with a seat and a tray. I used it...

    Yes I had one with a seat and a tray. I used it indoors mainly. I have limb onset ALS so one leg and one arm were the first things to go and I was dangerous outdoors even with the walker. I found it...
  12. Thread: MNDA Help

    by Treelover
    Replies
    14
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    5,139

    Same here Trevor. Our family has raised over...

    Same here Trevor. Our family has raised over 30,000 for MNDA and hope it goes to research and to help those that can't afford the aides that we can buy.
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    Have a look at the Topro Troja range. Really...

    Have a look at the Topro Troja range. Really light and fold down well and look better than most.
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    Jeannie, it's good to have you back, you have so...

    Jeannie, it's good to have you back, you have so much knowledge.
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    My powerchair caused ripples in the carpet in our...

    My powerchair caused ripples in the carpet in our bedroom. The fitters took it up and used a sticky underlay to refit it. I think hard flooring may make a lot of sense if you are having to start...
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    Yes Terry, I use micropore tape, it works a...

    Yes Terry, I use micropore tape, it works a treat. My mouth stays moist all night. Mind you I don't have excess saliva just weak jaw muscles letting my mouth drop open. I am able to put it on and...
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    We have a low profile shower tray and you can...

    We have a low profile shower tray and you can tile level to it so no step. We have a large enclosure with a wide door so the shower chair pushes in. I've found wet rooms in hotels to be very wet! All...
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    As a sufferer I have had to accept all the aides...

    As a sufferer I have had to accept all the aides but..... In my time. I did not want to be rushed into anything and once I needed things they were invaluable. I think maybe let him make the requests...
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    Our house insurance covered my scooter for theft...

    Our house insurance covered my scooter for theft and third party damage at no extra charge. I just told them I had it. It probably depends on your own policy but worth asking. We are with NFU.
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    Hi, I have one very similar for travel use. It...

    Hi, I have one very similar for travel use. It was great indoors and to take to family events when I was less disabled. It's not good now as it offers little support, I got it second hand and used it...
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    We bought ramps from Portaramp, they are based...

    We bought ramps from Portaramp, they are based near us so we were able to collect direct. They are very light but strong and we have 3 of different lengths used both inside and out. They are very...
  22. Hi Lynne, the seat riser lifts by 12 inches, the...

    Hi Lynne, the seat riser lifts by 12 inches, the chair can still be driven when lifted but only slowly. I can stir things on the hob and reach taps and things too.
  23. I used a manual chair for a year before I got the...

    I used a manual chair for a year before I got the powerchair. Usually for trips outside using a stick then a walker indoors. I couldn't push myself due to one arm being much weaker than the other. It...
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    Hi Alison, I, in frustration at delays, emailed...

    Hi Alison, I, in frustration at delays, emailed my County Councillor( Suffolk). She happened to be the chair of the Health and Wellbeing committee! I told her a little of my condition and the rapid...
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    The Blue badge really comes in when your legs are...

    The Blue badge really comes in when your legs are going. The eligibility depends on your mobility really, it covers many diseases and conditions. You have to be unable to walk more than 50 yards I...
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