Search:

Type: Posts; User: Shaun

Page 1 of 2 1 2

Search: Search took 0.23 seconds.

  1. Thread: Hello everyone!

    by Shaun
    Replies
    29
    Views
    5,027

    Welcome Peanut, It took me two years of...

    Welcome Peanut,
    It took me two years of dropping stuff and not being able to grip before eventually seeing the GP about 'my hands don't work properly` I was fortunate to see head of physio who...
  2. Thread: In Denial

    by Shaun
    Replies
    18
    Views
    3,438

    Dear Madge, we are all with you, you are not...

    Dear Madge, we are all with you, you are not alone, and soon you will be able to get out on your scooter causing mayhem in your local high street, running over small children and their mother's as...
  3. Replies
    4
    Views
    1,092

    Hello john, I must be sad, but I quite like the...

    Hello john,
    I must be sad, but I quite like the tingling in my calfs, like to think that it's all working , that's what I want to think please don't tell me different. Vitamin B supplements may...
  4. Replies
    7
    Views
    1,461

    Hi, Hayles post is also worth remembering about,...

    Hi, Hayles post is also worth remembering about, I have both Android and iPad , the android is a bit more temperamental
  5. Replies
    7
    Views
    1,461

    Hmmmmm ,scratching my head, sorry I don't have...

    Hmmmmm ,scratching my head, sorry I don't have any other ideas
    You are showing basic profile details , interests, diagnosis location etc,,
    Has anyone else out got a suggestion?
  6. Replies
    7
    Views
    1,461

    Beemer It's to do with number of posts as you...

    Beemer
    It's to do with number of posts as you have gone past 5 today you should now have access
    Shaun
  7. Replies
    7
    Views
    1,632

    Hello DB Sorry you've had to join us, but...

    Hello DB
    Sorry you've had to join us, but hopefully knowing that others have gone through the same rollercoaster of thoughts and worries, you know you are not alone. Acceptance is hard but try to...
  8. Replies
    45
    Views
    14,460

    Hello Lee , thanks for the 'The Gift' of your...

    Hello Lee , thanks for the 'The Gift' of your blog, just to keep the Paul Weller theme going,
    Just to ,'start' it's good that you have 'All mod cons' that keep you 'Mr Clean'
    'that's...
  9. Replies
    5
    Views
    1,417

    Hi on a slightly positive note, My local council...

    Hi on a slightly positive note, My local council are building 14,yes14 bungalows, specially adapted for disabled, wide door ways, open plan, wet room etc, however they are 50k more than a standard...
  10. Thread: Water Cooler

    by Shaun
    Replies
    4
    Views
    1,238

    Hi DD Have you thought about a sensor tap, have...

    Hi DD
    Have you thought about a sensor tap, have a look at
    http://www.uktap.co.uk/led-spout-taps/297-sensor-tap-automatic-touchless-chrome-led-kitchen-tap.html, (others are available)
    It's just...
  11. Thread: Flail arm

    by Shaun
    Replies
    31
    Views
    9,577

    Hello Barry I'm not sure how I'm going to fair...

    Hello Barry
    I'm not sure how I'm going to fair this season as my shoulder is playing up but determined to try, can always rely on ibuprofen and codeine to numb the pain, it worked last year.
    Whilst...
  12. Thread: Flail arm

    by Shaun
    Replies
    31
    Views
    9,577

    Hello DD, Thanks for letting me, so hopefully...

    Hello DD,
    Thanks for letting me, so hopefully I've got a couple of years of golf left, have just enough grip on right hand,
    Never got faciclations in my arms but they have started in my legs over...
  13. Thread: New to site

    by Shaun
    Replies
    6
    Views
    1,318

    Hello Jerry Sorry you've had to join but I have...

    Hello Jerry
    Sorry you've had to join but I have found lots of help and hints and tips on this forum from people who know what you are going through
    S
  14. Replies
    10
    Views
    2,074

    Hello Arta I was diagnosed 4month's ago and it's...

    Hello Arta
    I was diagnosed 4month's ago and it's information overload ,I spent all of December planning everything from pet insurance plans to funeral plans and it was getting me down, so I...
  15. Thread: New Guy :)

    by Shaun
    Replies
    11
    Views
    3,919

    Hello Beemer the dreaded buttons, have you spoke...

    Hello Beemer
    the dreaded buttons, have you spoke with your MNDA visitor, they may be contact with a local tailor/seamstress that can make alterations, or they may be able to supply you or recommend...
  16. Thread: TV programme

    by Shaun
    Replies
    4
    Views
    1,127

    Hello Barry , don't think it's just NE, there...

    Hello Barry ,
    don't think it's just NE, there will be little pockets all over the country, I live in the West, a unitary authority area with it's own CHC and I will potentially have to rely on MNDA...
  17. Thread: Flail arm

    by Shaun
    Replies
    31
    Views
    9,577

    Hello HC & DD Flail limb diagnosed in November,...

    Hello HC & DD
    Flail limb diagnosed in November, had two years of hand and shoulder issues before getting it looked at.
    13 years , can I ask DD , how you are? My cons says I have slow progression...
  18. Replies
    9
    Views
    2,636

    Hello Andy Regarding money, only because, just...

    Hello Andy
    Regarding money, only because, just been through this with my in-laws (alzheimers, all go in our family) make sure it goes into your partner's account , social services cant touch it. We...
  19. Thread: ALS for Dummies

    by Shaun
    Replies
    2
    Views
    992

    Hello Doug Thanks for posting the link, some...

    Hello Doug
    Thanks for posting the link, some interesting ideas and blunt personal points from him. Perhaps more suited for those of us at the beginning of this journey, as many of the senior...
  20. Replies
    8
    Views
    1,823

    Hello Andy I'm in similar circumstances recently...

    Hello Andy
    I'm in similar circumstances recently diagnosed, for the first few weeks it all you can think about, it does ease a bit, once you accept it and more information becomes availble, the guys...
  21. Replies
    7
    Views
    2,105

    Hello all, thanks for all the advice, There are...

    Hello all, thanks for all the advice,
    There are 2 care centres both within an hours drive, I thought these were for people who lived there, didn't realise they were open to all.
    I have looked at...
  22. Replies
    7
    Views
    2,105

    Hello Lynne My neurologist is part of the...

    Hello Lynne
    My neurologist is part of the medicine for elderly department ,so an add-on for MS and MND customers (don't like the patient word) and I'm only 58
    When I asked him about OT he suggested...
  23. Replies
    7
    Views
    2,105

    Advise please,next steps

    Hello MND connect
    Background summary: diagnosed Nov 2019, ALS flail limb (2 years undiagnosed). Slow progression
    No immediate concerns, carrying on pretty normally, still working.
    Have seen...
  24. Replies
    10
    Views
    2,452

    Hello again Jacqui? Just thinking about your...

    Hello again Jacqui?
    Just thinking about your chewing, perhaps they considered swalllowing may cause issues, riluzole can be crushed but think it may not be as good. It is monitored for liver and...
  25. Replies
    10
    Views
    2,452

    Hi Regarding cost of riluzole (Rilutek) 1x56...

    Hi
    Regarding cost of riluzole (Rilutek) 1x56 50mg . Just under a month's dosage is 242.39 (excl VAT)
    My consultant prescribed me 3 month's worth on diagnosis day, bargain for prescription fee of...
Results 1 to 25 of 28
Page 1 of 2 1 2