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  1. Replies
    6
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    259

    Ellie your needy dog must come first as they have...

    Ellie your needy dog must come first as they have yet to learn how to feed themselves.

    Love,
    Barry x
  2. Thread: 10k

    by Barry52
    Replies
    18
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    636

    Great photos Lynne and well done to all who made...

    Great photos Lynne and well done to all who made the effort on our behalf.

    Barry xx
  3. Thread: 10k

    by Barry52
    Replies
    18
    Views
    636

    Hi Lynne, Because the group is a closed...

    Hi Lynne,

    Because the group is a closed membership the link you attached only opens the primary page so we can’t see any photos. You could copy and save the photos to a file and post it on the...
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    259

    Hi Chas, Whilst I have no personal experience...

    Hi Chas,

    Whilst I have no personal experience of the aid my friend uses one and she thinks it is marvellous. I understand that the MNDA gave her a grant towards the cost which you elude to is...
  5. Thread: 10k

    by Barry52
    Replies
    18
    Views
    636

    Hi Lynne, Well done to them for raising money...

    Hi Lynne,

    Well done to them for raising money and awareness of our charity. My daughters and granddaughter do a lot of fundraising and it makes me proud.

    Best wishes,
    Barry
  6. Thread: Hello

    by Barry52
    Replies
    7
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    471

    Hi Chris and welcome. As Ellie suggested you...

    Hi Chris and welcome.

    As Ellie suggested you may have the slower progression MND and like myself 8 years in you learn to adapt. Of course this doesn’t mean that you won’t have challenges as you...
  7. Replies
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    948

    Hi Sarah and welcome to the forum family. ...

    Hi Sarah and welcome to the forum family.

    Sorry you have been diagnosed with MND but you will find support and advice here. I know the voice banking is laborious but it is worth the effort. Lynne...
  8. Thread: Ventilation

    by Barry52
    Replies
    137
    Views
    11,475

    Hi Dina, I’m saddened to hear that you are...

    Hi Dina,

    I’m saddened to hear that you are still in hospital and mainly because social services haven’t got their act together. You have always come across as a glass half full girl so it is sad...
  9. Thread: Football

    by Barry52
    Replies
    28
    Views
    1,607

    Enjoyed England beating Bulgaria 4 -0. The...

    Enjoyed England beating Bulgaria 4 -0.

    The Aussie’s have taken the ashes and I agree with CC that American football is painful to watch. All those adverts!!

    Barry
  10. Thread: New

    by Barry52
    Replies
    12
    Views
    1,173

    Hi Emma and welcome. Sorry to hear that your...

    Hi Emma and welcome.

    Sorry to hear that your partner has been diagnosed with this dreadful disease and please let him know that he will get a warm welcome should he feel like introducing himself....
  11. Replies
    338
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    89,309

    If only I could grow dreadlocks Dina but I did...

    If only I could grow dreadlocks Dina but I did have long hair in the 60’s and it strangely disappeared in the 70’s.

    Since Kayleigh mentioned wheelchair dancing it reminds me of our son’s wedding 2...
  12. Replies
    338
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    89,309

    Hi Dina, I expect you are all tucked up in bed...

    Hi Dina,

    I expect you are all tucked up in bed now having been ejected from the nightclub for hogging the dance floor and wrecking the place. You are now permanently banned from the establishment...
  13. Replies
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    7,635

    Hello Daisymeg, So sorry to hear about your...

    Hello Daisymeg,

    So sorry to hear about your husband and thank you for informing us. Condolences to you and your family.

    Barry
  14. Thread: Rch4

    by Barry52
    Replies
    364
    Views
    88,176

    Maybe the MNDA would like to sponsor this “wonder...

    Maybe the MNDA would like to sponsor this “wonder drug” company since they have run out of funding, but only if it would help us, their members. I appreciate it is not an approved drug and I recently...
  15. Replies
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    3,191

    Yes Dina it was the A303 and we were heading to...

    Yes Dina it was the A303 and we were heading to Yeovil. We took a taxi from the hotel into town for dinner but they sent a people carrier so you can imagine me trying to get in. My wife and the...
  16. Replies
    39
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    3,191

    Hello Dina, After Terry’s tale of wind, I...

    Hello Dina,

    After Terry’s tale of wind, I relate my weekend which I hope is more uplifting (wind required).

    We set off on Friday for a 140 mile drive to Newbury where we spent the night to...
  17. Replies
    2
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    407

    Flu vaccination

    Hi everyone,

    I was reminded that it will soon be flu season when I went to my surgery yesterday. Most surgeries are starting the flu vaccination in September and it is important for those with MND...
  18. Replies
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    1,316

    Hi Sue, I’m sorry to hear that Steve is in...

    Hi Sue,

    I’m sorry to hear that Steve is in hospital and please give him my best wishes. I did miss our usual chat at the last meeting.

    I agree with Lynne that the care agency should insist that...
  19. Thread: Hi Everyone

    by Barry52
    Replies
    8
    Views
    999

    Hello Adam and welcome. If you have looking in...

    Hello Adam and welcome.

    If you have looking in for a while you will probably have got to know some of us and no doubt you have a sound understanding of MND. I always feel sad to hear about people...
  20. Replies
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    986

    Hi Andy, I am pleased you have been ruled out...

    Hi Andy,

    I am pleased you have been ruled out of any heart disease since dealing with MND is enough.

    QMC hospital in Nottingham has a care centre for MND as has Sheffield if you move further...
  21. Thread: Duty of care?

    by Barry52
    Replies
    30
    Views
    3,047

    Hello Dina, I have just read about your...

    Hello Dina,

    I have just read about your predicament and like others I am appalled at how the system is failing to meet your needs. I hope the powers that be can fast track your application for...
  22. Replies
    338
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    89,309

    Kayleigh I’m laughing my socks off at the...

    Kayleigh

    I’m laughing my socks off at the only fools and horses sketches and I should have remembered to put my mug of tea down before spilling it down my shirt. I think CC will get the humour in...
  23. Thread: Pain/Agony

    by Barry52
    Replies
    48
    Views
    3,594

    Hi Devonmaid, I hope Tony is more comfortable...

    Hi Devonmaid,

    I hope Tony is more comfortable today. I agree with you that we often experience pain and Terry sums it up well. I think the information on the MNDA website is misleading.

    Barry
  24. Thread: collection

    by Barry52
    Replies
    9
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    973

    That’s great news Sheila and the generous...

    That’s great news Sheila and the generous donations in Mick’s name will help others.

    Barry x
  25. Replies
    338
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    89,309

    Good morning friends, Kayleigh - I would not...

    Good morning friends,

    Kayleigh - I would not be allowed to comment on the goings on within this forum. We did have a captain Peacock who was known as a floor walker and responsible for looking for...
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